Breast Cancer Now Forum

Hi Jan Great news about your scan, and good they told you straight away. The waiting for results is quite nerve racking. You'll really be able to enjoy your cruise now, and what a fab way to draw a line under last year. I'd like to book something, but am reluctant as will be going back for further surgery to match good side to recon, that could be approx 6 months after recon. I'll just see how things go. Did you ever go to any of the BCC events organised in the area? ... View more

Hi Rio hope your bone scan went ok today and you managed to find the dept ok, I had one after my mx, but had to go to Bangor, I just assumed that was where they did them, Llandudno would have been much easier. I seem to have been to all the local hospitals for various appointment. After my recon, I may be transferred to Landudno for a couple days before they let me go home, when I had my mx, there was only 2 of us there and we were really well looked after, so I wouldn't mind going there for a bit ... View more

Hi Rio it's good to get back to work and try and get a bit of normality back into your life, I've been back since just after Easter, starting off with phased return which I stayed on until September, I'm now back to working my full 4 days a week, I do find life tiring, as I work in Bangor so a bit of a trek each day, but my work is office based so not physically demanding, but after a day constantly on the phone it can be draining. My recon, will be done in Whiston, I had my pre op assessment on tuesday, but I rec'd a call today putting Op off for a week, so it will now be 30th Jan, I don't mind really, after my week in hospital, we'll only have a couple of days of school then it will be half term so we'll be able to chill out and not have to worry about school at all I had my mx in Llandudno, but thought the staff in Glan Clwyd were great. ... View more

Hi Rio and Lady in Red I'm in Conwy, there don't seem to be many from N Wales on here, I was dx Sept 2011, finished Chemo in Feb, Rads in March, and Herceptin in Oct. I'm on tamoxifen for the 5 years too, but stopped taking them on boxing day in readiness for reconstruction on Jan 23rd. The reconstruction date came through scarily quickly I wasn't expecting it until at least April or May, I'm nervous and excited I had my Chemo and rads in Glan Clwyd ... View more

Hi Ladies Like Cluck I've been away from the Forum pages for a while, but have come back looking for advice re DIEP recon, which I'm scheduled for Jan 23rd I'm concerned as I live alone with a 7 year old daughter, and I've been worrying about how I'll manage. I think its because I've got the time to worry about the details, unlike when I had my mx, it was all so quick. I think I need to accept that I will need all the help offered and I'll have to ask too. Thanks for the detailed info on your experiences, its been very useful Gill ... View more

Hello to any ladies still posting on here, was nice to read the catch up from L4W, Hi L4W 🙂 sorry to hear that you're not getting on with Herceptin, but like you say there are trials going on where they're only giving 6 months, And hello again to pleasant 1, it was beginning to look like Pleasant1 and Weme forum lol The facebook page is good, there are quite a few ladies from different stages and its not all about BC, I found myself too frustrated on here, trying to get on for starters then I lost a really long post, so went off in a strop! lol Pleasant I would try not to beat yourself up about your previous mammo, I can understand why you are but I know for a fact, if it had been me I would have been leaving there relieved that there was nothing wrong.. I often wonder how long my lump had been growing away, and I only found it by pure chance, I wasn't a regular checker. So long as this posts successfully, i'll pop back soon Gill x ... View more

Hi Trudi I must have posted as you were posting, good to hear from you, flushes are pants aren't they, i was taking evening primrose which seemed to help but they started gradually creeping back again, so i've stoppped the ev prim to see what effect that has. Well done on shifting your weight, i have lost a little, but thats only because of not eating so much junk, still got more to go, but i really need to try harder, and ditto to you about the FB group xx ... View more

hi ladies, i tried posting on herre the other night but because i didn't put anything in the subject box it cleared everything, boooo, so i gave up again. Liz, i have continued to dye my hair all the way chemo, just wash in wash out whilst on chemo and now i'm using semi permanent colours, so not sure what effect herceptin would have on my head!! Nice to hear from you Lizzy, and i feel like you that life is getting some normality back. Gail - hows things going with you? is it your b'day on friday too? Audrey, we've all struggled with the new site, and for any of you who aren't aware there a facebook group been set up, a mix of quite a few different starting months ladies, so a few of us Nov ladies have joined, how about you all, Liz, Gail, Audrey, Lizzy? Lulu is there, so is Lisa, Kym, teresa, weme, to name a few! Let any of us know and we can add you to the group Right i'm off back to FB now, speak soon xx ... View more

Hi Ladies, my 1st post for a good few days, i gave up trying due to frustration (Kym, a perfect profile pic lol) Happy Birthday to Gail for yesterday, and Kym, not till friday I know (same day as one of my best friends, right back to primary school!) For some reason I can't scroll back to read the most recent posts to refer back to 😞 Liz, i laughed at your comment about the hair, I have been naughty all the way through treatment and put colour on mine, my hair hasn't been its natural colour since i was about 14!! Sue, sorry to hear what a bad time you've had, I'll send you a pm too. Really sorry can't remember what else has been posted!! can't even really say chemo brain anymore 🙂 ... View more

Uh oh, same old problem, typed out a message, typed in the word verification, post disappears! Luckily it was just a short one, it was a huge congratulations to Liz on her new grand-daughter 🙂 Fab news and a beautiful name xxxx ... View more

