Breast Cancer Care Forum

Hi ladies, Sorry I've got to leave you, On Tuesday evening I had a seize with no warning. I now have brain mets outlining the brain and lungs. Unfortunately they can't do anything to for me. I'm at the hospice and may have about 4 weeks. I'm really state but early days. Thank you for your advice and wish you all well. Sending you love and wish you well in this treatment. Chris xxx ... View more

Hi ladies, Hope you're all coping with the weekly tax. It's been a bit of a journey last week. The 3rd cycle I was violently sick and went to the hospital to get checked out. I made the decision to have the chemo but it was the second week I had chronic the big D. I took Imodium as it was so debilitating. I was absolutely exhausted from it all. Ids this a common side effect? Today I looked in my chemo book today and I'm not due until next week. No one said that I was 3 on and one off. I feel elated just to have a break. It's a shame no one told me though. I'm hoping that I pick up and get some energy back. Take care everyone Love Chris x ... View more

I had the most awful day yesterday. Pain and so bad that I couldn't get it under control until the evening. Very tearful and my mood was so low. I'm not usually a so depressed but the pain just took over I guess. I managed to get to sleep at 2.30am this morning and I actually slept. Although tired I feel a lot better than yesterday. I'm hoping that I get at least one good day before chemo restarts tomorrow. Is there a pattern to this chemo? I know it's early says and chemo nurse said at the assessment yesterday that it maybe a flare up and it affects the muscles. Just hoping it the first se and not every time? Hope you're all coping with the weekly tax. Love Chris xxx ... View more

Thank you Belinda,   My oncologist called me a chemo veteran last time I seen her.  I've been on 3 fec & 3 Tax, Capectibine and eribulin so this is the fourth one I've been on.   Most chemo's last about a year for me before they fail which isn't that long.  The worse for me by far has been the eribulin which was 2 on and one off.  I never seem to recover plus I had to take FSG injections because of the white blood count which is worrying me to say the least.  I know this is very early days and I'm hoping to pick up a bit but feeling very negative and I'm thinking its because I'm feeling so tired all the time.   I'm trying to pick myself up so one step at a time.  WIll have to think of the liver and bacon but I've not got much of an appetite because of the liver problems I've had.   Take care and I do hope you pick up soon,   Love Chris xxx  ... View more

Hi Ladies,   I started weekly taxol last Thursday and I'm feeling quite exhausted.  Having said that I was on Eribulin for nearly 8 months and that was pretty bad on the fatigue front so back to back chemo isn't good and hard to gauge with the side effects.   I don't know wheather anyone had suffered any pain around the ankle?  I've been told that it maybe neuropathy caused by the chemo.   It's gone off now but it was hard to weight bare.  I'm on morphine, pregamblin and paracetamol which I'm sure has helped just wondering if anyone else has had similar se's?   I've already had docetaxol first time round which knocked me out for 48 hours and took me a week to get over it.  I'm hoping this will be kinder and I suppose it gets accummulative.  I've just been told I'm on weekly as long as the bloods hold up. Did your oncologist decide which regrime you were on before hand?   Love Chris xxx ... View more

Thanks Smartie, I still had 1.5 more cycles. Wishing you the best of luck on this chemo x ... View more

Hi Smartie, Just returned from my 11th cycle if eribulin. I too was put on it because I had further spread to liver. I also had mets in pleura, lungs, various places on spine and pelvis. Lastest scan results where everything is stable apart from my liver unfortunately. It has another lesion and has grown again which is the second scan now. Oncologist isn't overly concerned as it's 8mm but don't know about the new lesion. She wants me try weekly pacitaxol if the next scan shows more progression in liver. It is a shame as everything else remains stable😩 Unfortunately this chemo is really hard for fatigue mines is awful and I spent too much time asleep. It's bad on your white blood count too. I have to take 3 Filigrastin injections to keep my neutrophils up otherwise I could cope with this chemo. I felt great the first cycle but my white count when down to 1 which was too low then I got a uti. Oncologist said it was a common se and put me on the injections. They are really high and then the plummet like a stone but at least it's kept me stable for the past 7 months. I hope once you start it gives you a long period if stability and it's kinder on the se than me. Take care Love Chris x x x x It's such a shame they've taken this off the drug fund from this March 😞 ... View more

