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ness1
Member
since
01-05-2012
173
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1
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08-10-2021
07:37
Belle63, thank you so much for your response, hugely appreciated. I will make sure that I forward this info on. I think our local hospital has perhaps not handled her situation as well as could have been. She found out the other day she has been discharged to community diabetes team and hasn’t yet seen a specialist. Her BCN has taken this up yesterday. Her bloods are not yet stable and she keeps having hypos. Good luck with your own journey, I was diagnosed 2008 and still here to tell the tale xx
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07-10-2021
11:20
1 Hug
Good evening all. I am posting for info for my sister in law. I have been a member of this site since my own primary BC a number of years ago but I am now back looking for information/experiences for my sister in law. 6 weeks ago she was diagnosed with primary BC, the following week with a rare form of diabetes - Hybrid diabetes not type one nor two but sometimes known as MODY or type 1.5. Today has the news that stage 4 with a liver met. She has been started on insulin and trying to get blood sugars in order to start chemo. I was just wondering if there is anyone out there who can offer any insight into chemo and diabetes, if anyone out there with the specific type of diabetes mentioned I would be really interested to hear from you. Thank you so much in advance, and I hope that I have posted in the correct area, I wasn’t sure if I should be in secondaries, newly diagnosed or a different area. thank you Ness1 x
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07-01-2012
12:04
I was led to believe that the keyhole surgery was going to be a doodle - I didn't find it that way, I found it quite painful for a few days after and just laid on the sofa, but after about a week I was doing much better. It was a no brainer to me, I was highly er pos so having that op done was just another preventative measure. the flushes havnt been too bad really - they advised me that they would prob be quite severe due to my age - was 37 at the time. The main thing now for me is my bone density is decreasing quite quickly, but I do take medication to try and help combat that.
Hope this helps.
X
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06-01-2012
11:38
Hi, I just wanted to add that I was offered the oopherectomy (and had it done) purely as preventative measure on grade 2 stage 2 bc. No family history, no spread, and no symptoms of anything wrong in that area. It was done pretty much at the end of my cancer treatment.
X
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06-01-2012
11:22
Hi, thanks for your comments. Yes I take 2 vit d daily, I wasnt very good at taking them prior to my last scan nov 10, but since I saw how quickly my bones went downhill, I have taken them every day!!!!
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06-01-2012
10:41
Oh I'm gutted, she was lovely, we did one of the breast cancer care telephone support with the nurse and two other girls. I think the last time we spoke was a year or so ago I think. I had her email address on a laptop that broke and so we lost contact a bit. I know she had some secodary cancer from early diagnosis, but she was so positive and I really thought she would be around for a good few years. her poor little girls, so sad.
Thank you for letting me know.
Ness.
X
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06-01-2012
08:51
Thank you Dawn for your reply. It is my gp who I am now under for the scan, I think it is the dexa one ( that scans your hips). I have spoken to her yesterday and she has referred me for Another scan. she said a year ago that I should try and stabalise the situation with diet and exercise, and didn't want to start any bisph due to my age, I think because I can only be on them for a limited amount of time????
I hope some of the other ladies who you refer to can give me some advice.
Thanks again.
ness.
X
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06-01-2012
07:22
hi I'm looking for a lady called Leah, we spoke on here from time to time, and I often think of you and wonder how you are doing, give me a shout if you see this as would be nice to see how you doing and catch up.
Ness. Xx
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06-01-2012
07:07
Hi everyone, I don't post on here much these days but check in from time to time to read about others. I am in need of some support/advice at the moment though. It's coming up to 4 years since diagnosis, I seem to have 'had it all' as far as treatment was concerned, mast, chemo, rads, herceptin, overy removal, recon, infections, reactions to chemo and femara. I'm 39 (soon to be 40!!!) anyway all has been going ok, apart from the drastic bone density loss showed up on my scan over a year ago. Just recently my joints are giving me he'll. I'm know this is caused by one of three things, bones getting worse, the femara, or mets - obviously I'm rather hoping it's not the latter!
Anyway just wanted to hear your thoughts, stories and opinions on this. The femara was fine for the first couple of years, does it all of a sudden come on, or is it like a gradual effect? If it's my bone density what should I expect - my doc was trying to avoid bisphosonates (spell?) for as long as poss. If bone mets is it likely that ankles, wrists and fingers would all start to ache at the same time?? My back and hips do not ache much really. I also fractured my finger recently, never had a fracture in my life until a few weeks ago, worried that this is the start of frail bones.
