Breast Cancer Now Forum

Hi Sarah , Fantastic news you have had your pip award , please may I ask if you had a phone assessment and if you were given a DS1500 form by doctor etc ! I applied early January and had phone assessment a couple of weeks ago and still haven’t heard as yet ! Thanks Helenx ... View more

Dear Rosie , Thankyou for your reply , can I ask are you fairly stable at the moment and have you had the pip long , I’ve asked my GP to sign the form but he won’t as he says I’m expected to live longer than the 6months ! In the past the breast care nurses have signed form and now they have asked the oncologist who wouldn’t ! I’m really struggling financially at the moment and this has really stressed me out now the pip has stopped 😞 x ... View more

Hi Belinda , Thankyou for your helpful information, will definitely look into this take care Helen xx ... View more

Hi Gilly , many thanks for your reply , I will complete the form was just worried in case I wouldn’t be able to claim, as I’m stable at the moment and wouldn’t match the criteria! take care Helen xx ... View more

Hi Ladies , sorry to drop in as I’ve not posted for quite some times ! Just wanted to know if any of you have had any problems claiming pip I’ve had my bone secondaries for a few years and had pip at higher level , now it’s due for renewal and my breast care nurse says my oncologist won’t sanction the ds1500 and it’s stopping ! I really rely on the money as I’m not working ! Nurse says I have to reapply but don’t think I will be eligible for anything ! What are your experiences? Sorry to ask but I’m really stressing and I didn’t know who to turn to Helen x ... View more

Hi Cazzy , thanks I yes really devastating losing my lovely mum ! , I’ve been on an Anastrozole for last 5 years and has worked well but this constant pain in my lower half is making me feel that things have changed ! You can almost put the whole cancer thing in another box until you get a pain flare up and all the worrying thoughts just get brought to the front of your mind !! X ... View more

Hi all  been a while since I posted ,I’ve had bone mets since 2012 , with very no real progression over the last 5 years !! However for last 3 weeks had groin , hip and knee pain pretty much constantly, really worried that I have progression,has any one else had any experience of this ? Hoping its rheumatism but probably not , been stressful 6 weeks as lost my mum and now thinking it’s brought this to the surface !  Helen x   ... View more

Hi ,thanks for replies ,janette I had clicking jaw then have problems biting jaw together won't align properly ,have aching like I've been chewing gum all the time ? And then in a week had two teeth break off .Do you think that the denusumab does a similar job to the hormonal drugs Helen xx ... View more

Hi ladies ,have had bone secondaries for 4 years been stable with arimodex and been on tablets and denusumab for nearly two years ,have now got osteonecrosis of the jaw and can't have the bisphonates now and there is no alternative ,really worried about not having bone strengtheners now .Has anyone else had similar or have any knowledge ,feeling so down xx Helen x ... View more

Thankyou ladies for the replies ,I think what shook me was that Jackie Collins appeared on loose women 9 days before she died and no one knew she was ill ,and she certainly didn't look that poorly ,that's what I can't get my head around, thanks for listening and will keep reading your posts ,just wish I was able to give more input into thread but afraid I don't have much knowledge to help anyone Sending huge hugs to all ladies here on thread going through our own worries and stresses ,it's lovely to be able to post here and know that you have same understanding .love Helen xx ... View more

Hi ladies ,again I'm sorry but don't post very often,I do keep up by reading the posts and sad that tree are so many new ladies having s rough time!.So sad that Jackie Collins has passed away and when I read that she had had stage 4 for 6 years Aprox just get so anxious ! I've had sec bone cancer for 3 years 5 years since primary and panic about own mortality which I know sounds really selfish ,for which I am sorry! I am lucky as don't have too much pain at present and pretty much get on with normal day to day living ,!with young family I just pretend that all is ok ,but certain times like this I just feel like I'm in panic mode and get so scared that I feel like I'm going to explode.As you brave ladies know we get so used to putting on a front ,does anyone else feel like this ? sorry to just pop up and moan but it's s lonely old place this cancer and I this is such a relief to come here and let it out Thanks Helen 12 ... View more

Hi Natalie ,I've just had the exact same ,had a chest X-ray this afternoon and luckily my doctor asked them to ring him with result ,so within an hour I was told my lungs were clear ! Relief as I too feared the worst .he thinks that my Mets in ribs are insisting irritation that causes muscle spasm which in return effects breathing ! I've had quite a lot more pain in side just recently so need further investigations .but had the awful chest tightening pain and almost blockage feel in throat and breathlessness which has been ongoing for last 4/5 days hope this helps ,as know how scary this feels ,I've been pretty down in the dumps.relieved now but still worrying a bit about the cause Helen xx ... View more

Hi ladies ,I am afraid I don't post very often ! Was so shocked to have read terrible news about Helen am so very sad .i do dip in and out of forum and feel bad about this .ive been stable with bone mets for a little while ,but recently have been quite breathless without much exertion and worried that I may have spread to my lungs ! ? Has anyone had experience of these symptoms ,Helen x ... View more