Breast Cancer Now Forum

Haya, next MRI not until end of Feb. The SIRT won't continue to shrink them until they have gone, presumably the radiation inside my liver strength diminishes over time and will stop working, which is where I am back to chemo/hormone therapy.xxx ... View more

Hi. The SIRT itself is painless, you are asleep under a general.but as you have had about 70 times the dose of external rads you are sooooo sick...spend 3 days throwing up in a private hospital which I could not even eat their delicious food. Was tired for about 4 weeks after. But the scan at 6 weeks showing 40% reduction in volume of all my tumours cheered me up no end and felt it was well worth it. Xx ... View more

Hi. Kitty's at, I had my SIRT in Harley St, am not aware of anyone doing it outside London for bc patients. It is done at a few hospitals for colorectal cancers, but you need a specialist who is an expert in this , very expensive, field. Message me if you would like info on doctors. But it is done by an Interventional Radiologist, google your area and see if you have any. Good luck.. ... View more

Hi, just have 1 in my left hip bone, has been 2cms for nearly 4 years..had finished Eribulin a few months before and on Letrazole at the time of the procedure..once I had the SIRT I then went onto fec (again) have finished that 6 cycles and now on another hormone therapy now for stability....x ... View more

Hi. Haven't been in here for ages and have just seen your message. Yes, I have had SIRT. It was developed for colorectal cancers which had spread to the liver but interventional radiologists are now using it for bc patients where it has spread to the liver, with more success.. The bc tumours respond better to SIRT than others! It is not available on the nhs for bc patients at the mo. It's about £30,000. I had a 9.8cm tumour and 4 others measuring about 3-4 cms. My consultant is  in The London Oncology Clinic in Harley St. After 5 weeks tumours shrunk by 50 %, had it done end of May and they are still shrinking. The massive dose of radioactive beads stays in you for a while and keeps working. My largest tumour is now just under 3cm!!!! My insurance company paid for it...x ... View more

Haya,  it was a lovely lunch, sadly I had to break my pinot grigio & after eights diet-but what the hell!!!  The pain is so minimal that I feel a fraud mentioning it really, so many ladies are in such bad pain.  How did your appt go?  I have my MRI on my liver in 2 weeks, so fingers crossed for stability! we are meeting again on Friday 7th MARCH.XXX ... View more

Hi Angelfalls!!havnt been here for a while. I am on vinoralbine. I start cycle 3 on friday. I am tired on it, but other than that feel ok. I have constant liver pain now, a bit worried about it. How are you?xxx ... View more

Hiya.  I am in a very sim ilar situation to you, but the tumours in my liver are 6.9cms and 4 others about 1.5 cms.   My tumour markers are about 25-ish and have never changed..all it means is that tumour markers are not particulary giving too many indications so the onc and team won't rely on them.  It does NOT mean that your hormone receptor status has changed.  yes, it can change... I had a liver biopsy to check for change and it was most unpleaseant and there was no change. I am now on Eribulin chemo and Denosumab bone juice.  I did however get my ovaries removed which WILL give your onc more treatment options open to you as and if needed.   I treid Capcetamine, didn't work for me, but there are loads of treatment options avaliable to you yet and you havn't thought of all the hormone therapy options either-you'll be around for a while yet working your way through the long list... Keep positive, keep strong and get on with enjoying family life, your kids and you deserve it!xxx ... View more

Morning Mrs B!  yep, I am still on Eribulin. I have just completed cycle 9, I have been on it since early April.  I am feeling really well, but... I have started to get mild pins and needles in my foot.  However I'm happy to cope with nerve damage as it's keeping my tumours in my liver stable...  xxxx ... View more

I'll be there! xxxxxxxxx ... View more

Morning!  it was lovely to meet you yesterday, I really enjoyed myself.  Shall see you all next month??  xxx ... View more

Morning!  I also have liver mets. My tumour markers are checked every other month or so.  They tend to be about 13  - 20 ish, and can rise about 20 ocasionally.  That is lovely and low but it's also normal for me.  Some ladies have markers up  in the  thousanda when they are very poorly.  It just indicates that there is some activity going on.   xx ... View more

Hi.  Would love to meet up with you all..So it's wednesday 11am at Trenchers cafe?  better dust off the old sat nav!  looking forward to it.  Laura x ... View more

I really hope it's a haema-whotsit, the CT's are pretty good, so fingers crossed for you.  if I were you I'd stay in bed, turn on the telly and east chocolate!! Or go for a run, whatever tickles your fancy!!! ... View more

Hi.  do you still hold these meetings?  Laura x ... View more

Morning!  not too many responses?!!  perhaps the group have gone onto other things.. happy to meet up. There was a fairly recent thread of sauth wales ladies introducing themselves, perhaps we could make contact with them on their thread and ask them as well?  laura xx ... View more

Morning! sorry you are in such discomfort, i know how horrid it can be. However - the skin heals well and fairly quickly. Only thing I can recommend is to lie on the sofa or your bed and lift your boob up letting air get to it. I sat like this for days reading good books! xxx ... View more

sweetheart, you are not going to die soon! The liver is fabulously clever at working properly when we have tumours in it. I have 5 tumours, 2 the size of tangerines and my liver function tests are all normal. I carry on my day-to-day life and just get on with it. I was diagnosed in November 2010 and although have low points I am ok and doing well. I have been on back-to-back chemo now for 16 months and am fine... but - you may only have cytsts so you are worrtying about something that hasn't even happened yet! good luck!xxxxxx ... View more

Yes, your BC nurse is correct. no point nin doing a biopsy just yet. see if it responds to treatment...if it shrinks it's a tumour responding to chemo, if it grows is a tumour not responding, if it stays the same it may be a cyst...you are correct a biopsy will tell them if hormone receptor has changed..BUT....I had one done......It's more painful than you can ever imagine, you have to lie in a hospital bed for 6 hours after ( to make sure you don't bleed) and you are soooo sore for weeks. It is nothing like the breast biospy! I would have rather given birth.... If the "cyst" doesn't respond to different treaments then think about biopsy - do not go into it light-heartedly..... good luck!xxx ... View more

Hi Pam, Herbgarden. I am seeing my onc there on 6th Sept so thought I'd ask him about it then. I don't think I am allowed to name him , but he is young and tall! What mets do you have and was your oncologist positive about it? I have stable bone mets and (now) stable liver mets.laura xxx ... View more