Breast Cancer Now Forum

Hi everyone, I'm Janine and am 37 and live in Nottingham. I'm hoping to arrange for those who are staying on the Thursday night to all meet up for 🍴 dinner...details to follow. I was diagnosed when I was 32 and secondaries in 2011 aged 34. I have two girl aged 5 and 8 and am a part time college lecturer. I'm looking forward to meeting you all and if you are interested in meeting on the Thursday evening please message me. X Janine ... View more

hi ladies, I'm on the Marianne trial phase 3 which is TDM1 and been on it since dec 2011. Feel free to message me if I can be of any help. XJanine ... View more

Hi,   I can do the 12th February- any good?  Any one who would like to meet up please PM me with your mobile number or e-mail address and I can respond with a location and time.  Did you want to meet up for food or just drinks.  I'm happy to do either and I'm thinking either the Ikea retail park or pride park as both have ok restaurants or places to just have a drink.  Look forward to meeting up soon. xxx ... View more

Hi ladies 😊 sorry not been on for a while but thought id get email alerts when people add to the thread....but haven't. From next week things a bit calmer for me work wise so yes lets arrange a meet up 😊 email me which evenings are best and we can take it from there. I live near Bilborough College so not far from Eastwood or Derby. Happy to meet at Ikea retail park or Pride Park. I will check back on here in the week. See you soon x Janine ... View more

Hi Emma251, is Derby any good for you with living in Litchfield? X ... View more

  Hello all,   Sounds like we all need each others support 🙂 I live near Wollaton in Nottingham but I think most of you live nearer Derby?  I am happy to drive to say Pride Park Derby where there is the Harvester for a drink/meet up or if anyone has any other suggestions let me know.  If you inform me where in Derby/Nottingham you live I can think of somewhere which is central to us all if Pride Park isn't suitable.    If we perhaps keep it to a week night for our first meet up when pubs etc are quieter then it might work better.  I am free most evenings but here are some suggestions:   Wed 20th November Mon 25th, Tues 26th or wed 27th Nov   Quick intro to me: I'm Janine aged 36, am married with 2 girls aged 4 years and 7 years.  I work part time as a college lecturer but may have to give it up soon as I'm struggling with tiredness.  I was diagnosed in Feb 2010 with primary BC and then went on to have advanced BC diagnosed in Oct 2011.  I am on a drugs trial (Marianne TDM1 as my cancer is Her2 +) which I started Dec 2011 which is keeping everything under control.  My cancer spread to the other breast and skin.    Look forward to hearing from you and meeting up soon.   x Janine ... View more

Hi, Great lets get something sorted 🙂 If everyone who wants to meet up lets me know what day of the week (day time or evening) works best then I can sort a location out. If we try and sort before Christmas but I know everyone tends to get busy. look forward to meeting soon. Xx ... View more

Hi, sorry for the long delay...not been on here for a while. Would love to meet up with anyone local or meet half way. Just let me know which days of the week suit and we can get something arranged, i was thinking of going to the Sheffield meet up but where does everyone meet? Meadowhall takes me. 40 mins so im guessing it wouldnt be much further. I'm not great at driving very far but would give it a go if my treatment doesnt fall on the first Thurs of that month as I have it every 3 weeks 😞 anyway let me know and i will check back on here. X ... View more

Hi everyone, not sure how many of you still use this site as I know some of the posts are old. i'm Janine aged 36, have two small children aged 3 and 7 and live in Nottingham. Ive been on the marianne trial (TDM1) since Dec 2011 at Notts city hospital and so far its working really well. Would love to meet up with local women who understand what I face with the whole advanced cancer thing. Please get in touch if you are interested in meeting. X ... View more