Hi ladies, Well I'm still on Eribulin although I think it will be coming to an end soon. It's kept everything stable apart from my liver which is I have a new lesion and the other one is growing very slowly. My main problems have been low white blood count, I had a slight reduction in the chemo and have three Filigrastin injections after every cycle. The fatigue has been awful, I don't mind the odd duvet day but the last cycle has been far too many. The nausea has been up and down; I wear the travel sickness bands which have really helped me and better than extra anti sickness tablets. My hair has thinned but seems to get getting thicker recently and I haven't had to wear a wig/scarves. I use Boots own thickening shampoo and leave on conditioner. Don't know if it's help but it's clung on. I'm waiting for a scan in mid Feb and see oncologist on the 5th March. I hope you ladies are having minimal se and it's works wonders. I think it's a good chemo but has been hard going. I feel really sad that it's been taken off the drug fund and it's one less chemo for other ladies to try. Love n hugs Chris x x x ... View more

Hi Dani, I've beem on eribulin since June and have found it pretty tough on the fatigue side and also it has depleted ,y white blood count. The oncologist has prescribed FSG injection to boost my white blood count. This has so far been effective as before I was on the way to having neutropenia which is the last thing I wanted. It seems to be keeping everything stable at present and the fluid was starting to re accumulate. I due to have a scan on the 27th September so fingers crossed it still keeping the uggers at bay. Have you decided which treatment you are going to have? If I can be of an help just let me know. Hope everyone is doing as well as possible. Love Chris xx ... View more

Hi,   I'm so sorry to heat your news its rubbish.  I haven't had brain mets so cant't help you there. Though this thread may be helpful for you.   https://forum.breastcancercare.org.uk/t5/Living-with-secondary-breast/Brain-METS-and-scared/m-p/850773/highlight/true#M52541   Hope they can get a treatment in place very soon.   take care Love Chris xxx       ... View more

Yes it isn't as easy as you think on the kindle, I'm using mine at the moment. I do hope that I don't have any problems from the port. Thanks for thinking of me.   I'm having my second dose today and being scanned on rtf he 29th to see how I'm getting on. I always feel.Very nervous as the worse part is the dreaded wait, a place no one wants to be in.   My hair is still falling out and eye lashes thinning.  I'm feeling tired and sleep pattern is erratic to say the least. I cut down on the steroids last time which was better for me. Just hoping this is working and zapping the huggers into oblivion.  Oh well I can hope.   Good . Luck everyone who waiti ng for result and I hope no matter what treatment you're on it working.   Love n hugs Chris xxx ... View more

Hi thanks for your replies. Portacath went fine I had it under sedation and no ill effects. Feel like I have a third nipple and it's felt strange feeling it but I'm getting use to it now. Restarted Eribulin last Monday as neutrophils low. So fingers crossed that everything's ok for the next dose on Monday. Hope you ladies are.keeping well. Love Chris xxx ... View more

Thanks Tracey things are improving and pain levels have decreased thank good do something is definitely happening. Having a scan on the 29th July after two cycles thought that was a bit soon but I'm on the observational study so they're keep a eye on me. Hope everyone is doing well on treatments and good luck anyone waiting for scan results. Much love Chris x x x x ... View more

Thanks Shelia & Helen, because of so much progression and further spread its very scary stuff. I tried and thinking it's still the same cells and hope that eribulin will know uggers on the head. I imagine the space invader machine and that they're getting zapped. Hope everyone's coping with all your treatments. Lulu, you are in my thoughts and you are one amazing lady. Much love n hugs all round Chris xxx ... View more

Thanks Helen & Sue, yes I definitely think its the steroids and I'll ask at my next assessment if I can reduce the dose. I know there's a eribulin thread on here but can anyone tell me if they've lost their hair due to eribulin? Thanks in advance ladues, I now feel.a little nervous about having the portacath fitted tomorrow. Love n hugs, Chris xxx ... View more

Hi ladies, Sorry I haven't been on for a while. I've read your posts and I'm so sorry to hear that you've been struggling. I think after initially shock and with treatment plans in place you star t to feel a little better. I'd like to wish you all excellent results with those. I've had secondaries for 5 years sometimes it feels like forever with the treatments. I've been on. My scan results were very good unfortunately. I h.ad lots of progression and thickening in the pleural which has caused me a lot of pain. I had to have radiotherapy for my spine Mets L2 and new pelvic region S1 which knocked me for six. The other results were I now have liver met to join the party. My oncologist was concerned about a large lymph node on my neck which I couldn't feel but I have lots around my lung area too. Tumours. In my lung have also increased so theyve been having one hell of a party and without my knowledge how rude! I've started eribulin chemo on the 16th to start and halt the progression so fingers crossed it zaps the little huggers in their tracks. I'm feeling fatigued and not really sleeping but the good news is that the pain has decreased which is a huge bonus and great start. Hope you lovely ladies are having a good day and you've enjoying your holiday chocolate you so deserve it. Love Chris xxx ... View more