Many thanks for all the messages..........I know you all have so much on your plates and I appreciate it so much.......... When first dx, a few weeks ago, she was immediately put on Letrozole & bone strengtheners...........saw an ortho surgeon who wouldn't touch her.........it had gone too far (she already has a hip fracture & is in a wheelchair to keep her weight off that area)............she was referred to one of 3 surgeons who they thought may be able to do something, but he said 'inoperable'......basically there's no bone left there.....so no hip replacement or anything........... He referred her to the onc.........saying that treatment would hopefully stop the spread and then the bone could re-generate...........then he could operate........... I don't know much about all of this, although I try to keep up-to-date with different treatments (for my own sake)..........but I do know that you have to be your advocates and up-to-speed........ Anyway, she's been referred to my onc (who is wonderful.......based at the Christie), and has asked me to go with her tomorrow for her first appointment............. If it was me sitting in the chair, I would be asking how they know that her ER/PR+, HER2- hasn't changed this time round?.........what are the chances of chemo etc stopping the growth in its tracks to allow bone re-generation? Amongst other things......but my friend, as I said is a 'head in the sand' kind of person......nothing wrong with that, everyone deals with things in different ways.........but I really won't feel comfortable asking the questions that I feel need to be asked (but, as I say that's me, not her). She's such a lovely person....but just doesn't ask any questions.....after her dx 11 years ago, she didn't even know what grade she was, what stage........ and was amazed that I knew she was ER/PR+....just because she'd been on Tamoxifen. Not like me!! How should I handle it? Advice please.................
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