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Valkyrie
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since
01-05-2012
153
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27-04-2015
10:01
Thanks for all your support Songbird - glad you were there to hold my hand. Can move on now but there'll always be a lingering doubt. Love and hugs - wishing you strength and courage on your journey. Valkyrie xx
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27-04-2015
07:26
Hi all Just to let you know that it was good news today, no changes on mammogram and ultrasound supported this - hormonal changes 🙂 Apparently, even though I've had my ovaries removed, my body still produces ER/PR 😞 Since my appointment I've thought of another question (typical) - prior to having bc in other breast I had several cysts (all hormonal); does this mean this latest hormonal change is the precursor for cancer in this breast? Sums it up really - there's no 100% guarantee on any front with this disease. Heigh ho. Thank you everyone for your support, my bc friends. Once again you've been there at a crucial time. Love and hugs Valkyrie
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25-04-2015
03:57
Hi Songbird Been trying to keep busy at work and just need to get through the weekend before I have my appointment at the Breast Unit on Monday morning. Time's dragging soooooo slow. How're you doing?
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21-04-2015
07:48
Songbird and GBC - thank you for your replies and support. I have an appointment at the breast clinic on 27.4.15 for triple assessment. Already been there and done that 7 years ago. In a very weird way I'm glad another lump has appeared - at least I can stop checking and feel vilified that I knew it was going to come back. I think I'm deranged where bc is concerned 😕
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16-04-2015
11:47
Hi Ladies Saw my GP yesterday who had a good rummage round my boob. She could feel what I was concerned about but thought it more glandular than malignant. Anyway, due to bc history, I've been referred on a cancer 2 week wait to the Breast Unit - my appointment is Monday 27th April, 9 am. Ho hum, back to the waiting game. They say patience is a virtue but I'm not very virtuitous 😉
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10-04-2015
11:49
Thank you Songbird68 GP appt is Wed 15th April. Can't come soon enough but know it could bring life changing news. Best wishes everyone xx
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10-04-2015
09:34
Hi Judithvr6, thanks for your reply. You're right, it's the waiting that's the worst bit where time seems to be on a go slow. Yes, you must've seen big changes in the cancer journey/treatment between your first diagnosis and now - I hope all for the positive. Good luck with the radio - definitely do-able but tiring. Best wishes
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10-04-2015
12:11
Dear all Been a long time since I've been on this wonderful site but now I'm here again looking for support. I'm 7 years post IDC ER/PR+ve, HER2-ve . WLE, XRT, Zolodex, Tamoxifen for 10 years - 3 years left. I've found thickening and 2 lumps in my other breast and now waiting to see my GP. Thought I could deal with another primary or recurrence if/when it happened but I've totally gone to pieces thinking it's back - far worse than the first time. Anyone out there facing/faced the same predicament? Valkyrie
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15-06-2012
10:32
Hi Tina, thank you for your reply and apologies for my late one. Have you had the results for your x rays? I really hope everything was OK.
Didn't have the FNA after all, had mammo and USS instead and now got CT on Monday 😞 Surgeon thinks they are neurofibromas but can't be entirely certain without biopsy but having them biopsied would leave me with permanent nerve damage round my middle. Hopefully CT will give a clue and as it's several weeks now since I was referred I'm assuming they don't think it's mets or another cancer.
Take care
Valkyrie x
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28-04-2012
11:43
Hi all
Been 4 years since diagnosis, can't believe it's been so long and still going (relatively) strong. Had a blip last year with sacral and hip pain but bone scan revealed wear and tear. 6 weeks ago found a line of lumps in my lumbar paraspinal area (3 larger lumps with smaller ones as well); GP, Breast Surgeon and Ragiologist don't know what they are so having FNA on Wednesday. Breast surgeon says it would be a very unusual area for mets. So what are they? If not mets then a new primary? Never goes away, does it.
Best wishes
Valkyrie
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21-06-2011
12:36
Thank you both for your replies - it does seem there's a cause for concern where there's a history of bc/cause bc but I'm wondering whether the benefits would outweigh the risks - isn't this what we're told when taking our bc meds ie Tamoxifen?
I'm using Replens and trying to keep my fluid levels up - sometimes fighting a losing battle with the hot sweats and can feel myself becoming dehydrated which I know will add to the probs I'm having.
Will keep on using the non-hormonal approach for now I think but will talk to the medics at my next review - and just keep on swigging the water and sloshing around in the meantime!