Thanks for reading.
Xx
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28-09-2011
10:08
Hi Deed.
Yes my implant did stay in in the end, and is fine (turned out that all the time it was a certain type of internal stitch that my body rejected. I am doing fine, but typical of me I have just had to have my nipple re-done, keeps going flat, and about 8 weeks on its looking quite flat again!! back at hosp at begining of oct for next review. 3 1/2 years now I have been having treatment.
My marriage broke down at the begining of this year so I have been dealing with that and life adjusting to being a single mum. Im doing ok but its hard work and very tiring but you just gotta get on with it havnt you.
I really really hope that your new implant stays in and looks great, its not fair that we have to go through the cancer and then all this crap just to look a bit like we did before hand.
Take care
Ness. xxx
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27-09-2011
01:38
Hi deed, I dont know if you can remember me but we spoke a few times last year when I had similar problems where implant was removed. I just wanted to say that there are similarities but after 4 different ops (this was actually on my good breast for balance) finally they look 'half decent' not great without a bra but fine with one. I just wanted to wish you luck, and tell you of a good ended story with implant rejection.
Hope it all goes well for you.
xx
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27-09-2011
01:16
Hi, I havnt been on here for ages, but I too am in need of a little support right now. I read your post and the 'softness' line just made me go 'Thats me' Diagnosed 3.5 years ago, seemed to have everything going chemo, mx, rads, herceptin, recon, ovary removal, infections, implants in and out and in and out again!!! Anyway my marriage broke down at the begining of this year (after18 years together and 2 kids). I felt that he could have been there fore me emotionally at the time of the bulk of my treatment and he burried his head in sand (in my oppinion), anyway the point that im trying to make to you is that I have thought time after time that maybe i have become hard and the fact that most of my 'womanly body parts' have been taken away or messed with only makes me harder!! I dont know if this will help you at all but i just wanted to let you know that someone else has the same thoughts.
Hope you do ok in the end.
xx
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09-12-2010
08:56
Hi deed, we have spoken a few times in the past, I dont know if you remember me. I dont know your full history but just reading this post it all sounds very familliar!! I know that you must feel like this is a nightmare that noone else can relate to, but believe me I was there a few months ago. I ended up in hospital for a week as an emergency case on a/b drip and had to have my implant removed after opened up and horrid stuff was leakin out of the bottom.
I just wanted to post to you to say that I thought that the nightmare would never end, but it has. I did have the implant removed and the infection did heal up (took a while, had to wait 3 months) but then have had new implant put in, and I am now due to have my nipple done on 22nd dec.
Where you are right now is nothing less then SH*T, but they will sort you and u will eventually have your implant back and will be clear of infection.
Keep you chin up and I wish you a lovely wedding day in the sun. xxxx
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06-07-2010
09:01
thanks for the response. Wilmar, what suppliment did you take for hair please? If it doesnt stop soon I will make an apmt with my gp. I recon they will say its stress - which I think it is, but I cant just turn my emotions off, so not really sure how to combat that?
thanks again.
x
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06-07-2010
08:48
Hi, I just wanted to say that through chemo my nails were fine, until I started Herceptin, they were thin, splitting, flaky and weak. I hated them as ive always had really good strong nails. I finished Herceptin in December and over the past 6 weeks or so they have come back normal. Nothing I tried to save them worked at the time, so I just cut them all off, looked horrid but light at the end on the tunnel.
x
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30-06-2010
01:04
Hello ladies, advice needed please. I am 2.5 years from diagnosis, have had chemo, rads, mastectomy, recon and ovary removal. My problem is that for whatever reason (am under a bit of stress at the mo) or likely as im menopausal is that my hair is falling out. Just a bit everyday, and the more i worry about it the more it seems to drop out. I dont have very thick hair at the best of times, and loosing my hair on chemo was one of the worst bits for me. If anyone has any suggestions please post as im so upset about it.
Thanks
Ness. x
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10-05-2010
12:18
and also did he try this drug on you???? it may not have worked on someone else but it might on you, everyone is different.
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10-05-2010
12:17
If u r worried, get a second oppinion. Ring the help line on here or speak to BCN or go back to gp's. You know youre own body, with bc, you have to know you have done the right thing to satisfy youre own mind. I had a few ultrasound scans when i had my infection in good side, they would show up anything bad.
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