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GIJaneH
Member
since
01-05-2012
2071
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2
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10-10-2019
09:08
Hi there. I'm an old hand, being 8 years "NoEvidenceofDisease" (NED)... and I have a bone density scan every other year. The drug I'm on, Letrazole, can cause thinning of the bone, so they keep an eye. I don't know about Tamoxifen, but it may be the same. They give me ADCAL to help compensate... A bone density scan is very noninvasive and easy. Just a sort of Xray really.... it's hard not to get stressed when you are dealing with so much and this is just "one more"... but in the scheme of things.... you are doing great!
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25-08-2018
10:46
Wooo... we have all flown off, but will still remember our flutterby days. 7 years free now and STILL on letrazole ☹️ But grateful to be here. I wish medics of any sort would think to ask "is there any lasting difference from before you had cancer " or words to that effect! Bless you all. I have retired now!
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24-07-2017
09:33
Hi All! Just popping into sit on a bench and see how many of you are still frequenting this little part of the ether... Reading bench! Yes please! I've never heard of firefighters (?) but I use Bookbub who send a daily email with free or cheap e-books, having told them what you like. If you like DCI Banks (I've downloaded but not read) you might like Estelle Ryan - her first is often free on Bookbub... brilliant mystery/detective - main subject a female with autism (well, Aspergers) Brilliant! Anyhoo ... how are you all a - doing? And the camel? I see you are meeting up again - have a great time, and raise a glass to others. My tiara still sits near my desk from MU1... lots of love Jane
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23-07-2017
10:25
Hi ladies! dont know if any of you still see these threads, but how are you all? I'm doing well. A granny now... down to four days a week and looking forward to retirement next year. Getting older, but otherwise healthy I think. Mamma next week... so, gentle but enthusiastic wave to everyone love jane
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25-05-2016
09:36
1 Hug
Hi Suzanne. I had the best part of a year off, and I'm not surprised you're anxious about going back. It's so easy to feel de-skilled after ANY time off - such a long break is going to feel harder. PLUS the fact that in those two years you have been through so much. Phased return vital. You may not know what you need exactly until you try it, so ask for flexibility. I used a whole load of annual leave to take an extra day off for several months after the phased return ended - and I needed to. Have you read "the spoon theory"? Google it.... it helps enormously. If you can, be honest about how you feel/what you need/how you want people to treat you/ what is OK and not OK. You're right, lots will have changed, but hopeflly there will be some friendly faces who are pleased to see you back.. Be gentle with yourself and your expectations of yourself is my top tip really... Hope it goes well Jane
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27-02-2016
02:04
Hey! Been thinking about you all. I've decided to celebrate five years NED, as it seems statistically significant. A nurse friend told me this week that in 'old money' they would say cured. I know that's not used now, but I found it encouraging. 5 yrs of Letrazole and Adcal is being extended to 7. The lack of oestrogen plays havoc and I will need a hysterectomy in e next 18 months apparently, but otherwise I'm doing really well (for my age, my daughter would say!). I don't seem to know how to slow down..... ,Mandy, that sounds hard, as does,your back Ninj. With you, I wonder how Cherry is..... sun is shining- garden calls.... Love jane
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25-11-2015
07:00
Great to hear from you Wandy! I thnk of you guys often, even if we're not in touch much. Cherry -how goes it? Like you Wandy, I'm well and very busy. Enjoying being busy too... Working Christmas morning, but after that I've actually got a few days off, which will be a first!! Anyoe else find that they're MORE paranoid about aches and pains thn immediately after treatment? could just be me...... love Jane
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07-10-2015
10:44
I tell patients about spoons regularly.. SUCH a helpful concept! Now, what on earth have Hump and Dink been up to? The mind boggles if they're loose in a school!? hope your sister is ok....and raise a glass for doctors who listen! we're on holiday, hence having time to drop in to see you all. I'm doing well, just really, really busy. Hair still 'different ', nose still runs, I don't run..... But I am well and healthy and grateful.. Nearly five years now..... right, which way to the bench with the view over the lake? Lost my bearings (amongst other things!)
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06-10-2015
08:16
Just popped back to see how you're all doing. VERY pleased to see Benchland still being used, and our original exploits still amusing.... what do you mean 'nutters'? Kept me SANE!! Big wave to all my friends 👋 Jane xxx
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04-05-2015
11:20
So pleased to find others visiting the woods. They kept me sane four years ago. Can't tell you how important the amazing humour was, even if it was sometimes dark, it gave me something else to focus on. I watched "the Big C" on the box today (shown yesterday). It was insightful and so painful. Made me think of Staycalmandcarryon and so many others, so I thought I'd revisit the woods with Buggerit and pay tribute.. I sincerely hope those currently going through the mill find the same support and encouragement and fun we did. Night all xx. Buggerit, stop barking at the hedgehog! You'll wake everyone up!
