Hi All, Please use this link - Younger Breast Cancer Network which will take you to the facebook page, once there go to the About section which will tell you how to join the group. Hope that helps you all out 🙂 L
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Hi Cass, I've just seen your post on here, as I was trawling through information regarding my 2nd dx 25/3/15. Firstly, I'm very sorry to hear of your news, understandably you are very upset and worried about what will happen to you both, so I wanted to share my experience with you, in the hope that I would be able to ease some of you fears. In early Janaury 2012 at age 27 whilst 25 weeks pregnant I was diagnosed with a grade 3 tumor in my left breast, it was the most scary thing that anyone has ever said to me without any shadow of a doubt. With so much fear swimming around my head, I didn't know whether me and the baby were gonna make it through and survive for my then 2 year old daughter and husband, and I couldn't bring myself to face any of it. Let me tell you firstly, we did. My now 2, nearly 3 year old son is like a brilliant shining light in my life, he is very well health wise, he picks up/recovers from any bugs that go around at pre-school, and runs around like a maniac! he is a totally normal kid despite his rather rocky start to life! My surgery was scheduled on the 17th January to remove the lump, WLE, done under local anaesthetic, they also removed some sentinel nodes for testing. I started chemo therapy on my birthday (21st Feb), it was very traumatic but it gets easier, and the type of chemo they gave, at my stage in pregnancy meant that it would not be passed through the umbilical cord which was a huge relief. I didn't start the second chemo drug until after my son was born and I was healed because it would be passed through to an unborn baby. My little boy was born on April 28th 2012 after long induced labour, but he was healthy and alive! So to you, I wish you all the very best, you will have the most amazing medical team made up of numerous specialists to take care of both you and baby, you couldn't be in better hands. I really hope that i've been able to cast off some of your fears. Take good care, L xx
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I'm so sorry to hear of your diagnosis, it is news that nothing and no-one can prepare you to hear. We are all here to listen and help.
The reason I am replying to your post is that I was in the very same situation as yourself, although I was only 28 when I was diagnosed with cancer whilst I was 25 weeks pregnant with my second child too.
It was a crazy, crazy roller coaster ride, but rest assured your obstetrician and oncologist will only do what is best for you and your bump, neither of you will be jeopardised.
The care I recieved was second to none (it was NHS), I had regular check up's with all my doctors on a regular basis, regular scans. Nothing was left to chance. I had both surgery and chemo whilst pregnant neither of which had any effect on my son who is now a mountain of a baby age 14 months. I also worked right up to the last couple of weeks before my due date.
Make sure you rally all your family and friends around you because as you go on your journey will need as much strength as you can muster, nut remember it IS do-able 🙂
On a side note - At the time my partner went to the doctors and explained our situation, they were very sympathetic and signed him off for 6 months to help with the newborn whilst I underwent the worst of the chemo and radio after baby was born. Whilst I appreciate that not every company has a great policy about pay when signed off, if you have this option open to you, I urge you to do this when you feel the time is right.
I am here, and happy to listen or answer any questions that I can.
Feel free to PM
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Thanks for your replies ladies,
It really helped to read your views and experiences on the subject, and I will definitely speak to my oncologist on Tuesday about getting a referral to the breast surgeon.
I totally agree about feeling good about yourself Grumpy, after what we've all been through it's our right, and even though I am grateful to be alive, and to have both my boobs (albeit lopsided)! I still don't want to feel self concious in what i'm wearing because I constantly checking that Biggy isn't spilling over everywhere...gahhhhhh!!!!
You have given me hope 🙂
Thank you very very much x
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It's been a long while since I've posted on here, since my journey began back in December 2012.
I have been clear of chemo and radiotherapy for a few months now, I just take tamoxifen once daily.
What I'm really looking for is some advice, and I couldn't see where else to post this, so I hope it's ok to have it here. (moderators please feel free to move my post and point me in the right direction :))
I was warned before I had my radiotherapy that it could shrink the size of my surgery breast, and it certainly has done that, and I was also advised that you could have a breast reduction if this was an issue...
