Breast Cancer Care Forum

Madmoo I am just having a browse through the various threads. I have had a double mx with no recon and live flat. I started a facebook group for ladies living without reconstruction with either a single or double mastectomy. Here is a link to our page if you would like to come and join us xx ... View more

Hi ladies   I was part of "The Amazing Augusts" in August 2013. I am nearly 2 years from dx, had a double mastectomy, chemo, herceptin and tamoxifen. Chemo is definitely the scary bit, but it is very doable and you WILL come out the other end. I want to wish you all good luck and lots of love, you can all do this and be fit and healthy again, like I am. Take care, Gill xxxx ... View more

Somerset, if you are not having recon, come and join our Flat n Fab group. I have put a link further up the page x ... View more

Jets, come and join our Flat N Fab group, I have put a link at the top of the page x ... View more

Hi ladies.   For any of you who have had either a single or double mastectomy and aren't having recon, we have a great UK group, with lots of chatter, advice and support. Some of us go flat and some wear prostheses. It would be great if any of you would like to join us. Here is a link to our page. Hope to see you there. Gill   https://www.facebook.com/groups/flatnfab/   ... View more

Come and join us on the Flat n Fab page xx ... View more

I have started a group for ladies who have had either single or double mx and are living without recon. I personally chose to have my good boob removed for symmetry and never wanted to have recon. There is lots of support and chat, clothing ideas etc. Please feel free to come and join us. Here is a link to our facebook page xx   https://www.facebook.com/groups/flatnfab/ ... View more

Gill, good to hear from you too and to hear that you are doing ok xx ... View more

Good to hear from you RainbowRosie. We had a wonderful weekend away, full of fun and laughter. You will have to try and come to our next one xx ... View more

Hi there ladies. I was feeling a bit nostalgic, so thought I would drop in and say hi. I was part of the Amazing Augusts last year on here. We started a facebook page for us all and we are still firm friends to this day and have had one meet up and another booked for November. You will all go through the most amazing journey together and it wont be all bad. You will find laughter along the way with odd side effects etc. It feels now like you are at the bottom of a huge mountain to climb, but I promise you that you will all make it and come out of the other side. So good luck to you all and big hugs xxx ... View more

Ju and Fran, I'm just jumping on to say that the hotel is all booked for May. All I can say is watch out Coventry the Maisies are in town...woohoo xx ... View more

Annie, my onc said that there is no data to prove that 5 or 6 is better than 4 and even some oncs in the UK have now followed the states and only give 4. Some reckon that more than that does more harm than good. But I guess they all have different opinions. My viens are cording and are painful. I have cording on my mx arm badly, but physio sorted that out. Breast nurse has said that if the cording in my arm doesnt resolve she will sort physio for that too. Why did your chemo stop Annie? Did you have a bad reaction to the tax? xx ... View more

Hi girls. I, like Lynsey keep an eye on here every week or so. I have finished my chemo now, bowed out after 4 sessions, which is 4 more than I thought I would do!! Oncologist said that 4 was the magic number and if I was in the states I would only have 4 sessions anyway, so I was happy with that. Had ct scan last night to see what is happening with these speckles on my lungs and we should know next Thursday whether they are cancer or not...eek! Its a bit scary but I need to know where I am at. Then its on to herceptin and tamoxifen for me. I am doing the herceptin trial and getting the injections. Which is a good job as my veins are shot to pieces from the FEC. They are shut down and cording and quite painful. Hope you girls are all coping as best you can. Lots of love to you all xxx ... View more

Hi Roller, did you send a request to the Maisies facebook page? We have had a Wendy join us and wondered if it was you xx ... View more

Angie, so sorry things are at that point between you and your OH. I wondered why you hadnt put it on the page. Angie you can always send me a personal message on here if you want to talk, moan or sound off. I am a good listener. Please dont feel alone through all this. Big hugs to you hunni xxx ... View more

Good morning girls. Just to let you know that a few on the fb page are suffering quite badly this time, lots of emotional lows for sure. I had my chemo delayed last week due to a heavy cold, resheduled for Tuesday, so that will be my 3rd. Dee is in hospital with nuetropenic sepsis, he nets were down to 0.1, so she has at least a 3 day stay until they sort her out. Hope you all have a good Sunday, I am off out for a ride on the horses this morning in the sunshine, to try and feel normal before it all starts again on Tuesday xxx ... View more

Who has had a double mx? That is what I want asap so I can bin my bras too xx ... View more