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03-04-2015
12:54
Hello friends So pleased your chemo is effective Cherry - hope the op goes well and eases the pain. You sound like you're enjoying life back in the UK Wandy - great stuff. Today is my day off. Otherwise I'm working Sat/Sun/Mon (and then Tues/Wed/Thur of course) Hopefully I won't be called out much, because the family are all home, which is a rare treat. In Feb I started to have break through bleeding, and whilst I know 90% of that is treatable/OK, having had cancer once messes your head up a bit, and even though I was choosing to be positive, I found myself writing letters in my head to the children! Oh dear - I'm more worried than I am acknowledging, and I'm acknowledging that I'm concerned! Fortunately all is well and I am in the 90%, but you can never take that for granted once you've been in the 10%... Phew! Hope everyone else is OK Blessings Jane
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30-01-2015
05:42
Good to hear from you Cherry, and I'm so pleased the treatment is beneficial.. long may it be so. I was just thinking about everyone this week, as it's four years since I was going through the process of being diagnosed. or we all were...... What a life-changing event... no-one can prepare you for that. It's somehow more than just the physical and the endurance of treatment.... Probably not making much sense, but you may well know what I'm trying to say. Hello everyone..... (big wave~~~~~) love Jane
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20-12-2014
11:56
Gosh Cherry - what a lot to cope with. It all sounds more than grim. I hope & pray that CHristimas is a real joy for you and the whole family, and that for moments, at least, you are able to forget how you feel. Like the others, I have no words, but am sending a virtual hug.... It's funny what brings it all back - I've just had a flu-type virus (despite the flu jab!) and (ignoring the cough) it just took me back to chemo days, cause that's how I felt. Heaven knows how you must have felt, if it was worse than the Tax, cause I remember that wasn't easy for you Cherry. Hang on in there, as you seem to remarkably do.... Festive salutations (or Christmas blessings) to everyone. I hope we all get a rest..... I'm (inevitably) working Christmas Eve, Christmas Day & on call Boxing Day, but then have the weekend off to rest.... Take care - we may not chat often these days, but we went through so much together..... Jane
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28-10-2014
09:10
Hello everyone! Cherry - so sorry the treatment didn't work - sounds like you are dealing amazingly well with a more than difficult time. Like the others, I hope the Xeloda is more effective. I can't comment on Manchester Christmas market - never been to Manchester! Sounds good though..... Mandy - good for you girl! What kind of ward? Hope you get shortlisted and are able to be yourself at the interview. As you say, a few years ago..... Wandy - what DID you eat? (oh yes, kebab!) Glad you enjoyed Turkey - we certainly did when we went. This year we had the trip of a lifetime (having spent years saving) and went to Sri Lanka. It was amazing... saving for the next time now! My arm coped with the long flight/heat/humidity better than I had dared hope. Having wondered if I would EVER get my mojo back, I discover that I now have more energy than my son and his wife (they seem to get tired SO quickly!) and more energy than my much younger colleague, so I'm extremely grateful! Hope everyone else is OK love Jane
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17-09-2014
09:46
Gosh, such activity! Well done gals. There was a parcel on my desk this week, from one of the catering staff.. I invited her to "tea" in my office last year to celebrate some birthday or other, and she produced a pair of hand knitted socks for me. Really kind, but I was I excited.. This year (she remembered from last year, which is impressive) this year, she has made me the most gorgeous scarf - bright fushia pink - the really deep colour - in fine, very fine mohair (or similar). I LOVE it... Her maj? What have I missed?!?
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30-08-2014
10:06
can;t find the not busy bench, or the cba bench or any bench to sit on... feel like i'm rushing round all the benches a bit like the white rabbit from Alice.... need to stop...... can't stop.... very tired.... not helped by daughter's dog barking from 5.45 this morning (our dog was staying over with people who are going to dogsit for him while we're on holiday). DD's dog (now known to me a DiddyDog) didn't like beign on his own, so he barked.... and barked... OH went out 6.45.... dog barked... and barked... I got up (without specs, so coudlnt' see a thing) let dog out incase he needed a wee..... stood waiting for him to come in... and he didn't. Got glasses (and dressing gown) and found othat OH had left the gate open. Dog not in garden. EEEK! had he gone right down to the road? Wide awake now! Calling dog, trying not to wake up neighbours.... He comes trotting back up the drive as if nothing's amiss. No point in going back to bed.... I was very grumpy. And more tired. then picked 5k victoria plums.. gave some away... prerpared 3 k for jam... then got called out..... you see why I'm rushing around the benches.....
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25-08-2014
10:37
just walked the dogs (mine and daughters) with said daughter in the pouring rain. Lovely to have her home for the weekend. Other than that, I'm on call and have a wedding sermon to prepare....
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23-08-2014
03:02
best picture we've had of them for ages! THey Do look as if they're looking for someone/something though.... you didn't leave them in Morecambe, did you?
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22-08-2014
09:01
do Hump & Dink ever come home Ali, or have they completely got the "wander lust"? They... were b-o-r-n under a w-a-n-dring star".... love J
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20-08-2014
08:59
Hope you're all enjoying yourselves - used my Champers glass last weekend and thought of you all... tiara still near my computer.... raise one for me... Got the all clear today, and relegated to annual check ups instead of 6 monthly, so that must be good 🙂 love Jane
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