I had my 6th Herceptin last week. I agree with previous comments that oncs don't seem to take SEs seriously. My main SE is palpitations, which are worst in the first week together with breathlessness. Have had 2 echos and a 24hour ecg but all show everything is fine - so I have to believe them, I suppose, even though it feels scary to me.
Other SEs I get include: immediate fatigue, strange feeling inside nose, tight chest, soles of feet bright red, night sweats, hot flushes, runny nose, putting on weight.
Anyway, the latest onc who I saw last week gave me food for thought. I told him that I was still concerned about palpitations and H, despite everyone telling me it was fine - he said that as long as I had had 9 weeks of treatment, there was evidence to show that this is effective. The reason we receive treatment for a year in the UK is because our trials were done for a year - and were effective. There is currently a 6 month being done in the UK, as I understand this is the normal length in Europe. So the ball is in my court - I can stop if I want - what a decision.
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