Breast Cancer Care Forum

Your right Zeppa ,it's been done as Latest Thread's ,and not as Latest Post's , The old system is what everyone liked and wanted back, am very disappointed too , especially after waiting so long for them to come back. ... View more

Have not been on the forums for quite a few weeks now, but just popped on today to see how everyone was doing and was so pleased to see the new latest post's section at the top of the coloured boxes ,Fab I thought, untill i clicked on the Latest Post's  and could see only 5 latest posts ?  Its great that they are back bcc and thank you for listening to everyone in bringing the Latest Posts back to the forums ,but only showing the 5 Latest Posts does seem a little pointless, can we not have them back the way they always were showing the full page of the Latest Posts? The way it is currently set out ,you would have to keep checking back everytime it udated and that unfortunately will be just as time consuming and annoying as checking through all of the boxes for each latest post. Im sure it must sound to bcc that we member's are always moaning  we really dont mean to be, Just please let us have them back as they were before on the old forum , in the new box , that is all we ever wanted BCC, then the forum will be great again!!   L  ... View more

Oh God lol , Some people never cease to amaze me, ummmmmm, id probably say something like " It must be a b***er being pregnant how blooming awfull for you , i realy cant imagine what your going through, and the thought of hrs and hrs of excruciating Labour pain .........     "   All i can say is ,thank goodness i only have cancer ,its so much easier to just get poisoned and burned , Phew , but you know i would swap with you in a minute if i could dont you? , you poor  thing !   Grrrrrr, some people realy need reality check !   L xx      ... View more

I am so very sorry to hear this terribly sad news, Val will be very sadly missed on these forums by so many of us , a very kind ,and a very lovely lady who always helped and supported everyone here , she was such a true inspiration to many , and i will miss her greatly, God Bless you Val ,     Please send my heartfelt   condolences  to Vals family and friends at this very sad time.   Linda xxx         ... View more

Hi Tink, Im afraid i lost all respect for Jenni Murry and her "opinions"  after her last outburst, i think she just enjoys being controversial , lets face it ,it gets more readership of her column!.   Certainly beggers belief though doesnt it, but then, as Jenni admits she "didnt" have an aggressive cancer , ( not that that makes her immune to mets) but at the moment, it is easy for her to be so flippant with her opinions, like you say, i wonder how she would feel if it was her daughter , i think we all know what the answer would be to that. she would be fighting for this drug like everyone else who needs it.   Have commented too, but as the Daily Wail moderates all comments, it probably wont show, ( Not that i wasnt polite )  I was , albeit through gritted teeth!!   Hope your doing ok Tink, L xx     ... View more

Oh dear , what a awfull and very insensitive comment to make, being a primary does not make her immune to having possible secondaries herself at some point in the future , and sadly if she is unfortunate enough to find herself in that position one day , she may very well be needing some of these treatments herself !!    I would expect to read some of those uncaring and uncompassionate comments from someone who has never expierenced cancer , (though im pretty sure the majority of even those people are not that heartless) but realy, from a fellow cancer patient? it certainly beggers belief.   Yes the Nhs isnt a bottomless pit, we all know that, however what is the point in people donating to cancer research for new treatments if people are not then allowed the funding to have access to them, its like dangleing a carrot then snatching it away, and its very cruel.   The UK is Far from a poor country, 55 million a day just in membership fees gos just to the EU , 22 million a day gos just in Foreign aid , the list gos on and on, imagine just what a difference that sort of money or even just some of it could do for the Nhs?, makes me so very angry that people are dying when there are treatments available out there for them but they are then denied the funding.     I suspect when politicians and those employed by NICE who make all thses decisions on funding for cancer treatments are affected by cancer themselves, and they are forced to look at death in the face, they would very soon change their minds. What price a Life? , better get off my soapbox now, grrrrr     Am currently a primary lady, and a herceptin lady too.   L x                        ... View more

Hi Catlady, I was listening to a phone in with Nick Clegg on LBC radio this mornng , where the rejection of this drug by NICE was being discussed with him and a caller , what came accross loud and clear to me dureing the conversation was the fact that spending £11.1billion a yr in the UK on foreign aid, the UK being the second highest contributer in the world , is much more important than saving peoples lives in the UK!.    Not against foreign aid at all, but do we really need to spend so much on aid in other countrys when people here need funding for drugs to try and help save their lives? I think it is disgracefull.   L  xx   http://cdn.lbc.audioagain.com/shared/audio/2014-04/24/b51a1419d232698b0443298af7054139.mp3                     ... View more