To anybody going through this, are there any guidelines/restritions on this...does one boob have to be 2-3 sizes bigger, or just that it's becoming a daily nuisance because of ill fitting bra's and clothes?
I'm not sure whether to bring this up with my oncologist on Tuesday next week, or what to do really. All I know is it's driving me mad having to constantly re-adjust my bra, boobs and clothes every time I freaking move!!
Any advice or experiences welcome!
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Thank you for your all of your kind words and support, it's very much appreciated 🙂
Can't quite beleive it's only 12 days until the big day! mercifully we have most everything from DD as she's only 19 months old, so we kept back alot of what could be used again. Poor OH had a few tears of guilt this afternoon, he was shopping for a few bits for Merlin (Our pet name for Bump) when he realised we had not bought a small gift for him when he's born, where as DD had everything new...needless to say, I shed a few tears as well. It's a sad thing when you're rushed off your feet with appointments that you forget the little things, at least he won't go short on love 🙂 This pregnancy could not have gone faster.
Ou! Something I thought about whilst reading Twinky's post about nail polish was...can you get a UV protection polish, and it turns out you can. This is a clear topcoat (so would allow you to wear any colour underneath) and protects your nails from UV rays. A little pricey perhaps but it'll last. Here's the link for those of you who are interested! you can get it other places for about the same price too!.
Has anybody heard from Foofan? I haven't seen any post from her in ages which worries me...
Love and hugs to all
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Hope you've all been enjoying your Easter eggs and having lots of rest 🙂
It's been a while since I've posted, I had 3/4 Fec last Tuesday...as per the norm' that part was fine, but I have found the steroids - in particular Dexamethasone - really awful this time around. I can cope with the hot flushes and physical side effects of the drug, but I found that it wreaked havoc with me mentally this time around. Horrible, horrible low mood, snappy for no reason, nobody could do anything right, and just speaking to me made me cry!...just one massive black cloud over my head for 7 days. My poor OH and DD.
After speaking with my Auntie's both of which have had dexamethasone for cancer treatment, said it they experienced the same thing, so I'm going to speak to the oncologist and hopefully have them reduced/replaced with something that doesn't leave me feeling so horrible. There is no way on this Earth i'll be able to cope with a newborn and 19 month old with moods like that!
Ended up in A&E on Monday night because my PICC got infected, they removed the PICC line and gave me antibiotics, but took no cultures or bloods to see what the infection was, much to the annoyance of specialist nurses yesterday....so they are going to place another PICC line on the 4th May before my next FEC, but Day Therapy were so concerned that there was no contigency between being induced (2nd May) and treatment that I said I'd speak to my obstetrician about getting an earlier date for beng induced. So now i'm being induced on the 25th April, 7 days early than planned, but a massive relief for me because I'll have a week to recover from labour before treatment hoorah! :):).
I'm aware that most of you ladies are half way through your treatment now, and some of you have already had your first cycle of TAX, so I'll be keeping up with your posts to see how you all get on, and I have my fingers crossed that you all have minimal SE's from it.
Anyway, long post over.
lots of love
Lon and Bump!
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V tired today, haven't been sleeping well because of lots of aches in my hips, but just back from 2nd hospital appointment of today and, got some difflam mouthwash on prescription from oncology and also some lactolose as well...iron tab's, chemo and steroids are not a good combination for a health gut! also told to moisturise my hands loads as I've started to develop a colourless rash on my hands that feels very prickly.
I was really surprised by the amount of you all that are on FEC75, as for some reason I had it in my head that FEC100 was the norm', just goes to show how diverse the treatment is.
I have my 3rd/8 cycles tomorrow @Velma72 you must be chuffed to be at the half way mark already! I can't believe how fast this cycle has come around.
@knoxybabes - I'm sorry to hear that you had to sort out your mum's house, it must be a very difficult time for you, and so easy to over do things, so try and rest and good luck for tomorrow, I hope you get the news that you want to hear regarding the amount of cycles you'll be having.
Good luck to all of you having a cycle this week,
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I have a really sore tongue today (anyone else?), I haven't eaten anything spicy so figured it's probably chemo related and will speak to oncology on Monday about getting some mouthwash.
