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stellam
Member
since
01-05-2012
149
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2
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20-05-2018
09:51
I wondered if anyone could help assure me please..I’ll try to keep this brief but the history is as follows... 2009 diagnosed with Breast Cancer, had surgery, chemo & radiotherapy and Tamifen for 6 years. I was forewarned at the time that they could cause cancer of the uterus. Fast forward to 18 months ago, I had a US scan as had an emergency appendectomy, they picked up that the lining of my uterus was thicker than it should be 8mm when it should be 4mm. I stopped the Tamoxifen immediately and I was assured by the hospital that there was nothing to worry about. I wanted to go back on the pills so have been checked out, had a intervaginal Ultrasound and was advised the lining had reduced to 6mm, so felt somewhat reassured that there was nothing untoward going on.five days later I started bleeding heavily with the most excruciating stomach cramps. I’ve had to go to my GP’s to get tablets to stop the excessive bleeding. Last bleed was 8 1/2 yrs ago! Obviously I’m worry myself silly, I called the consultants secretary to see if they had got the results but she said she was t allowed to tell me anything when I asked if if they could see anything. I was hoping to hear that there were fibroids or something relatively innocent rather than cancer. She tried to reassure me by saying if anything had been of concern they would have contacted me by now, but that they will be arranging a hysteroscopy as a matter of procedure to ensure everything is well and benign. I’m worried silly now, does anyone have any experience they could share to help reassure me in some way? Thank you
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19-05-2018
11:58
Hi, I’ve just read your thread and I’m in the same position as you and wondered if you could tell what happens? Thank you
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19-05-2018
11:53
I wondered if anyone could help reassure me please..I’ll try to keep this brief but the history is as follows... 2009 diagnosed with Breast Cancer, had surgery, chemo radiotherapy and Tamifen for 6 years. I was forewarned at the time that they could cause cancer of the uterus. Fast forward to 18 months ago, October 16. I had a US scan as had to have an emergency appendectomy, they picked up that the lining of my uterus was thicker than it should be 8mm, when it should be 4mm. I stopped the Tamoxifen immediately and I was assured by the hospital that there was nothing to worry about. I wanted to go back on the pills so requested that they check me again. had a intervaginal Ultrasound and was advised the lining had reduced to 6mm, so felt somewhat reassured that there was nothing untoward going on. Five days later I started bleeding heavily, with the most excruciating stomach cramps. I’ve had to go to my GP’s to get tablets to stop the excessive bleeding. My last menstrual cycle was 8 1/2 yrs ago after my second chemo session. I called the consultants secretary yesterday to see if they had got the results back, she told me she was not allowed to tell me anything when I asked if if they could see anything. I was hoping to hear that there were fibroids or something relatively innocent rather than cancer. She tried to reassure me saying if anything had been of concern they would have contacted you by now, but that they will be arranging a hysteroscopy as a matter of procedure to ensure everything is well and benign. I then got a phone call within the hour by someone booking me in for a hysteroscopy, I’m really scared and wondered if anyone could tell me their thoughts. I’m obviously concerned does anyone have any experience they could share to help reassure me in some way? Thank you
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11-03-2018
12:16
1 Hug
Thank you so much for your reply Optimissy64, I won’t crunble as in crying and getting emotional but in the sense of not being able to support her as much as I want to, all I want is to be her rock and support, comfort and reassure her to the enth degree. She’s such an amazing lady and has had an awful lot on her plate over the years, she’s just about recovered from a previous cancer diagnosis 3 years ago and I. Not sure how she’ll deal with another one should it be forth coming. Thanks again 😘
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10-03-2018
11:34
Hi, I wonder if you ladies can advise me please, my dearest friend found a lump in her breast just over a week ago, I insisted that she went to the Drs (last Monday) and went along with her to hold her hand and to make sure she went. She initially asked me to check that it was definitely there and not a figment of her imagination as she didn’t want to waste the Drs time, there wasn’t a lump as such but a a thickening within the Breast tissue which was rather large, approximately the size of a cocktail sausage. During the examination with the Dr she was told that they would refer her to the Breast clinic just to be sure and she was told it could be a cyst, I thought this was rather strange as a cyst is generally round or slightly oval in shape. I also had breast cancer 9 years ago and again mine wasn’t a lump but a thickening of the tissue, my friends is definitely bigger than mine was and I’m so worried, her appointment came through and it’s next Friday, I’m going along with her as she hasn’t mentioned any of this to her husband as he has his own very serious health issues and is a worrier so she doesn’t want him to fret and possibly become ill and end up in hospital or even worse. Now from my own experience I know they will tell her if they think it is breast cancer, I should know what to say and be able to support her but I’m really concerned that I may crumble as she means so much to me. Please can any of you give me any words of wisdom on how best to support her and what I should or shouldn’t say... part of me wants to prepare her for the worst but the last thing I want to do is to increase her concerns so think it best not say anything. Thanking you all in advance.
