Breast Cancer Now Forum

Hope you all get a good 'hand' in your card game, using your cancer as a good excuse to 'get your own way', yes, I have reported this thread title as 'inappropriate' as I REALLY am offended, I only have posted today to let you all know how upsetting this thread title has made me feel since it started; keep on playing your game of life, I'll be sure to let my kids know if they need any perks in life, to just tell whoever needs to know that their mum had CANCER, so I'll have that job, free table, a*gcse thanks x ... View more

Yeah! Just could've used a different TITLE, one that wouldn't have offended! What'll you all be using next???? I'm REALLY SORRY. But there is absolutely nothing amusing or funny about cancer, still think the moderators should've made you change the title to a different one, using the CANCER card bloody awful, or should I get my kids to use it??? As a 'laugh' ... View more

Good post Shelley, exactly how I feel x ... View more

It's the TITLE that offends, I DON'T read the thread, but can't help read the TITLE when it pops up. I'm not the only one, just wanted to raise the fact that some titles really are offensive. good luck playing cards ... View more

Thanks Shelley, not just me then. I'm sure you haven't offended anyone, I probably have, but I'm past caring. X ... View more

Hmmm, maybe the POSTS make ppl laugh??????? But every time I see the TITLE it really makes me shudder - would've never used my dx or treatment to get freebies!!!!!!????? Each to their own. Happy new yr! ... View more

Is it JUST me???? Or does anyone else find the title of this thread VERY distasteful?????? Wondering why the moderators haven't advised the initial poster to change it!! ... View more

Hiya luvlygal, Just wanted to respond your post, though I'm an oldie compared to you at 37, I was dx Oct 2010 and my treatment finished Xmas eve that yr, yes I too ONLY had WLE, SNB and RADS, and told my prognosis is very good, I've just had my first mammo since, which was clear. The thing with these forums, is you'll read about lots of ladies having chemo because they say - 'of their age' but usually they have grade 3 or lymph involvement, but it makes us younger ladies not having chemo think we're not throwing enough at 'it'. The fact is your bc is slow growing that's good, as you'll get lots of follow up appts over the coming years, so ANYTHING suspicious will be picked up quickly. Yes it is ok to feel terrified, it won't stop your recovery - no matter what people say! It does get easier, though a year on, yes I worry about lots of niggling pain, and it coming back, but a clear mammo does help a little. Good luck luvvie with the rest of your treatment, keep posting, as I'm sure someone at the same stage as yourself will be along soon. Take care, and do try to enjoy Christmas xxxx ... View more

Hey sunflower, Of course you should take it, I read all the SE's and like you had a mahoosive panic, especially the thinning hair, as my hair is already really fine, I have been taking the dreaded tamoxifen for just over a year, and the SE's I've had are - a raging thirst (this has eased a little) but I just carry a drink with me wherever I go, occasional and I mean maybe once a week maximum night sweats, a few bouts of thrush, and *touch wood, that's it, my mum says you shouldn't read the meds leaflets unless strange things start happening. I know there are some ladies that are having a terrible time on tamoxifen, but that is why they are still regularly posting, (I only v.occasionally post these days) also, those that have had chemo, are probably still experiencing the after effects of that. There are probably twice as many ladies having no or very few SE's that don't post because they are trying to get back to 'normal', whatever that is. I hope this helps, and remember, they have to tell you about ALL SE's same as they tell you, what COULD happen before your op/rads/chemo, it doesn't mean it WILL happen. I don't like taking it, but I see it as protection for the next 5yrs. If you still feel you absolutely cannot take it, then you really need to discuss this with your bc team. Good luck luvvie, get that prescription collected. Take care x ... View more

Hey all, I have lymphoedema in my bc boob, and I was told the fibrosis is down to the lymph fluid basically just sitting in the breast and going stagnant - lovely! all down to the rads, fan-bloidy-tastic, and like you doz folk think I got the *easy* treatment. I had my first yr mammo last week, not good on a lympho boob 😞 and I tell you what, the waiting for results is horrendous, much worse than waiting for original dx! And have been told it could take up to 6 yes 6 weeks! Not sure I can cope much longer with broken sleep. Wishing clear test results to all x ... View more

