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marial
Member
since
01-05-2012
753
Posts
26
Hugs
11-10-2019
08:52
13 Hugs
Hello Everyone, I only come here in October, because bc is not longer my priority, thank goodness. I am just posting to let you know there is light at the end of the tunnel, and after my first diagnosis in 2003 and another one in 2010, I am fine, and have NED as my pal. I was well supported here in 2010 and met some wonderful people. ("embarking on an adventure" thread) I do not think any of them come here anymore, but one of my questions when I was first diagnosed was; how long have I got ? and there was no-one from a long time ago answering, so I promised myself I would try and post once a year to let others know there is often a positive outcome that lasts and lasts. Take care of yourselves, Marial
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24-12-2017
09:12
Hi Delly, Thank you for posting on our thread. I do hope you are well and that bc is not the first thing you think about when you wake up in the morning. To answer your question, I went to South Africa, and while I was away the others visited my home in Switzerland for a "virtual vist". They had a lot of fun, I believe, and wrecked my place with their laughter and their "virtual fun" ! Goodness me, how times flies, a lot has happened since then, but unfortunatly, I have not managed to return to Sout Africa since 2010. Have a cosy Christmas and take care of yourself. xxxx
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13-10-2017
06:55
Hello Jill1998 and ladybowler, I am glad you found my positive post, and I hope it showed you there can be light further along the line. I don't know whether you can see my profile, but I have had 2 mastectomies, chemo both times and my ovaries removed, but it was all worth it, as I am still here. Thank you for the hugs from Optimissy, anniej and Jill. Hugs to you too. Take care xxx
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11-10-2017
08:24
3 Hugs
7 years on and still here !! and 14 years living with bc. Thank you to the forums for having allowed us to support each other so well. The original members of this group have now moved on. We are 16 (we were 18) and have very different stories but we are still in contact and supporting each other through thick and thin. Hugs to anyone who remembers us and hug to thoses who don't. Take care of yourselves, Maria
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11-10-2017
08:06
So sad to read about Dawn's passing. she was a great support to me in my dark days, and an inspiration every day. My thoughts go out to her family. Thank you Dawn. xxxx
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11-10-2017
07:56
3 Hugs
October is here again and therefore so am I. Needing positive news in 2003 when I was first diagnosed, and again in 2010 with my 2nd diagnosis, I promised myself I would let the newbies know there can be light further on, even if you cannot see it right now. I am thrilled to say, I am still here 14 years down the line. I was especially worried this year as my 2nd diagnosis was 7 years after the first, but no bad news this year. Every time I come back, it find things have changed, so I hope the people who need some positive news will find this post. I have noticed a few threads that started when I was around and needing support are still here. So Hi, to anyone that remembers me. I started the thread "Embarking on an adventure, you are welcome to tag along " in May 2010, but we eventually moved to facebook, there are 16 of us and some of the best friends I have ever had, we support each other through thick and thin. Look after yourselves and let others look after you too, and I'll be back next year. hugs, Maria
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23-10-2016
10:05
2 Hugs
Well, 11 years on has become 13 years on. I posted last year being 12 years on, but this thread seemed to be more popular. I hope this thread will bring courage to those who are new to this game, there is light at the end of the tunnel. I'll be back again next year and I hope all you reading this post will be too. All the best to you all, lots of hugs Maria $PS A special hello, to Marcelle and GeriF and Hope
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23-10-2016
09:55
Another year has gone by. The organisation of the forums seems to have changed yet again, but as I don't come here very often, I may well just forget. Can I blame chemo brain 6 years on ? So now in 2016, I am 13 years passed my first diagnosis and 6 years on from my 2nd. There is hope, that bc does not become your biggest problem ! Unfortunatly this is not the case for some of our members of this threat started in 2010. However this is a positive message to thank the staff that enable these forums to continue because they were certainly a life-line for me in 2010. I wish everyone all the best. ps sorry hellywelly, I did not reply to your message, I hope your holiday to Florida went well. I'm sure you realised, you just get on with it, but it was not always easy.
