I was originally on Anastrazole but was scared by the thought of it ruining my bones. I asked my oncologist if I could go onto Tamoxifen, all was well at first but I found I was so tired, not sleeping due to hot sweats and getting aches and cramps at night in my feet and legs, also dry vagina together with recurring thrush. I also had vaginal bleeding and was subsequently checked out for uterine cancer which is a risk with Tamoxifen. This was the final straw so I decided to do some research as I was about to come off it altogether and take my chances. I typed in low dose tamoxifen into google and a YouTube video popped up. I was amazed at what I was watching. Professor Andrea De Censi has been using low dose Tamoxifen for over 15 years with great effect. I have been taking 5mg since I saw this video in November 2020 and I am so much better. I can tolerate the drug now and I now have very few side effects. I had a mammogram last week and have had the all clear for another year. I think the uk need to look closer at this drug as 20mg is quite clearly is too toxic for most women, 5mg is so much better. I cut my 20mg into 4 by the way. I hope this helps. here is a link to one of prof Andreas YouTube video. https://youtu.be/QAqgyqYgL6E
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hi Iam from India too iam ER PR positive and HER2 nu negative. its good to chat with someone like us in these forums. hope everyone is feeling better Also after Covid ,everyone forget about this "C"
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