Hi Rose your dx is similar to mine, except that I was told I had spread to bones(ribs,spine,pelvis,femur) at the same time.This was in May 2009. I only went to gp with back pain! I also had a large lump in axilla where lymph nodes had matted together. I first was put onto hormone therapy and bone juice which did not reduce the lump. I then had 3 fec/6 docetaxol which had limited success followed by 30 lots of rads to breast and axilla. This still did not reduce the lump and I had to fight to get it surgically removed 17/19 lymph nodes had cancer. My problem was they could not find the primary, hence the radiotherapy treatment in the hope that they killed off the original tumour.I was on letrozole for 2 years before it stopped working and I am now on capecitabine. There is evidence that removing the primary can stop further progression. I also have my treatment at the RM, originally went there for a second opinion and have had mny treatment there since as i cannot fault the treatment. Do have a chat with the SBC nurse, you will find her very helpful. I hope all your scans go well, you can get a treatment plan in place and then I am sure you will be less confused. Do ask for copies of your scan results as I find this helps to get everything straight in my mind,I never take in what they are telling me at the clinic appointment. I have my treatment at RM Sutton,which hospital are you at?
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