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30-04-2016
07:49
Hi Charys If nothing else, having a PMA will make your BC journey a lot easier for you... 😊 X
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30-04-2016
06:47
Hi Bonbai, i just wanted to try and reassure you, I was diagnosed at the age of 42, nearly 7 years ago, I had the whole works thrown at me due to my age and the fact that I had 3/11 lymph node affected, a quadrantdectomy, chemo and rads and have been on tamoxifen for the past 6 years and will continue to do so for the full 10 years. If you're going to have a cancer diagnosis BC is by far the best one to have... Hold your head up ladies, you will be able to deal with the diagnosis and any treatment if necessary. Please try to remain positive ladies my oncologist told me the mind was a very powerful tool and I could increase my chances of survival by nearly 10%. I'm still here just about to celebrate my 50th birthday... Something I never thought I would reach. Big hugs and positive thoughts X
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22-10-2015
11:47
Hi, all of your aches and pains sound normal to me, I had exactly the same 6 years ago and once I was diagnosed I developed the feeling of having a lump in my throat, once again this was due to the stress, worry and being absolutely terrified. Most of it will be down to you being tense, please try not to worry and just focus on getting through this one day at a time. Big hugs xxxxx
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28-09-2015
08:15
Hi, I haven't read the whole thread yet, but I had a quadrantdectomy and you're the first person that I've come across who has had one. If you have any questions please don't hesitate to ask. Stella
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02-06-2015
10:44
Hi everyone, I'm nearly 6 years post diagnosis and still taking Tamoxifen... I was diagnosed with BC at the age of 42 and had the works, quadrantdectomy, chemo, rads. I've suffered with the most horrendous hot flashes and I can honestly say without doubt the worst part of my BC journey! I definately found a huge difference with the different brands Teva beung the best and Wickhardt the worst. Over the past 6 months or so they have dwindled to the point where I may have a few mild flashes but nothing more. Apparently a medically induced menapause is more severe but shorter lived, bearing in mind they can last up to 17yrs but in general last for approx 10 years, mine has been just over 5 years now. I also remember my oncologist telling me that the more severe your side affects are from taking Tamoxifen, the more effective the pills are. So in a strange way I was always relieved that I did suffer so badly. I hope this makes sense and just wanted to wish all of you ladies the very best with your BC journeys. Big hugs x
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08-04-2014
08:57
Hi ladies, I'm a bit of an old timer now... I will be 5 years post diagnosis on the 30 June, how time flys when your having fun! I just wanted to reassure you ladies that everything you're feeling is normal but what you need to remember is that you have to write of a year of your life to go through all of the treatment and come out the other side. Life has never been better for me.. You can look upon this as a journey, a wake up call to really enjoy life, for me if BC doesn't come back and bite me on the bottom, I can honestly say my life has never been so good.. I've lost friends on my BC journey but then again I've gained a quality of life that I've never known before. I have total peace of mind because I refuse to stress over the small things anymore. My oncologist once said, enjoy life to the full, look upon this as a kick up the butt to wake up and savour everything that we have in life and do you know what, it works! As for tamoxifen, this tiny pill has been the worst part of my BC journey. The hot flashes have taken over my life, but as someone has already said.. different brands can have totally different side effects. The Wockhart brand causes no end of side effects and I feel like an 89 year old in a 47 yr olds body, but on the other hand the Teva brand is a breeze, no side effects whatsoever. If only I'd known this during the first 2 years of taking them. 🙂 This web site was a god send for me we all get through this and before you know it you do come out the other side. Wishing you all the very best, big hugs to you all. Stella xxxx
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11-02-2014
09:29
Hi Julie I was nearly 42 when diagnosed, I never saw another period after my first chemo and I am fast approaching my 5 anniversary (from diagnosis) my periods have never returned. It is said that a medically induced menopause is more intense but shorter lived... I can definitely vouch for the intense part.... Big hugs Stella
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14-08-2013
06:57
Hi ThinLizzie
I'm from Hove and had my treatment at the Parkview in Brighton. When i went for my initial tests 4 years ago I went alone, whilst doing the US they told me I had BC. I was alone and totally unprepared for the news and struggled to drive home because I was in shock.