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30-07-2016
04:26
1 Hug
Hello Lorelie, Lovely to hear from you, I do hope you are doing well and enjoying life. I write every year and wrote in 2015 too. I will come back in October to celebrate my 13 years of living with bc in the back ground. I don't think any of the girls use our thread now. I have kept up with some of them and most are doing well, although unfortunatly 3 now have mets. I don't know how the forums work now-a-days, but I certainly send you a hug back. This may be a link to the old thread: Embarking on an adventure, you are welcome to tag ... - Breast Cancer Care Forum - 460278
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24-10-2015
05:23
Oh, Delly, what a shame we don't come here very often now. You understand us very well, yes we are barking mad. I hope your reconstruction sorts it self out soon. I think we had left the forums by the time it was reconstruction time, not an easy time at all, but for those who went through it, it was worth it in the end. Take care of yourself, be kind to yourself and let others take care of you too. There is life after bc, but it also has its troubles and its joys too. hugs xx
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24-10-2015
05:06
Hi Delly, What a shame you have only just discovered the forums, but I'm sure you you will find plenty of support here. Even 9 years down the line, we still feel vunerable at times, and those around us who have not been through the same thing, cannot really understand. It's true we, from the Embarking group, are all rather crazy and our antics on the forums helped us though the thick and thin. I hope you will join me next year to celebrate your 10 years down the line. xx
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18-10-2015
09:15
Hi Dragonbunny and Mash, Lovely to hear from you, good luck with your biking, Dragonbunny. So lets stay positive and make an appointment and meet here next year ! I hope the year treats you all well, and brings you happiness. Marial PS for those who wonder, this is my bc profile: 2003: bc in left breast, 2.5 cm and another 1cm, 0/7 nodes, invasive ductal, grade 3, hormone positive HER border line. Had mastectomy and chemo (4xEC), 5 years of tamoxyfen and arimidex for 1 year.
2010: bc in the other breast. Mastectomy, grade 3, invasive ductal, 1.1 cm, sentinal node + 2 others negative, triple neg. FEC x3 tax x3
. No reconstructions.
I've got the BRCA1 mutation. so had an oophrectomy 14th Oct 2010.
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04-10-2015
10:59
Wooh Joolz, you do have a good story, congratulations on becoming a grandma, so exciting. My boys were 19 and 15 (with a mental age of 4) when I was first diagnosed in 2003. Unfortunatly my older son has no plans for the moment to start a family and my 2nd son still has a mental age of 4, so I'm still not a grandma, but they need me so I am happy and gratefull to still be around for them.
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04-10-2015
10:19
When I was first diagnosed with bc in 2003, you all know what I went through, just like you it was hell and then hope, and hell and hope time and time again. Once I found the forums, one of the questions I wanted to ask was how long have I got, and searched to find people who was still around years later, but there were not any. Mainly because those who are living with Ned, leave the forums or come on less and les frequently. So I promised myself I would come back in October each year to let you know I am still here. When I had my 2nd diagnosis in 2010, I met some wonderful people on the forums, and they have been supporting me ever since. We are a group of 17 and meet up as often as we can, which is quite a feat as two of us do not live in the UK and the rest come for all over the country, but it shows what a strong bond we have. I hope you can all get the support I did.
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04-10-2015
09:59
It's October, and time to think of all those, who need the forums to help you get by during such difficult times. I'm sure I posted in 2014 on this thread, but I cannot find it. Once again I am saying hi to any of those who remember me in 2010 and 2011. I do hope life is being kind to you.
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24-03-2015
06:56
My thoughts are with her family at this time, but I just wish to thank Lulu for everything she brought to us. I will miss her.
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23-03-2015
04:01
Me too. If anyone reads this, that knows her family, please send my condolences.
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09-10-2014
05:49
3 Hugs
It's October, so here I am back to the forums, to let you know I am still alive and very much kicking. I hope I can give hope to those who are new to the horrible frightening journey of tests, diagnosis, waiting, and treatment. I don't come here very often, because my life is full of plenty of other stuff these days, thank goodness. But when I was diagnosed in 2003, I desparetly wanted to hear about people who had survived. When I was diagnosed in 2010 for the 2nd time, I met some wonderful people on these forums, and we are still in contact, and meet up several times a year inspite of our busy lives. You will get support, understanding, infomation and so much more on the forums. Take care of yourselves and let others take care of you too. All the best Maria
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25-10-2013
07:53
Thankyou, but I can't copy it or paste it. so that I can send it to the other members. I cn juar use it to get to it myself
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