Good morning ladies, I'm from the September 2013 thread, I'm not on here much these days but I do like to pop in particularly on the September group to see how you are all doing. When you get that rotten mouth - Some of the girls in my group drank tonic water prior to eating they swore it made food taste near to normal, unfortunately for me I don't like it. I had awful pain on the 'T' part of FEC-T, I complained to my Onc to try to score some stronger painkillers for next time - I didn't want a reduction in chemo strength because hey that's why we're doing this...... to blast this disease to kingdom come. Anyway he prescribed what he called the steroid tail, yes it is more steroids but you take them in ever decreasing doses daily rather than just the sudden stop. It was like a miracle cure. PS Top tip! I was told to take my steroids at 8am & noon, they never interfered with my sleep 😊 As for me now, I had skin sparing mx, then reconstruction surgery once chemo finished, then had a reduction on good boob to match, had a nipple made and then tattoo'd - haha I now got the boobs of a 20 yr old, every cloud and all that 😃 As I was triple negative I'm not on any meds which was a bit scary as I felt left adrift without a life belt, my Onc signed me off this year and my consultant will now only see me annually as opposed to 6 monthly for another 5 yrs (he did say he could discharge me but I like his reassurance). So life does go on, you just appreciate it a bit more. Best of luck ladies x PS my hair grew back curly, was dead straight before lol, it's not so curly now more of a kink. I used to have quite thick hair but alas it's quite thin now ☹️ , on a plus note, leg & armpit hair is really sparse 😆
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