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Margaret_May
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01-05-2012
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29-04-2014
04:43
Thank you Tricia and Amanda. I have now got an appointment to see my Oncologist next week so can grill him on what's best to do. It rather looks like trial and error. My surgery wont prescribe Arimidex anymore , it has to be anastrazole as its much cheaper. My attitude has been that if this hormone treatment keeps me cancer free then to put up with the side effects, but this latest episode with my knee means I haven't been able to walk or stand for any legth of time without severe pain, so can't put up with that anymore!! Thanks again Margaret May
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27-04-2014
06:44
I haven't been on here for a year or so, all has been well.Had a mastectomy and clearance in january 2012 followed by radiotherapy then arimidex. My hands have been badly affected but have gone with the flow but now my right knee has been so painful since January. The xray shows mild arthritis but it's agony to walk on and the GP thinks there is something floating around and she has referred me for physio! Well I have decided to go back to the Oncologist and see if I can change meds. I'm even worried that I have bony mets in the top of the lower leg bones as it is so painful but my Gp is very dismissive of my concerns. 2 years on and I guess I need reassurance more than my GP can give. Thanks for "listening" and hope all my old buddies are doing well. Margaret May
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15-02-2013
09:25
Hi Joan,
Yes am on arimidex. Seems OK and am happy to take it as was very positive to oestragen. Good to hear you have a new cat, she sounds great fun!. Last year was very full on wasn't it and as you say moving on can be hard at times. I don't come on as often as I think would be good as I always feel better for being on here and yes there is an understanding that you get no where else. Poor hubby has been a brick but has found it hard. Hopefully we can get a good year and really move on.
Good to hear from you and thank you for your post and hope you can move on, but that you can come on here when you need to.
Take care,
Maggie XX
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14-02-2013
03:45
Hi Joan, Lovely to hear from you again and thank you for this. I hope you are fine and well and the cats? I think you had a poorly one while going through all this last year. How did he/she do?
I wrote the first comment at 12.30 one morning after trying to sleep and feeling very low. Good old forums has comeup trumps again with some lovely ladies wiling to share and spur me on! Am still sore but I wonder if its because I haven't had the nodes removed then I am not numb so am feeling more...think that may be a reason. This time was for syncronicity as they called it at the hospital...was so hugely unbalanced and do feel synchronised now!! (Sounds like a swimming competition with smiling ladies emerging from the pool!!) Will try and be a patient patient and stop moaning!!
Presumably you are through all the treatment and out the other side? Thank you for this and hope all is well,
Maggie May X
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13-02-2013
06:25
Thank you Meggy and Milo, it's good to know of others having gone through the same thing. Being patient is the key I guess but having read all about a post mastectomy pain syndrome mostly in USA posts I was afraid of it not getting better! Don't know why as last years scar has healed with areas of numbness getting better. Milo agree about dog ears..really weird looking as well!! Hope you are both keeping well and thanks again. Maggie May
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13-02-2013
12:21
Hi.I'm 3 weeks post mastectomy and am experincing nerve pain , burning , sensitive and painful under my arm pit and in the area above the scar. It came on a week after the op and is just as bad 2 weeks on. I know the nerves have to heal but am worried about post mastectomy pain syndrome where this goes on for years. I had a mastectomy last year for breast cancer, this one was to be balanced as I was so lop sided, but am worrying that I should never have had it done, though too late to say that now. Am so tired and with this horrid pain just wanted to know if anyone else has experienced this or are going through it now? Had it last year but somehow it was different and more manageable. Many thanks and sorry for the moan!!
Maggie May
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26-01-2013
04:44
Hi,
Am recovering at home after a mastectomy last Monday. Arrived at 8am and was first on the list so by 4pm I was ready to go home and was home by 6pm. So it depends where you are on the list i think. Was glad to be home and have had nurses coming in to change the drain and check the dressing, all is well and only need paracetamol occasionally for where the drain is. Am happy to be recovering at home, need to crash out every now and then. I wish you well. Understand the panic, the waiting is the worst, but hope you can get some courage from our posts.
Maggie May
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08-01-2013
08:05
Thank you Zeppa. I guessed it may be arimidex but am seeing oncologist next week and will chat to him. Will also phone the help line.
Thanks a lot
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04-01-2013
08:04
Hi there,
Has anyone any information about the possible side effects of arimadex on the liver. I have been diagnosed with a non alcohol fatty liver which am worried is caused by arimadex. I haven't had chemo which is another cause, but just wondered if anyone out there has had the same? Did you have to change pills? Am seeing the Oncolgist soon but thought there may be some help from others on here. many thanks
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13-08-2012
03:34
Am beginning to get worried. Had Mx and anc clearance in January, then radiotherapy ending at Easter. Since the radiotherapy have had haematomas under the scar causing a hard long lump. It's been drained twice but has come back again, more painful. I have to go in tomorrow to have a scan and have it investigated. I know these things happen but have now started worrying it may be a recurrence on the chest wall.May not be of course but I hit the panic button very quickly these days. has anyone else had this?. It's not a sermoma, its like a hard old blood clot. Would appreciate any input please.
