Breast Cancer Now Forum

Hi trudy well done at finishing treatment. I felt totally lost after finishing treatment got used to going to hospital and being reassured. So you may find it hard but its part of the rollercoaster that we all go through.keep well and look after yourself plenty of rest and dont be hard on yourself  take care love suzan xx ... View more

Hi seagulls well you have certainly been through the mill  > and looking after your mum must be very hard for you .   I admire your tenacity   .And I know how hard it is being able to look after yourself. And its very hard not being able to trust your other half with looking after you .  Must admit I have much the same problems.  I feel I am the only person I can rely on  .You are very brave supporting him financially and 6 years sober is quite an accomplishment on his part, but the fear must always be that he can relapse at any time. I dont know how you coped with the abuse, somehow we manage to get through whatever life throws at us but its very hard,  As to the cancerMine was a recurrence or new cancer they couldent tell   They also said that radiotherapy can cause cancer after a long time   , but that the treatment will be the same   . I suppose now its a case of waiting to see what the treatment may be.  Somehow you must take time to look after yourself even if its only for the odd hour  best wishes suzan ... View more

Hi seagulls have you finally got a diagnosis   I went 18 years   couldent get my head around the fact that it was such a long time ago.  How are you and whats the treatment      best wishes  suzan ... View more

hi  I was on tamoxifen and then arimidex   I was given replens by my doctor its just an applicator that you insert every 3 days or so  easy to use  ask your doctor   I expect you can buy it but cheaper on prescription I would think love suzan ... View more

 hi seagulls  i understand etirely where you are coming from I had the uterine biopsy done and as you say it was very unpleasant very bad tummy cramps and bleeding   .   was also misdiagnosed because I was young !  So what is the next step wait for results and then go from there   Have you an appt to go back ?   I have found that as long as I have an understanding doctor or nurse that I feel comfortable with I can cope, I suppose trust is the important thing, but once you have a bad experience its very hard  . Keep us informed and let us know how you get on  love suzan xx ... View more

Hi seagulls   do you mind if I ask you why dont you want a biopsy done   Wouldent  that enable you to find out if there is anything serious.  I hope you dont mind me asking  .  Things are much more up to date now and it had minimal discomfort  love suzan xx ... View more

Hi margarita lovely to hear from you . I have been thinking of you and was hoping you were on the mend.Never be afraid to come on here and let us know how you are feeling, I remember being the same I was so depressed my mother had just died and the tears kept coming and my mood was lower and lower .That was just what I dident want you to think that we were all very positive, far from it. I remember saying to you its a rollercoaster. we are all frightened                          . Never think that we are all sitting at home being positive cos we are not, we are miserable and defeated we have all been through it. I remember looking in the mirror and that feeling of not knowing who I was it was so strange. But I suppose we are different people now life will never be the same again for any of us after our experiences . so get on here and let us all know how you are and we can reassure you   love suzanxx ... View more

Hi trudy sorry I forgot it was on the other side this time . How are you feeling in yourself, its hard having to go through it all again. But it has to be done I suppose even though part of us is screaming out " just leave me alone ".At least its a short course of rads let us know how you get on  love suzan xx ... View more

Hi Trudy.  I dident know you could have rads twice. They told me I couldent but perhaps it’s all changed now. Good it’s only dcis. Will you be having any medication or is it just the rads. Love Suzan xx ... View more

Hi trudy   thats good    news  when I had my rads it was over 4 weeks with boosters at the end so things have changed and hopefully it will be better for you  .  remind me again of your history  sorry but my computer is playing up or rather the user is !  At least you must feel you are moving forward  love suzan xx  Hi delly   🙂 ... View more

Hi everyone   delly, seagulls and trudy   HOw is everyone . Delly had my echocardiogram and it was normal and not doing too badly on the new heart meds seemed to have stopped a lot of the ectopic beats   How are you anything exciting been going on . love suzan xx ... View more

hi  seagulls hope everything goes well today  let us know how you get on love suzan xx ... View more

Hi seagulls  not long to go till friday and then hopefully you will have some answers. I have wondered myself why the figures  are rising.Could it be that women are being diagnosed at an early age. The younger  you are when diagnosed the more chances you will live to have a reccurence.I was 38 and went 18 years  .First time round i had radiotherapy to the whole breast and  booster doses  to tumour site .l couldent have it the second time around.   I know the wait is awful and if you are like me you imagine all sorts of things. let us know as soon as you have seen someone friday   love suzan xx ... View more

Hi seagulls. I know how you feel. But wait for your appointment and then you can decide what you want to do. I understand totally how you feel. And until 13 th you will worry. It’s the waiting that’s the hardest. I try to bury myself in something. But the worry is still there. HNg on in there.  Treatment is different now. Love Suzan xx ... View more

Hi Trudy and every one else on this thread. So nice to read all the posts.  We all know how the other feels. I found the first time I was diagnosed no one talked to me. I felt like I had a bell around my neck chanting stay away unclean.  Very sad I know it was 32 years ago and things have changed.  When I had my first surgery the surgeon just felt under your arm and said ok no lumps. And that meant no lymph nodes. There was no testing of nodes at all. I had 3 children at the time and the youngest was 3. Never thought I would see any of them grow up. I figured the best way was to exercise to keep my mental health strong and eat well and if it did come back I would be stronger to fight it. I savoured all those days with my children in the winter I would look out of the window and see a few flakes of snow , so it was you can’t go to school today let’s all stay home.  Happiness and sadness all rolled together. There weren’t any local support groups or breast cancer nurses and so I made friends with a few elderly ladies in Margate. Who took me under their wing. They saved me in many ways.  Life is so much more precious than we realise. Hope your healing is going well Trudy. Love Suzan xx ... View more