Hi there TeeCass! Thought I would 'bump' this up for you. I'm 37 and near blackburn, and all my treatment is finished (except for tamox), after my dx last Oct, I didn't have chemo either. I think there are a few ladies that meet over Preston way, also a Manchester group that meet, I'm back at work so not able to meet up (unless its school hols), there doesn't seem to be many of us northerners on this forum. I don't come on here much these days, but felt I had to reply to someone so local, I really hope you find more ladies that are at a similar stage to you and local - I know there's a support group at beardwood, I haven't been myself, its a personal choice really. Wishing you all the best for the rest of your treatment , do feel free to pm me if you want a 'chat'. X ... View more

Hi Katy, Ring your BCN first thing tomoz, as you'll get seen far sooner than through your gp, your BCN and surgeon know your history so will squeeze you in probably within the next week, whereas your gp has to go through the urgent referal, which can take up to 2 weeks. Fingers crossed its absolutely nothing, take care X ... View more

Thanks folks! I'm going to try and find more about it, possibly speak to my bcn (though haven't spoken to her for a while!) I'm really unsure, so maybe that means I'm not ready yet, elinda thanks for taking the time to find that info out, thanks for bumping it up norberte, andie maybe your having a similar procedure, although looking at the bumf I've been given its called riancorp ltu-904 laser . I will let you know if I decide for or against! take care all, crazy cat x ... View more

Me too! I'm nearly one yr on from dx, I didn't have chemo, but as soon as I heard the words 'i'm sorry, its bc' at 37 I felt like a statistic, as someone else has said, time does make it a little easier, but there are times when I wish I could just go back to how I was 😞 Take care x ... View more

As a younger woman myself (although 37), I was totally astounded at how many 'young uns' get a bc dx, I would like there to be more info given out in schools etc... as I believed as I'm sure many do that bc is either heredity or in older women. They say the reason they dont screen younger women is because the breast tissue is much denser, therefore its not easy to detect changes. But I certainly think making young girls more aware about their bodies, and the signs to look out for, without scaring them , would be a big step forward, I work in a school and the boys are shown how to check their testicles what signs to look out for, what do the girls get? Advice on how not to get preggers! X ... View more

Hi all, I've not had chemo, but am on tamoxifen (since nov 2010) and I have a constant thirst and dry mouth, am worried sick about next visit to the dentist as it must be affecting my teeth :( when I mentioned this SE to onc (well, registrar) she said she'd never heard of anyone with a thirst, felt like I was making it up! Take care all x ... View more

Hi all, think there was a thread about this not too long ago. I was dx Sept grade 2 clear nodes, er+ her-, 15 rads 5 boosters, tamoxifen for 5yrs, oh and hope no one says, it goes off your age what treatment you get, as I was 36 at dx, bc was 12mm. Think its just how different oncs treat bc. ... View more

I think there are 3 brands - generics, wockhardt, and APS, also someone a while back stated you can request it in liquid form, I have sampled all 3 brands since starting tamoxifen way back in Nov, same side effects with them all .... nothing, but an extreme thirst! - very strange, but there a few ladies that have this SE. Good luck to all starting tamoxifen, its a scary prospect but some of us seem to have minimal SE. X ... View more

Smashing, that you got seen quickly, I too thought lymphoedema WAS fluid build up, there doesn't seem to be much consistency around the country where lymphoedema is concerned, postcode lottery again I guess! Glad your massaging has made a difference to yours Sandra - wish mine would at least look like its working! I'll look out for you Julie, ill be the one stuffing an oversized breast into a rather small bikini top! Oh yeah, with a lovely tanned square to boot! I'll be interested to know how the draining goes. Take care x ... View more