@Foofan - Glad to see you back too, I hope you are well 🙂 sorry to hear you over did it last week, it is very easy to forget not to do too much even on chemo free weeks, so try to take a few days and rest. My 3rd Chemo is Tuesday as well, I'll be thinking of you, especially as you're half way through your treatment! yayyy! 🙂
The working from home is a real blessing, it means I can sleep when I need to which really helps extend my battery life during the day (I've had 2hr naps yesterday and today at 9.30am...not sure how i'm going to cope when I go back into work for a day or so next week!)
Re. the c-section, it's very unlikely to happen, as CarrieR said it's major surgery and will take a long time to heal whilst on chemo and could easily get infected, totally suckly but neccesary!
@Rosiechin - Sorry to hear about your weight yoyo-ing, have you spoken to your oncologist about it? I haven't seen anyone else post about dramatic weight loss and gain whilst on chemo, I hope you get it sorted out x
Out of interest is anyone else on fec75 or tax75?
Love and hugs to you all on this wonderfully sunny afternoon xxx
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Thanks for all your ideas, I have indeed looked at our options and even homestart isn't visable for us as the nearest one is too far away.
Ohbaby - I will ask my midwife about the nursery scheme, that could really help even if it's one day a week!
OH and I have decided that our only option is to get him signed off for a few months, I've run this past several people including our midwife and she can't see any reason why it would be refused, and said she would be happier knowing he was off to take care of us all, as I 100% hold my hands up to the fact that I am my own worst enemy when it comes to coping with everything, and if I do thatI know that i'll burn myself out and make myself worse!
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I haven't used the cold cap since I tried it out on my first chemo session back on the 21st Feb for 30 mins. I decided against it in the end because it was so tight around my face, and generally very uncomfortable to wear, that and the fact that it extends the hours that you're in day therapy by around 2-1/2hrs extra.
Another reason I gave up on the cold cap, is that I was inspired to see that none of the people around me going through treatment were wearing the cap either, so I thought If they can do it why can't I?
I want to stick my fingers upto those people that may stare or pass comment, I have nothing to be ashamed of, it's my battle and I'm going to win it, so what people think or say doesn't matter to me.
We are all strong ladies, and we'll come out fighting!
And don't forget your hair will grow back, most people on the forum starting chemo Feb 2012 have lost their hair and it's growing back already after just a couple of cycles 🙂
Whatever decision you make it will be the best for you 🙂
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I haven't posted for a while, but I have been trying to keep up with all your goings on, and it seems with the exceptions of a few, you're all doing pretty well at the moment which is really good to hear 🙂
I've been pretty well since my last chemo, aside from chest infection No2 which I picked up week 2 of 2nd chemo, which was the same as the 1st chect infection I had during cycle one. I've been taking cyclimycin for a week and have a check-up tomorrow, these antibiotics seem to take longer to work than penicillin, but they have worked well, I am no longer wheezing when I speak to people.
I had my PICC line fitted about 2 weeks ago with last chemo, and so far it hasn't cause me any problems, sometimes it gets very itchy underneath the dressing, so I put a cold pack on it which really helps.
Had a lot of fatigue, since last chemo, but I think it's pregnancy related as well, last trimester tiredness! on which note I have been told that i'll be induced on the 2nd May, I'm quite anxious about the labour, something that hasn't bothered me with other two kiddies, I'd rather have a controlled C-Section than a normal birth this time around because I don't think my body can cope with more complications, but I do understand why they want me to have a normal labour, the pro's! but it's still damn scary, just in case something goes awry. Baby is well at the moment and growing well despite chemo :)34 week growth scan this week...despite my concerns about the labour, the care from the obstetrics team has been excellent 🙂
It's only taken over 3 months and a lot of huffing and puffing from the technical team at work, but finally I am able to work from home, which is a huge relief as I'm far more comfortable and I can work in a way which suits me and means I can have a nap too, my OH has been very angry about how long it's taken because I keep picking up colds etc from work! Not that i'm going to be there much longer, Mat Leave starts end of April, so I'll have a week or two to relax before baby is born, and beleive me, I'm going to take full advantage of that!