I've been reading this thread with interest as I'm flying form manchester in August, I was horrified to read Woodys experience, what a terrible ordeal. I know they have a job to do and I totally understand the importance of security, but I agree with the lady who said that was assault! The body scanner issue is something which I have been concerned about, and I think now that i would voice my concerns, but I would be nervous about refusing one. Can they ask you to take prothesis out? If its in a pockted bra its not so simple, is it just the fact that its a solid mass which raises concerns? I know most people don't get scanned, but i'll probably look shifty now because i'll be hoping they don't pick me. The radiation subject hadn't really crossed my mind I was more worried about the prothesis, but it's definately not something that i'd be too happy being exposed to. ... View more

Hi, hope everyone is having a good bank holiday, its raining here in N Wales, nothing new, we have Prom Day on May bank holiday, the road is closed off, fun fair, amusements all the usual, Kitty who was on X Factor last year was performing today, but we didn't bother to stay to watch her, I found her too annoying on X factor. I've just spent a small fortune on a couple of rides and some sweets. I laughed at catherine posting 22 times too, the 1st time i posted it went on 3 times, i think you have to be patient. I've feeling fine since sat night (it was defo took much drink!!) and I'm generally quite happy at the moment with the way things are, moral, stay off the booze, esp when alone! 🙂 Kym - i've been meaning to say i like your pic, is that your work? the HH wasn't a local production, and was only on for 4 days, so i'm guessing travelling around, it was different to the HH proms which we've seen on tv, not as big a production, but still good, they had some 3d effects too, which were ok Sue - hope you enjoy Wizard of Oz, my little one has bought herself a mini dvd player with her birthday money, its great, shes watching it now and theres no citv on....bliss Liz - hope you start feeling better again soon, you think its going to be all onwards and upwards then you get a blip, as Kym called it Gill xx ... View more

Thanks Teresa and Lulu, hugs gratefully received 🙂 and Teresa, I laughed at your statement "but you are 1 boobed". xx ... View more

I'm such a wally, I'd made plans to go out last night with a friend, but her daughter had been ill so she cancelled. I was home alone and had a few drinks, I know, by myself!! Anyway, I went to bed feeling bit tipsy, and ended up bawling! I couldn't stop crying, and I don't even know what started me off, well rubbing cream into mx area probably did it. I just felt so alone and thought this is it for me now, sad, lonely and 1 boobed!! Glad to say, i woke up feeling ok, that'll teach me to drink alone. Not sure if its the site playing up which is making things quiet on here, I'm sure it will be better in long run, I just hope everyone hasn't disappeared from this thread xxx ... View more

Gail - Fab news about your liver, so relieved for you, do they need to do anything about the leision? Lisa - glad to hear all went as it should have done, it took me a while before i could sleep on my left side again, just don't push yourself, take it easy, in a way good you were home so quick but very scary too. Lulu - do you draw your eyebrows in? I've started filling in the gaps with my eyeliner, i went to town on friday to specifically buy an eyebrow pencil, i ended up spending £16 on various bits and bobs, and didn't get the eyebrow pencil Weme - hope your skin gets better soon, you had a lot of trouble before didn't you Amysmum - my skin where i had rads is quite brown now too, its beginning to peel a bit too, not too bad though, i also had a little area on my neck where i'd obviously been zapped, again its one of those thing which you're aware of but others wouldn't notice, but things must have been out of line at some point, because my skin has changed in this one other area too. Kym - Horrible histories was really good, we saw the terrible tudors, they had the audience joining in, we learnt a song with actions to remember what happenred to Henry IIIV wives, "Divorced, beheaded, died. Dovorced, beheaded, survived!" there you go. i learned something, don't remember the names of all the wives though 🙂 Have you ladies had to put a new profile pic on? ... View more

Hi babychops, I'm another who successfully used the cold cap, My chemo finished end of Feb, yes my hair thinned but, it was really only myself who could tell, by not loosing your hair gives you some control over who you tell about your cancer, so many people had no idea until i told them, just to add since finishing chemo, my eyebrows and lashes have continued to fall out, I wish i'd know that could happen. It is very cold and a bit of a shock to begin with when you put it on, my unit would give me a quilt which kept me warm, I'd give it a go, it doesn't work for everyone, you just need to be aware of that. Good luck Gill ... View more

i'm sure there must have been something on here to tell us the forum pages were changing, but i obviously missed it. I'm sure we'll get used to it....But has there really been no one posting on our Nov page since my last post on monday? Hope everyone is keeping ok, i'm still miffed about my eyebrows and lashes, i have 1 bottom lash left on my left eye, i tried to pull it out, but it wouldn't come?? We're off to theatre in a bit to see The Horrible Histories (kids thing) I'll pop back later to check out the site again....... Gill x ... View more

i'm sure there must have been something on here to tell us the forum pages were changing, but i obviously missed it. I'm sure we'll get used to it....But has there really been no one posting on our Nov page since my last post on monday? Hope everyone is keeping ok, i'm still miffed about my eyebrows and lashes, i have 1 bottom lash left on my left eye, i tried to pull it out, but it wouldn't come?? We're off to theatre in a bit to see The Horrible Histories (kids thing) I'll pop back later to check out the site again....... Gill x ... View more

i'm sure there must have been something on here to tell us the forum pages were changing, but i obviously missed it. I'm sure we'll get used to it....But has there really been no one posting on our Nov page since my last post on monday? Hope everyone is keeping ok, i'm still miffed about my eyebrows and lashes, i have 1 bottom lash left on my left eye, i tried to pull it out, but it wouldn't come?? We're off to theatre in a bit to see The Horrible Histories (kids thing) I'll pop back later to check out the site again....... Gill x ... View more

thanks for chantals birthday wishes, she looked a momentarily confused at bedtime when i said see you when you're 7 🙂 Liz - its easy to do too much when you're feeling well, hope your aches and pains subside xx ... View more