Breast Cancer Now Forum

Hi Siany66, Also so very sorry to hear that your sister's markers have gone up. There's new drugs being trailed and since January 2020, I've been on one of them, it's Ribociclib, (Kisqali) I'm taking it along with Letrozole and zometa bone infusions. But I have mets in my spine, ribs, and pelvis, not the organs, so possibly a different drug would be used for bone and organs. I've been hearing about Capesitabine too, this seems to have positive feedback, so there must be oral chemo out there that your sister would be happier with. Wishing you all the best and hope all gets sorted out for your sister, sending you both virtual hugs 🤗 xxxx ... View more

Hi been on gem carbo for mets in nodes triple negative had scan in Jan no mets detected and April scan no change but saying stable in comparison with Jan ct scan does this mean no change ??? ... View more

Thanks for making me smile instead of worrying about having to do a lot of shopping! ... View more

I'm so sorry to read your bad news, you must be feeling dreadful at the moment. Other than Rhian's suggestion you would also find the Helpline really useful, so give them a ring in the morning, they're open from 9am. They will also be able to make some useful suggestions on where to go for info. ... View more

Just had to tell you that my Mums BCN has just phoned!!! (maybe she reads this forum!) - I still thought she sounded (in a ever so pleasant but insincere way) very, very patronising and I could hardly bare to listen to the conversation. Thank you Topsymo for the advice about complaining - believe me I would if I was the Patient but when I suggested this to my Mum last week the thought filled her with horror as she doesn't like to make a fuss - so unfortunately I do have to respect her wishes on this. Lulu it was interesting to read things from your prospective too my Mums BCN certainly doesn't listen either. Thank you for your support Esbee x ... View more

Hello Richard This is a great blog to take a look at written by an OH http://light.ofmylife.org/ rhian ... View more

Glad your results were good Anna. Got my 1st annual mammo on Tuesday ! ... View more