Hi everyone
Glad you all seem to be coping well on this chemo. Gingerbud, have a great holiday - and I hope your hair stays on your head!
Francescap, I too hated wigs and scarves but the price of the hair replacement!!! I know we're worth it but I honestly couldn't justify it - and I don't know that I could be bothered. I was determined to go commando this time round but I'm losing my nerve a bit. I've got an almost 14-year old granddaughter and I know they're very sensitive about things at that age, so I'll probs wear a hat or scarf when I see her. Also, I'm meeting an 89-year old uncle next week and he's got more hair than me! I've got an appointment with Headstart at my hospital tomorrow morning to try on hats and get ideas for tying scarves.
I started cycle 3 yesterday. Onc is very pleased with how I'm doing ... but he did say I'm the only lady he knows on this chemo who has lost her hair. Well, I've still got some and I'm waiting to see if it goes the way of the rest of it. I'll let you know. I haven't taken the steroids again and don't feel any the worse for it. I also mentioned that I'd read Erubilin can affect the heart. As I have a heart condition, Onc sent me for an ECG yesterday. It came back clear, with no sign of my atrial fibrillation!! I'm not saying the chemo has helped it, as this condition is an erratic hearbeat and it could just be that yesterday I was calm and collected.
What about treatment times at your hospital? Any long delays? Yesterday, my bloods were at 1pm, Onc at 2:30, chemo 5:30. With the chemo suite always being behind, I got seen at turned 8pm, home by 9. I was shattered! Seemingly, once the Onc gets clearance about the bloods, he phones through to have chemo taken "off-hold", it's made up offsite then couriered to hospital. This all takes 3 hours. By the time I got seen, delays at chemo suite were 2.5 hours 😞
Good luck to us all.
xx
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