Maggie May
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12-08-2012
04:52
Hi rev cat, Lovely post and good to hear you are getting on well. Sounds like all these emotions sort themselves out with time and enjoying ourselves and being gentle with ourselves sounds good to me and I hope to Kate X
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12-08-2012
04:47
Kate, I have also found post treatment difficult. The anti oestragen pills I am on (arimodex as I am post menopausal) have increased my anxiety and I too think a lot about all of this. I have actually put on weight as I have been tired and know it should be the other way round as I am hormone positive. Bit of a viscious circle with tiredness after treatment, comfort eating and anxious. You are not alone and especially about the anxiety of what you are eating and drinking and fear of the cancer returning. In fact it sounds normal to me especially as you have nly just finished treatment. Speak to your BC nurse, the more I have shared all this stuff the better it is.
Maggie Mayxx
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01-07-2012
10:47
Thankyou for these. Suzanne I have not heard of a clinical psychologist at the hospital but will ask my BC nurse. I am going on a course in the Autumn run there about moving forward once treatment has finished which makes me think that others go through all these emotions and fatigue. I think I am my own worst enemy as I arrange things as though I am fine and then really struggle! But am beginning to realise from here that the recovery is long term and also have to take into account the arimidex and the side effects of them. Werne, I really feel for you as you are struggling to work while not feeling up to it and are obviously needing recovery time and like me, have to recognise the reality of what we have been through and how much time it takes to do that.Hope you can find someone to talk to as well. You had chemo as well as all the other so no wonder you are feeling as you are as its not long since you finished. We both have to be real about all this I guess and be kind to ourselves.
MM
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30-06-2012
08:07
Hi Maryland,
Many thanks for this, I read it through briefly and it looks spot on! Will download it and read it through thoroughly. Thank you and all the best with your ongoing treatment and recovery.
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30-06-2012
05:36
Hi CM,
Many thanks for this. Today is a particuarly bad day but I do like your comment and especially to accept that this is a positive part of recuperation etc. It is all too easy to get into a fighting mode of frustration and doing too much and stop listening to my body crying out for rest.
I seem to remember you from earlier this year. I hope you are doing well and thanks again for your encouraging words.
MM X
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30-06-2012
04:19
Hi there one and all. I guess I am needing some encouragement, emapthy, whatever. I had a mastectomy and node clearance in January, followed by radiotherpay and now on Arimidex for 5 years. After the surgery I was back to normal after a few weeks, cycling etc, but now I can't summon the energy to go for a short walk let alone get on the bike.Also has a haematoma drained last week, still have seroma fluid all roud the scar and arm pit. We have just had visitors for a week and now they have gone I have done a nose dive, physically and mentally. I found it a huge effort to have visitors. I tried not to overdo it, but I guess I did and now everything aches, can only do short periods of things, feel totally frustrated, eating too much and feel close to tears a lot of the time. My husband says I am a people pleaser and shouldn't do so much. He does stuff but not how I would and not all the things I would do so its frustrating. I've read other posts like this and people say a year before feeling "normal" again. I can't imagine ever feeling the same again. How you all do it so much younger with children etc I just don't know. I am already on anti deps so can't take that route. Sorry for the rant...you guys who have children and jobs are amazing and in many ways i am so fortunate but right now with more visitors coming next week all be it relatives, I am sooo exhausted. Does excercise help if feeling like this or should I go with the flow and flop?!! Thanks for getting this far with the moan, it helps to write it all down!!
Maggie May
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25-04-2012
09:30
Hi Fran,
I have huge respect for all of those going through chemo and you have made it through to number 4 with real bad se. I decided against chemo for various reasons, but you have gone with it and like others have said, 4 is a good number if you can't go for the 6. I had mx and anc clearance, grade 2 i node, but am 62 and went for rads and 5 years arimidex. Had I been younger would have gone with chemo, but have so mnay other health issues now. Hope your migraine settles soon and you can build up your energy and start enjoying life again and all the very best with your onc next week.
Maggie May xx
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21-04-2012
01:09
Hi Joan, Thank you for the good wishes and I really hope everyone going through the chemo path is doing fine. Yes I imagine this is what it would feel like but perahps without the sickness, hair loss etc etc that comes with the chemo. I hope you are getting through it all OK. Do you have to have radiotherpay as well? Love the cats! Take care and best wishes,
Maggie May X
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21-04-2012
11:41
Hi All, re the tiredness, I would call it total and utter fatigue. I am 2 weeks post end of rads. Like you Ermintrude, up late, on settee do some stuff then exhausted again. Everthing aches. Keep having to cancel things!And yes have put on weight, how annoying is that?? Haven't even got giving up smoking to blame it on, just eating same amount but little excercise. I hope everyone gets to where they are supposed to be ths week end and can really chill out. By the way, it's not only tiredness, my mind and memory are like a fog!!Is that common or am I going senile?
Good luck with the giving up smoking.
Maggie may
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19-04-2012
08:13
Ermintrude, that is so brilliant, what a lovely hubbie and family to organise that. Hope you have a wonderful healing time. Hubbie and I were both going to Normandy on a clock/antique buying spree next week but I am just not up to ferries and long car rides, so have insisted he goes as he has been an absolute brick through all this and he will meet up with another clockaholic friend there. I continue to burn and sleep, not a good day today but know it will calm down soon. My hospital gave me some funny jelly things you put in the fridge then put them on the hot spots!! So now its jelly and creams,which is very similar to some puddings that have just been created on tv in a cooking competition!! But I am NOT adding raspberries or tarragon to my mixture!! Have lovely breaks away and all the best to all others undergoing the rads at the moment.
Maggie May
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