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dm1968
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01-05-2012
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29-02-2012
01:59
Congratulations Blondie. So pleased to hear you are still doing well. Let's hope it continues for many more years for you and the rest of us xxxx
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09-02-2012
10:22
Hi everyone. Thought I would join in.
I am another stable checking in. My latest CT scan is still showing nothing visible on my liver. My last 4 CT Scans since Feb 2011 have all been the same. No change. No tumours visible. And after being allowed my cosmetic surgery mastectomy last July, it means at the moment that I am sort of NED I think, although I am under no illusions that it has completely gone, but I can hope.
I can now breathe again for another 3 months and keep everything crossed that things stay the same.
Good Luck to all..x
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08-02-2012
08:54
I am so gutted to read this. I remember poannie well and prob had a few conversations over the years with her. RIP and condolences to her family and friends xxxxxx
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08-02-2012
08:51
Just caught up with this post. What absolutely fantastic news for you lemon grove. I hope you had he best Christmas ever. What a fab story xxxxx
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08-02-2012
08:47
Hi all - just catching up. Glad to read that my post helps some of you to remain 'positive'. I have just had the results of my latest CT Scan and amazingly it is still the same. My last 4 scans since last Feb have all shown nothing visible on my liver at present. I was so amazed as had such a bad feeling this time. But can relax again for a while, although the constant worry doesn't go.
Anyway I hope you are all doing ok and that this gives you all hope and the belief that we can keep it at bay for longer than people think.
Xxxx
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08-02-2012
02:32
Hi All.
Thought I would have a quick update on here and saw this thread still going strong. It will be 5 years in July since I had my double whammy of breast cancer and liver mets diagnosis at the same time. I have recently had a CT scan which for the fifth time running has shown nothing visible on my liver. I had a cosmetic surgery mastectomy last July after 4 years of asking.
But life is good now. Although always a constant worry and I always fear the worst. I had FEC and taxotere in 2007, then Capcitabine in 2010 (which didn't work for me) and then sept 2010 to feb 2011 weekly paclitaxel for 18 weeks.
Just wanted to share with you all and to say never give up. My kids were 3 years old and 8 months old when I was diagnosed shortly after my 39th birthday. My little boy started full time school last September which I never thought I would see.
Next milestone is to see my daughter start secondary school in 3 years time.
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30-08-2011
11:51
Hi
I was told back in 2007 that because my cancer had spread, there was no point in doing a mastectomy. Which is what I wanted to remove the primary lump. But as I have done so well and defied the odds and am still here, my new lady onc - agreed for me to have the op.
I didnt have reconstruction as such. I was not allowed the normal full mastectomy, due to my liver (although good at mo), and that to have mastectomy and reconstruction is about 11 hour op and they would not put me out for that long. i was going to have a lumpectomy, but finally it was agreed to have a mastectomy - but being more like a cosmetic boob job if this makes sense. They basiclly removed the lump from my boob, plus all the tissue, fat, etc, whatever is in side ones boob, then put in an implant and this new artificial muscle - which apparently ends up taking blood from my body and is true working muscle. Sorry but I dont really understand what it is for or does lol - but its new and they are grown in a lab. Not much help really.
It is now about 10 weeks ago when I had the op and it all seems ok, but weird feeling and solid, but least no lump for me to be able to feel all the time.
xx
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25-08-2011
10:26
Hello Fay
How you doing - hope my text helped you and that we can catch up soon. I hope that xeloda works wonders for you like it has done for some of the others on here. Will keep everything crossed for you - we been through so much in 4 years together, and you are a fighter so keep yer chin up matey and remember even though I am not on line much at the mo (kids back 6th) you can always text or fb me and I will reply.
Loadsa love coming your way. Big hugs too and take care. Drop me a line and let me know how it is going and order that cream for your feet.
xxx
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25-08-2011
10:22
Hi Lemongrove
Not sure this is of help but I was dx 4 years ago with bc and secondary liver mets at the same time and was told surgery and mastectomy was not an option as had already spread. But 4 years on and after finishing paclitaxel this year, there was nothing visible on my liver and my onc agreed to remove primary source. I had a cosmetic boob job mastectomy as wouldnt do the normal version due to my liver, so they basically removed everything in my boob and just replaced with implant and artificial muscle so like boob job but more if you understand.
It has taken 4 years of asking but they finally agreed, so if you really want it you should push.
xxx
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25-08-2011
10:19
Hiya
Just caught up with this thread. I had paclitaxel from Sept 2010 finished it in Feb 2011 - 18 sessions of it. I did pretty good on it, but by christmas had a constant cough/cold. I didnt suffer anything else really, apart from the predicted hair loss. But I have to tell you it worked wonders for me, so much so, that since Feb nothing has been visible on my liver and that after 4 years, it was finally agreed to have a cosmetic surgery mastectomy on my boob to move the original lump. I have another scan tomorrow now, so fingers crossed there is no change.
I hope you cope OK with this chemo - weekly is more doable I think than 3 weekly as the dosage is less in one shot if get my meaning. It is hard as mine was every week for 18 weeks with a couple of misses over christmas and new year.