On a totally different note, I notice that some of your gentleman folk have been a little stressed of late, so I thought it would be worth mentioning that your men as well as yourselves can get councelling through your local GP's. My OH is scheduled for his first session 18th April. My OH is excellent, very supportive, but he rarly shows his emotions, I have told him and he agrees(although apprehensively) that it would be good for him to talk to someone who doesn't know him, so that he can get a load off his chest, I know if he bottles up his emotions it will make him ill, i've seen it before.
Sorry for the long post, just loads has happened.
Stay well, special love and hugs to you all xxx
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Quick check in to see how everyone is...
@Knoxybabes - 17 tabs a day! you really will be rattling, after my first dose I remember wondering how I would remember to take all the pills. So I set reminders in my phone that went off 3 times a day to let me know what to take and when, the worst for me were the steriods that changed in quantity as each day passed! Good luck for your allergy test Monday and Chemo on Wednesday.
@Purple42 - Very glad to hear that Bob is shrinking fast!
@Giddy - I thought the same as you, that your nails would either stop growing or really slow down, but mine are still growing really fast. I'm FEC75 with 5 days filgrastim 5 days after chemo...not sure if that's why??
@Kiwijan - The steroids SE's are horrible, the hot flushes in particular for me as I run hot normally anyway! I hope your SE's are very short lived.
@Rosiechin & @Loz - Sorry to hear that you've both not been well, I hope like I always do you feel better soon x
@Twinky68 - I'm day 20 after first dose of FEC75 and I still have all of my hair, and I honestly expected it to have gone days ago from what everyone else has said. I'm not sure whether i'm on a different drug/dose to everyone else? I also have filgrastim injections to increase neutrophil count too.
@Leeds39 - Good luck for your new job on Monday, we all need a change in fortune, so I hope this is the change in fortune that you need x
Love and hugs to all xxx
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@Knoxybabes - That's really rubbish, you seem to be having a horrible time of it like Loz and a couple of others on here. I hope your allergic reaction has subsided and your feeling better. I'm having a PICC line fitted next Tuesday just before Chemo session 2, having read all your troubles with it, I'll definitly be on to the nurses if it starts not feeling right! I still have my hair too, but still now i'm playing the waiting game for when it does start to go!
@Leeds39 - I've been sorry to read of your troubles with your OH, none of us need any more worries and stress than we've already been dealt! I hope things sort themselves out for you soon, do try to stay positive, it's hard sometimes and a bit of a cliche but i'm sure it's the right thing to be doing 🙂 I'll be positive for you too 🙂 - I'm doing pretty well, thanks for asking, glad to be over my chest infection from last week and have suffered hardly any SE's from the chemo unlike lots of lovely ladies on here. Pregnancy is going well, baby is fine...though need to get a PA to sort my appointments out which are all over the place, lol. 32 week scan next Tuesday, something nice to help take my mind off PICC and Chemo which all fall on the same day, lol. 'Never rains but it pours!' - Special hugs to you too!
Special hugs to each and everyone of you 🙂
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I saw on the hints and tips page that somebody used to partially freeze water/squash so that it was like a slushy (or blend some ice cubes and a little water or squash), really good for flushing the chemo out of your body if you can keep the fluids down and great for easing sore mouths. As for the taste, pineapple was mentioned, but until the soreness has gone away I wouldn't recommend that. Also you can get a special mouthwash prescribed by your GP for the sores...ring your doc's and get an urgent appointment, they should see you right away because of the chemo.
I hope that helps and you feel better soon,
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2nd day back in work after being signed off due to chest infection, and day 17 after 1st chemo.
Have been very tired at work, feel like I could just put my head on my desk and snooze the day away! this happens from morning until I leave and feels like a thick fog.
