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whiskers2013
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since
06-09-2013
85
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05-11-2014
04:58
Hi Michelle, hope your keeping well 🙂 well I've bit the bullet and booked in for next Thursday 🙂 it is my opposite arm so I'm hoping for no problems. As it's such a bit piece around 10+ hours I'm going to do itin 2 hour sittings. Will take a few months to finish but think this mmay be the safest way. Let me know how you geton x
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21-10-2014
09:49
Hi all, Got a question regarding new tattoos after active treatment and I dont want to bother the nurses with. I am heavily tattooed and am already fed up I can't finish one of my sleeves due to having my lymph nodes removed and the risks being to high. My question is I finished my chemo November 2013 and rads January 14 would anyone know if that would be long enough to wait to get my opposite arm started. 🙂
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21-10-2014
05:20
Hi all, my lump was painful. I got sharp pains that use to shoot through it. I wondered after could it be connected to hormone fed cancers as it was similar to the pain felt when it was coming to the wrong time of the month when we tend to get painful and sore boobs anyway. Either way yes mine bloody hurt 😞
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17-10-2014
04:07
Hi ladies, slightly different gripe with me. I know all my friends mean well but if I don't write it here I am likely to get into a massive fb rant like I did last year. I just really really don't get all these 'share this'blah blah post. whilst the whole selfie share did raise alot of money and my feed was full of lots of beautiful make up free ladies I choose to donate and share a breast check post. I chose not to share myself wigless and make up free cos the harsh reality is I couldn't as I looked and felt horrific. Anyway the latest one is 'set your Tata's free go braless for breast cancer awareness week' I mean is it me or does that one really take the p*ss. I only have one boob for Christ sake 😞 my bra holds my other one in place.
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01-10-2014
03:32
Hi leany, I finished my chemo Nov 13 and rads Jan 14 and still even at 37 suffer terribly with fatigue. I recently had to come off tamoxifen due to suffering a mini stroke and was told I would need a hysterectomy. I hadn't had a period for 4 months and had my fingers crossed I wouldn't need the operation and I was well into an early menopause but my onc said it would most prob be the chemo. I was suprised as I finished just short of a year ago. Think it just goes to show how long these drugs effect are bodies even ayear later. I've been told it can take up to 3 years. I do have more good days than bad though and if I want to rest or sleep I think feck it no matter what time itis. I think the advice we get told to be kind to ourselves continues even way after treatment 🙂 ps I had an itch on my calf for a few minutes and self diagnosedmyself with cancer of the calf then immediately burst out laughing at myself 😕 Lord knows what I'll diagnose myself with tomorrow. My doctor said use the 3 week rule. If the aches are gone by then it's nothing to worry about. We ached and got poorly before the cancer with other ailments and that's not gonna stop after the cancer 🙂
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03-09-2014
04:03
Hi Rowan, so glad to hear you've come out the other end of your treatment and managed to keep a small bit of normality 😄 I'm finished now also (appart from recon) and am certainly making up for lost time and opened my own nightclub/live music venue this year. Very hard work but this is my life and I'm taking it back 😄 Oohh @sisterphonetica I would of loved to have seen Kate Bush but didn't get the time 😞 hope you have an amazing time 😄
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29-08-2014
03:16
Bloody auto correct lol docataxol not tackling 😕
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29-08-2014
03:11
Hi shoes220, I'm from the July 2013 group and now all finished. Thought I'd let you know how I got on with it. I had an allergic reaction on my 2nd dose of tackling so they put me on it for the last 2 doses. Apparently it does exactly the same but with it being coated it is so much more kinder to our poor bodies. It is very expensive hence why its not used as much and I had to phone through the morning of my treatment to confirm I was coming. Now for the bit that is the most annoying and upsetting but great news for you. Compared to the fec and the one dose of docataxol I had it was a complete walk in the park and I recovered so quickly with very little discomfort or pain.Such a terrible shame that this much kinder drug isn't more widely more available and it as always comes down to cost 😞 good luck with the rest of your treatment, I've not long had my 1 year mammogram and all clear and moving on 🙂
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16-07-2014
12:11
Oh and forgot to mention I did buy some of those teeny tiny straighteners to at least tame the fro' for anybody thinking about giving them a try, don't as my lovely nails I managed to grow back are now melted to them 😞 maybe I should of waited til my hair was a teensy bit longer than an inch 😕
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16-07-2014
12:05
I think it's important where possible to keep hold of our sense of humour because with that you can keep smiling 🙂 I try to always look on the bright side and try and laugh at something at least 3 times a day even if it's myself, cliche as it sounds laughter IS the best medicine 😄 Now back to the hair, anyone else have problems with keeping there wigs from rising off there heads. I swear the the flipping bigger my mushroom doo gets the more the flaming thing just rises off my head. I resembled that chap from slade the other day with the fringe it popped up that much 😕
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15-07-2014
12:47