I would definately advise you to take someone along with you, if they know anything they will tell you and won't necessarily wait until they have all the results.
I do hope everything goes well & will keep my fingers crossed for you tomorrow.
big hugs
Stella
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12-08-2013
09:51
hi again Roisdara, I've just read the fact sheet and if you do have it, given a choice it would probably be one of the best ones to have.
Hope this reassures you x
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12-08-2013
09:38
Hi Roisdara
i don't know anything really but for some reason I think it's fairly rare, this may be why you haven't had much response.
if you type this in the search bar you will find that there is a fact sheet that may answer some of your questions.
Big hugs
Stella x
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26-03-2013
07:35
Hi ladies
i have been on Tamoxifen for 3 1/2 years now and have often said that the side effects from it was by far; the worst part of my BC journey.
However the past 6 months have been fantastic, I no longer stagger out of bed in the morning until my joints start working again, or drip with perspiration up to 20 times a day, wake up constantly throughout the nights, The night cramps, numb fingers, weight gain. The list is is never ending.
I just wanted to try and reassure you all by letting you know that my side effects have more or less disappeared now and I can honestly say that Im being to feel the way I did before my diagnosis.
Big hugs
Stella x
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11-03-2013
08:11
Hi Lisa, we all have different ways of dealing with things. I was diagnosed nearly 4 yrs ago and the one thing I learnt was that this doesn't only affect you it also rocks the foundation of our loved ones. I can remember my BC nurse asking me how I was during my chemo and my reply to her was that me & my treatment was doing fine, but my family had totally fallen apart. At the time my son was 21 & my daughter 20, my husband was busy trying to juggle working full time, dealing with our children's concerns and worries and then playing nurse maid to me. your hubby's also got the added pressures of trying to impress at work, learn his new role and try to be there for you and your children.
Big hugs being sent your way Lisa
Stella xxxx
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13-01-2013
01:09
Hi BS19
I had the same problem after my op which was just over 3 years ago and had forgotten all about it until i read your post. I found the best way to ease the pressure of the bra against my scar was to use a 4 x 4 inch squares of velvet i would fold them once or twice and place it either side of the scar under my bra it will alleviate the pressure & discomfort of your bra against your skin/scar.
It certainly worked a treat for me! 🙂
Big hugs
Stella x
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13-01-2013
12:54
Hi Fixmeplz
You know your body better than anyone else so stamp your feet, scream just do whatever it takes to be heard.
my Dr dismissed me twice telling me to come back after my next monthly cycle. He said he was not concerned and only agreed to refer me when I said I couldn't sleep because I was so worried.
Even the Dr at the Breast Care Centre told me he was not clinically concerned and said it wouldn't be treated as urgent, between the 2 Drs lack of concern they cat me 14 weeks delay. It had spread to my lymph nodes and I am convinced that if I had been listened to on my first visit I may have been able to avoid this.
At the end of the day it's your body and your life, don't hold back and wait any longer go and get a second opinion from another Dr.
big hugs
Stella
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