Breast Cancer Now Forum

Hi, I have been off tamoxifen for 3 months and been feeling dizzy and really tired. I really thought i would feel better than i do. Also had slight bleeding the other day, after 6 yers of no periods was a shock. Hope the feeling goes away soon. Maybe it is just our bodies adjusting? Marg xx ... View more

Thanks for your replies. Looks like it is something else i have to put with along with weight gain. Sometimes i get fed up of having to put up with things!! I know i should greatful for my health, but it is just hard sometimes. Sometimes just feel like coming off tamox. altogether and taking my chances!! marg xxx ... View more

thanks for metioning this. i have just gone through a horrendous time in our relationship and decided to go to relate together. I asked them about the funding through macmillan and we are starting sessions next week. Hope it can help sort us out one way or another. M xxxx ... View more

Hi All, I have kinesio taping for the back of my hand when my hand swells and across my back and shoulder. I think its great and it certainly worked for me, hubbie learnt how to do it on my back and have tape at home, so now can get him to do it for me if it is bad. i call it an octupus as it is cut into thin strips but left attached at the top, then it spreads out over my shoulder and back. Its not such a good look in the summer, but in winter can't see it under my clothes. One thing that has helped me, as i don't need to wear my sleeve all the time, is wearing it in the morning before i go to work and in the evening when i get home. Marg xxx ... View more

hi Alise, i am 4 years down the line, like you and didn't think i would need counselling....how wrong could i be!! i am having counselling at the moment and can't beleive the anger i have been storing up for 4 years. This disease has changed my life and i am angry about it!! counselling is helping and helping me look at other issues in my life.it's not easy and it doesn't happen over night, but i am starting to see things a bit clearer. So go to your Gp tell him/her how you feel and don't be afraid to ask to help. something to consider is having counselling through macmillan centre or similar as they will be experienced in helping people through this. keep positive marg xxx ... View more

i am lucky enough to have a lymph nurse at the hospital, she has given me pink sleeves in the past! and also had blue ones on offer! They are Sigvaris make, but don't know where she gets them from. Marg xx ... View more

thanks all, I will shop around on those recommended. marg xx ... View more

thanks for this comment, i started on Citalapram 2 months ago but have just had to have the dose increased to 20mg, as i have been feeling really bad. It's good to know that the cloud does eventually lift. i am on 3 rd week of counselling too, but understand it might get worse before it gets better. just hope hubbie can stick around that long as he gets the worst of it from me!! marg xx ... View more

Well done to everyone who took part in the programme, just watched it on i player. I laughed and cried along with you gail, what you said is exactly how i have felt throughout all the treatment etc. Good luck for the future and keep positive Marg xxx ... View more

Hi All, After going back onto tamoxifen 3 weeks ago, i feel so much better, aches and pains gone, low moods gone, hot flushes decreased, bloating gone!! Why do they put you onto something that makes you feel so crap!?? Msu as you say be designed by a man!! Marg xx ... View more

I thing your idea of support group for those 4 or 5 years post DX is great. i am 4 years since dx and i find that the issues don't go away, they just change. E.G. long term effects of being on hormone traetment- Lymphodeama,Tiredness and tired of feeling crap!! In some ways i have moved on massively, in others i feel right back at square one. i actually can't remember life before BC. YES we need a support day!! Marg xx ... View more

Hi Rachie and kay, I have been back to my consultant who suggetsed i go back onto tamoxifen, as i said i actaully felt like stopping the Aromasin i felt so bad. i never thought i would be so glad to be taking tamoxifen again. I also went back to my Gp who asked me to fill in a questionnaire and then suggested anti depressants. i have jusdt picked up the prescirtion and looked at the side effects, the list is as long as my arm!! It coversevrything from drowsiness, lack of sleep, diarrhoea, constipation, headaches nausea, ....Do i need to go on?......Looks as if they added everything just in case!!Don't know if i will be feeling any better!! I need to try something, i have a job and a family and i need to able to cope. i thought 4 years on i wouold feel much better, but it just seems to carry on..... I have been offered counselling as well but have to make the contact with the organisation myself. Will let you know how i go on..........!!! Love marg xx ... View more

Hi Kay, I changed from tamoxifen to amorasin 2 months ago, i feel awful, tired all the time, can't concentrate, can't sleep, the worst flushes i have had in the last 4 years, memory loss and aching body!! i have been to see my own GP who diagnosed depression and anxiety, a side effect of the amorasin!! I am going back to see my onc about it as my Gp felt it would be better for them to change the tablets if needed.. i go next week so will let you know how i go on. Although i suspect i am just going to end up on anti depressants anyway!! i had a test which showed i was post menopuasal before going on them Marg xx ... View more

Hi Everybody, I have been taking clonidine for 12 months now, it seemed to work at first but now thw flushes have built up again and seem worse. Venlafexine was mentioned to me, not sure whether to try it, it might lift my permanant anxiuos state too!! I get so fed up of all the sude effects though. I have had a bad stomach since switching to Exemestane from tamoxifen and still piling on the weight. Mags xx ... View more

hi Catkin, I agrre with evryone you are changed person after going through what we have all been through. I had counselling through macmillan 2 years past DX and all i did was ball my eyes out over my mum who died 15 years ago!! I think it just brings back all the worst things that have happened. Even now another 2 years on i still have panic attcks and think i'm not going to cope with another day, but other days i just get on with it. O.H. doesn't know whether he's cominhg or going sometimes with my mood swings. ( then again it keeps him on his toes)!! keep your chin up and remeber to have a good rant and moan every now and again, it does you good marg xxx ... View more

Hi Zippy, My niece asked for money for thier honeymoon for a wedding present. When they got back they sent a lovely thank you card with a picture of them in the sunset on honeymoon. It was really nice. Just go for it and ask for money, no one is going to be offended. Best wishes to you and future hubby. marg xxxx ... View more

Thanks maureen, i hope it does settle down soon! I've come out in spots as well, i'm 48 for goodness sake!! My son offered me his acne cream earlier today!! Sorry for moaning, i know there are worse things. Don't know what i would do without you all to talk to and have a moan on here!! Love to you all marg xxx ... View more