Oh Belinda, I am so very sorry to hear about your poorly heart , I pray that your treatments for both the cancer and your heart can be managed so that you can continue to be able to fight the b***er  for many yrs to come yet, you certainly are an  amazing lady, and have been an inspiration to so many of us on the forums , Your kindness and support to everyone here including myself over the yrs has been amazing even though you have been going through such tough times yourself , sending you lots of love and gentle hugs.   Take good care of you   , L  xxx  ... View more

Hi Valia,  apologies for any misunderstanding , Happy Easter to you too . L xx  ... View more

I can tottaly understand the need for the secondary ladies to have their own sub catagories ,because as rightly pointed out needs between primary and secondary patients are sometimes very different, I do however take offence at the comment "  We don't want to see primary over our groups" and hope it wasnt intended the way it came accross, I personaly although being a primary , have many friends on the BCC forums who are secondary ,and have never understood why there is a distincion on the bcc forums , many primary ladies, including myself have always championed the secondary ladies in their fight for better awearness and to be heard on the forums and not to feel hidden away as i know a lot of secondary ladies currently do. Segregation (if that is what is being suggested) will only add to that feeling of being ignored surely. I cannot imagine a primary suggesting that we dont want secondarys over our groups,  for the very same reason ,it would be wrong and equaly offensive, support is not ,and should not ,be restricted to those that fall into the same catagory as ourselves , otherwise everyone whether it be primary or secondary is continuing to impose a divide which shouldnt be there in the first place, Cancer is Cancer , people may be at different stages ,but that doesnt mean that their needs are any the less , over the yrs ive lost many friends on here, both primary with so called good prognosis and secondary with poor prognosis , i consider myself lucky to have known and been good friends with all of them. I agree with seperate sub catagories for secondarys , as i too can emphathise with some of the more  friviolus comments made on the forums ( even some of us primarys get frustrated sometimes too) but no one should feel not able to post on a thread ,whatever the dx ,if they feel they can support or help someone whatever the stage of disease. L  ... View more

LOL, That makes a change Jenifer , my spelling is normaly terrible, haha , lovely to see you on the forums again, hope your keeping well . x ... View more

Hi Penny47,   The point is to me you shouldnt have to bookmark Latest Posts , Latest Posts are different to  "Favorite Threads" and should be easily accessable for those that want them, like they have always been on the bcc forums over the yrs , The origional Latest posts didnt list every single recent comment on the page of every catagory ,only the latest comment in catagories, and its a tottal nightmare trying to access Latest posts on a Mobile as you have to open a min of 5 pages just to get to the link. Latest Posts were, and always have been the "Most" used of all other catagories on the forums and many many people do miss them and cannot understand why its been made so difficult to find them as they have now really been hidden away, many former members are not so active on the forums anymore and i suspect the loss of Latest Posts as they were is the reason, people cannot be bothered with scrolling through pages and pages of repeated thread posts. Thats my view anyway. L x     P.S is it just me or is anyone else having difficulties using spell check, ie not working?  ... View more

I agree Caroline, also was wondering why are the chit chat/games now featured on the Latest Posts section too when before they wasnt, showing all "latest replies" to threads in latest posts takes up a lot of space and is very time consuming scrolling through pages of comments from the same thread . Please bring back the Latest Posts origional format ,and please please BCC put a button for Latest Posts on the front page alongside all the other catagory buttons, I dont very often visit the forums anymore because its too jumbled up and time comsuming ,ive too noticed that the forums seem far less busy now.   L  ... View more