Good luck and hope you respond to it as well as I did. I also tried capcitabine, but it didnt work for me.
Take care
xxx
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17-07-2011
07:29
Helllooooo Fayeeeeeeee
Yep found you on here LOL - glad you doing so well and as you know I am too so far, and my hair is growing back quite nicely again now lol. Do you not have your bishbosh no more then either. Must catch up again - we keep saying it, I keep getting tied up but I PROMISE I will.
Take care
xxxx
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17-07-2011
07:25
Hiya
Just come across this post. I was on paclitaxel from September 2010 til Feb 2011. I had 18 weekly sessions with no break except for over christmas. I was initially having 12 sessions, but as I was responding so well had another 6. It is very doable, but for some reason, I do well on chemo anyway. Never been sick at all during chemo. I lost my hair pretty quicky, but I did not shave it this time (first chemo in 2007) and after finishing paclitaxel in Feb, I managed to stop wearing my wig in May, which is pretty quick I think.
I did find by the end of December through Jan I had a permanent cold, but just rang my docs and got antibiotics immediately if felt was moving onto my chest.
My latest scan in May showed no sign of liver mets at the moment, so paclitaxel has worked miracles for me for now, and my onc said that if needed, I could have it again in the future.
Good luck and hope all the responses have helped you
xxx
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23-06-2011
01:02
Fantastic news - great to hear chemo has worked for you and that it is worth it. Hope you stay NED for a long time xx
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19-06-2011
12:37
Hi
Not sure this is really inspiring but could give hope to others.
I was originally diagnosed in July 2007 with breast cancer and secondary Liver mets at the same time - doubly whammy. I was 39 and had a 3 1/2 year old daughter and an 8 month old son.
I had chemo from Aug 07 to Nov 07 then went onto Herceptin. But then in late 2009 there was some movement in my liver mets, so I went onto capcitabine for 9 months, but this was not working for me. So in September 2010 I started on weekly paclitaxol and had 18 sessions, so finished in February this year.
I had a ct scan at Christmas and in March this year, which showed a fantastic response as there was lots of shrinkage. I am still on herceptin and have just had another ct scan (so 4 months after finished chemo) and apparently there is no sign of cancer on my liver right now. Whether this is because they are too small to see on the ct scan or that for now I am winning the battle is the question. I actually cannot believe that I am winning but fingers crossed.
Anyway after 4 years of fighting cancer, and with my latest scan results, my onc has agreed to have either the lump removed from my boob or a full mastectomy. I have always wanted the source to be removed, but never been allowed as had already spread, so at least now I can go back to the start and remove the original lump, which I can feel all the time and stresses me out.
Hopefully this will give other ladies some belief that we can fight and not to give up.
Thanks for your time
Dawn
x
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19-06-2011
12:28
Hi
Could anyone please help me - what is the recovery time from having a mastectomy. After 4 years of fighting cancer, and just finished my 2nd lot of intravenous chemo in Feb this year, my onc has agreed to have either the lump removed from my boob or a full mastectomy, as my latest ct scan has shown no visible cancer at present on my liver. Whether it is just too small to be picked up or I have sort of won the fight is anyones guess, but least now I can go back to the start and remove the original lump, which I can feel all the time and stresses me out.
So I was wondering what the recovery time is from the op for single or double mastectomy and what to expect really.
Thanks for your time
Dawn
x
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19-06-2011
11:42
Hi
I was one of the ho hummers with Mel from the beginning and it is so very sad that she lost her fight. She was an amazing lady with a fantastic outlook on life and her continual strength was an inspiration to us all.
Love you and miss you Mel
xxxx
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19-06-2011
11:32
Hi
Could anyone please help me - what is the recovery time from having a mastectomy. After 4 years of fighting cancer, and just finished my 2nd lot of intravenous chemo in Feb this year, my onc has agreed to have either the lump removed from my boob or a full mastectomy, as my latest ct scan has shown no visible cancer at present on my liver. Whether it is just too small to be picked up or I have sort of won the fight is anyones guess, but least now I can go back to the start and remove the original lump, which I can feel all the time and stresses me out.
So I was wondering what the recovery time is from the op for single or double mastectomy and what to expect really.
Thanks for your time
Dawn
x
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19-06-2011
11:32
Hi
Could anyone please help me - what is the recovery time from having a mastectomy. After 4 years of fighting cancer, and just finished my 2nd lot of intravenous chemo in Feb this year, my onc has agreed to have either the lump removed from my boob or a full mastectomy, as my latest ct scan has shown no visible cancer at present on my liver. Whether it is just too small to be picked up or I have sort of won the fight is anyones guess, but least now I can go back to the start and remove the original lump, which I can feel all the time and stresses me out.
So I was wondering what the recovery time is from the op for single or double mastectomy and what to expect really.
Thanks for your time
Dawn
x
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02-03-2011
10:29
Marif hope you OK and your scan went ok yesterday. When do you get your results. I get mine on 9th March - day after my birthday and got treatment on my birthday 🙂
Hope we both get some good results.
xxx
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