Take care, ladies
Claire
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18-06-2011
03:06
Hi Maltomlin
I think we were dx about the same time. So glad you're doing OK with NED. I've just had the all clear from my third annual mammo.
Apart from a few niggly health probs, I'm enjoying life to the full with grandchildren!
I get tired easily, but if I'm sensible and go to bed early/rest/don't try to do everything, then I'm OK.
I'm 50 in Sept - I really didn't think I'd make it that far 3 years ago.
Onwards and upwards, ladies!
Claire
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18-06-2011
02:44
Hi ladies
Not been on here for a while but as life goes on after bc, other questions arise.
Following bc dx in 2008 (10mm, grade 2, no nodes, ER/PR+) with 2 years of Zolodex, I had hyster (unknowingly had endometrial hyperplasia), including removal of ovaries, last year. I've still got 2 years of Tam left.
I'd prepared myself for associated risks of no oestrogen for heart disease, osteoporosis, mood swings, vaginal dryness, flushes etc and thought I'd got all bases covered with medication, supplements and creams. What I hadn't anticipated or read about was the effect of no oestrogen on the uriniary tract.
I've had 5 UTI's in 7 months - each one leaving me low and needing antibiotics. I've had a renal scan (all clear) so now I'm on a prophylactic antibiotic.
My question is: As I'm taking Tam and my only source of oestrogen is that produced from body fat (of which there is quite a bit nowadays), how safe would a low dose topical vaginal oestrogen cream be?
The UTI prob is causing me untold anguish and is affecting my relationship with my husband; given this quality of life issue, should I pursue using the cream when balanced against a bc recurrence, particularly as my bc was small and caught early?
I've just had my third mammo since dx - all clear, so I'm now thinking the risks of recurrence are being outweighed by quality of life issues.
Does anyone have any experience or thoughts on this one? I'd appreciate any comments.
Best wishes
Claire
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22-12-2010
10:40
Hi Liz
Yes thanks, good news! Was Carol, BCN who told me about the link she'd seen between the two types of surgery and the type of lymphoedema which could follow.
Do you see anyone about coping with the arm lympho? Carol didn't think I needed any treatment except some massage. I've read about a sleeve for arm lympho but what is there for boob lympho???
Hope you're doing OK Liz and as ready as you can be for Xmas.
Love Claire xx
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22-12-2010
07:28
Hello again
Reporting back from seeing the Breast Care Nurse today. BCN and Dr both agree I have scar tissue from SNB (phew), being dragged down by breast lymphoedema. Must say I didn't expect that but is far, far better than what the alernative might've been.
Not really had any specific symptoms but have had a combination - sore tingly boob, sore shoulder, pain waking me at night when I lay on that side, when my arm resting at my side I get the feeling that something is holding it away (now I know it's fluid). I had noticed that my nipple on the bc side looks paler and fuller but had put that down to radio but it's the fluid under my skin. Not much I can do except some gentle massage.
BCN said that she's seeing a lot of breast lymphoedma from ladies with WLE/SNB whereas ladies with Mx/ANC are plagued with lymphodoema of the arm. Would be interesting perhaps to find out if this was the case.
Will be spending some time now on the lymphodoema thread now . . .
Take care all
Claire xx
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20-12-2010
01:15
So many missed, but never forgotten. Another year closer to a cure - hopefully x
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15-12-2010
10:58
Hi again
Called into the BSU today - got my appt brought forward to next Wed 22nd to see Specialist Nurse so glad I can get the lump checked (Cons on site so if need be can get him to have a look).
Got another prob now to add to it all. Since hysterectomy and removal of ovaries in March (see profile), having recurrent UTI's - had 3 in last 3 months.
Went to see GP this morning - got antibiotics and being referred to either Gynae or Urology. Seems without the protective benefits of oestrogen I'm now at high rist of infection. I asked GP if I could have a low dose antibiotic to take every day but she was against that. Astonishingly she said I might be prescribed an oestrogen cream to apply, even though I am ER+ !! Said they might weigh up the benefits of it over the risks of bc.
Mentioned it today in BSU and was told under no circumstances must I use the cream and to tell GP not to prescribe. Talk about conflicting information!
Seems you have to be well informed and be prepared to challenge the medics. Must admit this isn't the first time I've questioned their opinion since being diagnosed with bc - being balshy must be a side effect!
And so the waiting begins again. Roll on Wednesday.
Claire
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