Morning everyone hi to trudy and delly  and of course margarita.Well I can see this has turned into   WHO has climbed the biggest mountain    WEll I have climbed scarfell amd great gables and  1 other but cant remember the name as I conked out before I got to the top   LOL  Anyway some very interesting threads on ladies who have had a reoccurence or new tumour after a long term.  Its such a shock when you think you have left it all behind you and its a distant memory . I suppose the younger you are at diagnosis the more chance you have of getting it again  .   I was 38 and then 57  Took me a long time to get over the mastectomy. Which leads me onto another thread where you said how you felt when you lost your breasts .  Delly you absolutely explained that so well  and I could see myself howling beside you   one breast bald head  fat and ugly .I felt a kind of  grief I had lost part of me and sometimes I would wake in the morning and just for a minute it was like it had never happened   and then the reality would hit me   .  I think the thing I found hard was waiting for all the test results  a week seemed like a lifetime.  I remember thinking life will never be the same again.I will never wake with that carefree feeling of a day when I had no worries and felt happy because it will always be there. Of couse it fades until you look in the mirror.I think the other thing I find hard is that I find it difficult to live in the real world when people moan about stupid things and I want to shout  STOP  make the most of your life do silly things like going to brighton and  getting drunk in the gay bar and being carried out by two beautiful drag artists    What a great time .   lots of people say life is short but how many of us know what that means until cancer or some other disease strikes you down   .  anyway to all the new ladies you have many of us to accompany you on your journey. I like to think its like the older ones are leading the way with a bright light   and  you will get there   so you are not alone       love suzan xx  reminds me of the song   you will never walk alone ... View more

Hi delly lovely to hear from you. The ridiculous thing is that it says on the tablets it’s better not to drink alcohol.  Oh no !!  I say. I can’t live without the wine 😂.    I know my life is like a comedy.  I tried to get in the wrong car the other day only realised as I opened the door and saw the man sitting there that it wasn’t mine.  I do the most ridiculous things sometimes. Like walking out of the Lou with your dress tucked in .  I think I just have so much on my mind I jump to the wrong conclusions.  More to follow 😂.    Well Trudy how are you any news on the results. And margarita how are you getting on ??     Let us know when you get time.  Love Suzan xxx ... View more

hi trudy    thank goodness its not just me. I always imagine everyone else going through through life and being very positive and I am still a wreck . I cant seem to handle any aggro at all now. I go into complete overdrive in my thinking.  I thought I was the only one on beta  blockers I have been on propranol 10mg x 2 three times a day made me so tired   so I have been switched to bisopoprol it works on keeping your heart calm and not so much tiredness  . I hope everythibng goes well for you today I will check in later to see how you are   take care love suzan xx ... View more

Hi everyone     delly margarita and trudy2010  sorry been absent for a while been thinking about how you are all individually getting on.  Been having these flipping heart tests and now waiting for an echocardiagram  I have been having ectopic beats or palpitations quite a lot  thought it was stress but thought I shouldent ignore them   I dont know about any of you but when I found out about cancer especially second time it was such a shock, lost count of the sofas I have ruined in peoples houses after having a glass of red wine and then the phone rings and I jump 6 feet in the air and spill it everywhere   . I even did it twice in the same house, cant think why they never invited me back  .  Just to put a smile on your faces  I got another car last year and I left handbrake off and it rolled into car opposite  But that wasnt the first time a few years back I did a similar thing to the same person    IF it happens again I will have to move somewhere where no one knows me oh the humiliation  , But then I thought to hell with it asmakes you see things so differently now after cancer   silly things that before used to irritate just dont seem important any more things can be fixed.  Life is important still being here   however frightened sometimes we may be      Hope you are ok margarita     love to all  love suzan xx ... View more

good afternoon margarita and delly and trudy   .Well there seems to have been a lot going on while I have been absent  Margarita I am so very pleased for you. No chemo thats wonderful news   .Now is the time for you to recover knowing what lies ahead in the terms of the A Is. But remember no skateboarding or sky diving just stick to sensible things like  the odd bungee jump  I think like delly said sometimes your sense of humour gets you through the darkest of times.  I remember having my reconstruction done and in the hospital everything was done in the bathroom by remote control   well me and remotes have never gone together  I remember thinking  I wonder what this is for  and i twiddled with the controls and the sink and the bath started taking off they were going up and down the wall  so so funny   . I never did get a wash cos I couldent get the sink down again    I felt a bit like michael crawford from some mothers do ave em       Oh and then there is the brighton Incident but I will keep that for next time cant have too much excitement in one day !!.  Delly like you I have a wicked sense of humour  I always remember everytime I used to go in for an op  I would always have my hair and roots done  I could always imagine them pointing to my hairline during the op " going oh look at her roots "  So sorry about the dog incident I had a similar thing a little while back it really frightened me and shook me up so I hope you are feeling better now and those birds  appreciated the trouble you went too  One thing that  I always think is that we somehow become kindred spirits its like we form close friendships with people we have never met and yet we trust them completely with our thoughts and our feelings.   Trudy I hope you are doing well your husband sounds a good man my husband had to dress my wounds when I had a reconstruction I had necrosis and well thats a long story but it eventually healed but had to dress it every day  . Funny how our relationships change in times like that but wonderful as I know some people have little or no support,  well I am off now to get delicious food from marks and spencers  its my one treat apart from a bottle or two of vino   Take care everyone love suzan xxx ... View more