Aside from the tiredness and a sore scalp on occasion that seems to go away, I have been lucky and not suffered many SE's, I have my hair still, somehow! and I've noticed that my nails are still growing quickly but my under arm hair growth seems to have slowed right down, very odd. I expected that my 'new cell growth' would have all but ceased with the chemo and that I would have lost my hair by now. I'm still waiting for it to happen though, so in no way do I feel comfortable about still having hair when I know it's going to go sooner or later! 😞
Glad to see that so many of you have been feeling better of late 🙂 it's always nice to read more positive posts 🙂
@Kiwijan - Very best of luck to you today, I hope todays dose causes you no horrible SE's like the last one. I have my fingers crossed for you 🙂 and hope you have a lovely snooze later today. xx
love and hugs,
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Hi All and welcome Brizzie and newbies,
I'm sure you'll find lots of valuable information on this post, and on the others across the site too.
I haven't been on here for a while, been really poorly! that cough and cold turned out to be a chest infection - diagnosed on Tuesday after an urgent doc's appt recommended by the chemo nurses as I could hardly breath! So glad the doctor didn't try to fob me off with paracetamol like the others i've spoken to over the past 8-9 days. If you develop coughs and colds that don't go away quickly please get yourselves booked in at your GP's for a thorough check, I wish I had done sooner and not listened to the out of hours GP! thankfully aside from an extremely sore throat coughing fits have all but ceased thanks to the antibiotics and I am now able to sleep again 🙂
Received a letter from oncology yesterday - they have upped the amount of cycles of chemo i'm to have, from 6 to 8 because i'm on FEC 75...pretty poo as I have to have another cycle squeezed in before baby is born in early May! and an extension on top of the taxotere after baby is born.
Having caught up with all your posts, I see that hair loss is the most frequently posted about comments now 😞 Day 11 for me and no hair loss, but from what i've read that's going to happen over the next few days, something I find really daunting. Every shower I run my hands through my hair to see if i've lost any hair and everytime I'm relieved that I haven't, but I know it's coming and that's the scary part, what if it happens to start coming out in clumps at work, I find that that thought utterly terrifying! I think you're all being very very brave about it all, and I hope I deal with my hair loss in such a brave way xxx
Got a lovely hand cream today as all the hand hygiene and chemo is making the skin on my hands very dry, so will have to keep well moisturised to stop it from becoming sore.
Take good care of yourselves and best wishes to everyone on this roller coaster journey,
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Hey Fab Feb's and all our newbies,
Haven't posted for a few days, after tearing up in work on Friday morning the tears didn't stop coming until late Saturday night, I have a rotten cold and cough which really stopped me from sleeping properly, out of hours doctor was as useful as a chocolate fireguard - his advice, stay away from people with colds (nice I already have one!) and take paracetamol to help with cold symptoms, could not advise on taking nytol and night nurse! so in the I did take both out of desperation, a worth while risk in my opinion as I managed to sleep really well, and the tears stopped.
Saturday was murder walking around town for an hour, OH wanted to get a PS vita on trade-in for hozzy trips and I wanted some fresh air, but I had no idea how totally draining the trip would be, I barely moved from the sofa when i got home. Thank God for my OH he is a total gem and did everything for me 🙂
I now feel much more stable emotionally since catching up on rest, though not in work today, I still have this cough and cold and don't really want it made worse by catching anything more off my colleagues.
@Foofan and Leeds39 - Thankfully it's a small and lovely company I work for, MD is upstairs and can decision make in an instance, he is fine about me being in work when I can, he knows what a burden I have mentally and physically and has no expectations of me (in the good sense) they are also setting me up from home, so if I can't make the trip into work I can still work from home as and when. I am sooooo grateful to them, my previous employers were attrocious - I struggled into work with agonizing chronic gall bladder diesese on death's doorstep to make a point to them about thir sick policy!
@Foofan re the Filgrastim - I inject into my rump, it's painless and quick 🙂
Have you or anybody had any SE's from the filgrastim? yesterday and today i've been getting random acute pains in my torso that stop me doing what i'm doing in an instant, even if i'm not doing anything...they are really painful in my lower back and hips, neck and shoulders! ouchie!
Kellc - I hope I manage my hair loss and head shave as well as you, you should get a medal!
Hugs to all 🙂
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Sorry to hear that you're in the same boat as I am, as mentioned on here before, the Homestart people look to be about the best out there, I have not contacted them yet, but I will do when the time is right for me.
Here's a link to their website, and I hope that they can help us both
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