Hi Helen ,Thank you for coming back to us about Latest Posts, , I was never asked about my views on Latest Posts, and the question wasn't asked about Latest Posts at all on the 2 surveys I completed prior to the new forum launch,  I suspect the user research conducted would likely have been very small compared to the number of members who actually use the forums ,so would not really have been a fair representation of actual views of all the users.    It would be good if BCC would allow all members to have their say by doing a poll on the forums for all the members to be able to state their feelings on this. I realize that resources are tight, but Latest Posts are, and always were,a very popular feature of the BCC forums ,and something that many many users miss.    Including Latest posts in the Featured threads is fine as a work around ,but can be very easily missed by new members, and old members, who haven't been on the site for a while , the Latest Posts section is now quite hidden away and not very prominent at all, I take your point about  some members finding some of the posts on the forums distressing, and I do understand that, but unfortunately the nature of cancer forums makes it impossible to be able to avoid some of the more distressing issues wherever people are posting and whatever section they are posting in, I hope you will consider asking All members their views before making a final decision on this.   Thanks again , L    P.S.  Yes, Finding Latest Posts on the Mobile is extremely frustrating and Very Time Consuming !       ... View more

Yes It would be good to have an update on this  , Even with the new forum I still only ever use the Latest Posts , I don't use the other sections at all, and if I'm using my mobile, its a real pain getting to Latest Posts as I have to open 5 pages to get to them!!!  Can we please have them back on the front page? It would be a lot less faffing about...... Pleaseeeee.    L x  ... View more

Hi Poems, As far as I am aware there isn't any further checks after discharge at 5 yrs, though at my own hospital you still remain a patient for life, and will be fast tracked with any further problems without the need for a GP referral ,so I suspect after 5 yrs its just a case of staying vigilant and checking regularly for any changes, even with breast exams, changes can sometimes still be missed , as in my case with my 2nd DX, which only showed up on my discharge mammo, despite a breast exam previous to the mammo where nothing untoward was found.   Helenbythesea, Poems is right, breast tissue extends to the clavicle and auxiliary areas also which cannot be removed by surgery , so unfortuneatly there is always some breast tissue stil left behind (approx 5%) ,recurrence after a MX can be in the chest wall, auxiliary , or in scar tissue, even after a MX, we must always remain vigilant and still check for any changes.   L x ... View more

Hi Belinda, I would be very sad to see you go, you were one of the first ladies I met on here back in 2007, and throughout that time you have given so much support to many many people , Like you, I'm very sad that a lot of the ladies don't post on BCC anymore and now use FB instead, I feel much like you at times and feel like I should also flee the nest , I do sometimes, but then something happens, and I usually end up back here again, but like you I'm not always sure where I fit in anymore, maybe that's a sign to move on too , but I do hope you stay belinda, as the forums and especially the newly dx secondary ladies really need people like you.   Huge hugs to you xxx ... View more

I have been very shocked to be honest to see the number of complaints made on the BCC FB Page, I just cannot understand why people would object to reading about the facts of breast cancer, on a breast cancer site, I have been equally shocked and quite saddened with many of the comments, as a fellow primary patient I just cannot relate to any of those views expressed by others like myself , to be honest its been quite an eye opener for me, and I can fully understand why the secondary ladies feel the way they do , What I can't understand is that when posts like this one from BCC are put up on some of the other breast cancer Sites/FB pages they seem to have nowhere near the same amount of complaints that BCC do, They do have the odd complaint from one or two people, but the vast majority of the comments are usually very supportive, Anyway, I hope like everyone else here that BCC continue to raise awareness about all of the important issues that surround MBC , both here and also on their FB pages ,and don't feel pressured by the few to tiptoe around all these important issues just so as to not cause any upset . There really shouldn't be any upset, This is a Cancer Site , L x ... View more

I too was very sad to read that Kerry had died over the weekend, My heart go's out to Kerrys family and friends at this very sad and difficult time, Another young life lost to soon to this terrible disease . RIP Kerry, x   Also to say that a lot of the BCC ladies , including myself while not supporting the PCA Ad taglines, have signed the Government e-petition to provide more funding for Pancreatic cancer, I hope all BCC members will consider doing the same.      http://epetitions.direct.gov.uk/petitions/48389   L x ... View more

OMG, ive just been pretty much told off on BCCs FB post from a primary lady that tells me , " There is a clue in the title "Breast Cancer CARE" I see this as a support site  I do feel that on a support site that harsh comments like the one made by BCC should be so carefully controlled and public awareness should not be their first concern.    I may be wrong but I personally do not see it as primarily a public awareness sight, it's about care and support for each other. "   Am speechless ,  Doesnt the poster feel that the care and support include's Everyone whatever the stage of  disease?  L x      ... View more