Well im one week in after joining the gym 🙂 its only taken me 3 years to get this far as with having a baby and 2 bc diagnosis but hey ive joined and theres no going back. Enough is enough now i must do this to lose the tummy, help my mood and i have to say im sleeping better and feel great just after 2 sessions. Its fantasic to get out the house so for me physically and mentally its just the thing. My gym isnt full of beautiful or skinny people soi i fit right in 🙂 If you can afford to id highly recommend joining or exercising even if its just walking in the park or swimming at the council pool. I cant really afford the gym but dont think you can put a price on sleeping better and feeling better and the change of scenery is just what i needed after 2.5 years of treatment , staring at my 4 walls, surrounded by housework. Im now on ongoing treatment for life so the gym and swimming is something to look forward to as i enjoy it. Even has zumba classes so you dont just have to go in the gym if thats not for you. Start with small achievable activities and build it up...suprising how you will do more and more as the weeks go by. Even if you dont lose weight the other benefits are fantastic. Good luck :-). Xxxx janine ... View more

Me too 😞 i think tamoxifen makes you put on weight, i came off it as had recurrence and new bc end of last year and have lost weight slightly. I think its because if like me i was a bit less active during treatment fec and herceptin as felt so rubbish. Im having a new drug now called tdm1 and am tired but have just joined a gym in the hope ill get fitter and loose a bt more. I was diagnosed just after having a baby and have never felt like my pre pregnancy self. Good luck 🙂 ... View more

Hi ladies, Just wanted to add to this as I have been where you are and had herceptin for a year which ended last june. My nails were a total mess with bumps and ridges, tiredness was awful which I didnt expect on herceptin, bone ache, funny tingling feet when i went to bed, runny nose and flu like symptoms. What kept me going was that there is an end point to the treatment and you must focus on this end point even though its very hard when you have to go through it every 3 weeks and feel so rubbish. I too had mine at home and over I think 1.5 hours which made such a difference. For me herceptin must have helped my cancer stay away as sadly within months of finishing treatment I had a new huge lump in my other breast pop up (docs unsure if new primary or a secondary spread) and a recurrence rash on my mastectomy scar. Im on a treatment now called TDM1 which has herceptin in it. unfortunately i get lots of the same side effects if not worse that just straight herceptin 😞 Im on this for as long as my cancer is controlled. I guess what im saying is that all cancer treatment has nasty side effects and when its taking over your life it does makes things miserable. I try and do things when im having good days and dont punnish myself on the days im unable, You must all focus on the end point to treatment if there is one and on a positive once I finished treatment I almost felt normal again, less tired, better nails etc just a huge shame it sadly didnt last for long. I hope this herceptin treatment is the last of the treatment for you and your cancer stays away and for those on it for life lets carry on supporting each other through what is a horrible time at times and focus on the nice things in life.... X Janine ... View more

I will miss tina so much as she was there for me since we were both first diagnosed back in 2010. We emailed each other frequently (she was very knowledgeable) and im so very sad to hear of her passing. I know she had many happy times with her family and made lots of memories for her gorgeous son Dan. Her family will be in my thoughts and I will remember tinas strength, determination and caring nature. RIP Tina xxxxx ... View more

Hi all, just a quick one but i wanted to share my Her2 news with you.... I had first diagnosis feb 10, had op, fec chemo, radio and a year herceptin which ended june 11. I felt a new lump june 11 which wasnt diagnised until nov 11. I was booked in for mastectomy but had a recurrence on scar line from my 2010 mastectomy whist wating. Op cancelled and i was told i either had a new primary and recurrence or secondary spread to the other breast and skin mets!! Still dont know which one now. Wouldnt operate and hadvto start treatment straight away. But got on a drugs trial marianne TDM1 which i believe is still recruiting. Just after 3 cycles my recurrence rash and 10 cm lump area have gone and cant be seen on ct scan. I obviously didnt respond to just herceptin but TDN1 is a wonder drug....amazing.. Heres to this drug being licenced and working for many more her2 positive ladies. X ... View more

I had a recurrence 5 months after finishing herceptin and a new BC diagnosed in the ither breast a few months after finishing 😞 ... View more

Is this the TDM1 Marianne drugs trial? If so im on this 🙂 ... View more