Been a while but needed to vent as I think the rest of the world thinks I'm all grand now, grrrrrr. Quote after a friend heard I'd suffered a mini stroke due to meds "oh I thought you'd be ok now it's been a year" derhhhh!! I can't walk properly and my legs go wobbly, I wake up in the morning and my hands flap about aimlessly til I get feeling back, my hair, my God my hair, even I burst out in hysterical laughter when I look at my ever expanding afro in the mirror. My God if people could See me in my lop sided side show Bob state in the morning 😕 all I can say is Jesus it's a good job I'm single. Oh and now my poor ticker has decided it wants to give me grief so yet more tests, poking and prodding for me 😞 On a brighter note though ars to it it's my life even with legs that go in oposite directions, hands that decide to wake up ten minutes after I do, hair you could loose your tv remote in and a poor ticker that likes to grumble at me now and again. I'll get there one day just like we all will then it's two fingers up to all of it 🙂
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15-07-2014
12:28
Hi Michelle, don't post on here much now just pop by for the odd read but have found myself back on here regularly again with what seems like another load of crap unexpected side effects. I had a mini stroke about a month ago which they think may of been down to the chemo and/or tamoxifen. I now have had 2 ecg's , 2 blood tests, an echocardiogram, my neck scanned, ct scan on my brain, and a holter monitor for 72 hours and they're still no clearer. All a bit bleep off really as at 37 I have previously had no other health issues and was never warned of the damage it could cause. I'm in the situation now that if I take the drugs for my heart I can't take any hormone drugs to stop the cancer coming back as they can't be taken together. They don't half know how to throw it at us 😕 I'm still smiling though 😄 cos after everything Ive been through already I'm not going to let the bastards grind me down (excuse my swearing but it does help) it seems to be quite a common complaint from what I have read up but not one that gets much medical attention or research 😞 I hope you finally get some help and they get to the bottom of it for you 🙂
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28-03-2014
01:13
Hi peanut89, I have been on tamoxifen for 3 months now and no hot flushes as yet. I did however get terrible flushes when I was on the T part of my chemo which also stopped my periods. I have been told that side effects with tomoxifen do ease after a few months as your body adjusts. My side effects at the moment consist of achey bones/joints and my vision goes misty when I'm overly tired. It's all doable though and seems to be easing with time. Fingers crossed for you, whiskers 🙂
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07-03-2014
01:43
Hi Marie, I've been on tamoxifen since November last year and last month I started having problems with my eyesight. The best I can decribe it is like being in a steamed up bathroom. I found it happened between 2/3 times a day and lasted around half hour each time. I phoned my onc dept after a couple of weeks of this and they suggested I stopped taking it to rule it out til my next appointment, well low and behold a couple of days later it stopped. I went along to see my onc after a couple of weeks and the long short of it regardless I have to go back on them as her words " your cancer will come back if you don't" great 😞 I have been told it is a rare side effect and should ease off and won't do my eyesight any lasting damage. I have been told just to go for regular eye tests to keep an eye on it, excuse the pun. I was told with tamoxifen you can get random side effects which come and go over the time you take it so I don't think there is any set time for these things to kick in. Hope this may go a little way in helping you know you're not the only one and it's yet another one of these joyful side effects we have to look forward too. Hope it eases up soon and def worth popping along to your opticians, Emma 😄
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05-03-2014
03:03
Hi Dee, yes I finished all my hospital based treatment in January and am now on Tamoxifen which so far fingers crossed hasn't been too bad. The soreness for me peaked at about day 10 and stayed like that til around 5 days after it finished. It wasn't unbearable and I managed to work all the way through it but I must say going bra less at home was so much more comfortable and I think helped with the healing process. Hope the rest of your treatment goes well, let me know how you get on Emma 🙂
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26-02-2014
03:23
Hi Dellan, I finished 15 lots of rads on January 4th and noticed soreness from around 7. I used aqueous cream from a couple of days before I started right up til 3 weeks after and was lucky to just get what felt like mild sunburn. You can get it cheaply most places and is a great cleanser too so I also used it to wash with instead of soap in the area. Hope you get on ok with the rest of you treatment, Emma 😄 Ps I dont drive but would imagine the only problem may be your seatbelt as treatment goes on so may be worth investing in some sort of padding.
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26-02-2014
02:59
Ps I found sleeping with a flat pillow also eased my neck pains in the morning as I always liked 2 big fluffy pillows before.
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26-02-2014
02:57
Hi Debra, I too have had problems with my neck, collarbone and throat. I was told by my onc it was mainly down to the effects or radiotherapy. I have had what feels like a swollen throat, not sore but like you like I have a lump in my throat. My onc showed me a picture of my xray and it did show it can clip a bit of your windpipe which would cause inflammation. I finished 15 rads on 4th January but have been told discomfort in the areas can continue for a long while after 😞 I feel quite similar to what I did after surgery but was also told the radiotherapy can disrupt all your nerves etc.. that where damaged and moved through surgery. Hope your symptom s ease up for you soon, Emma
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12-02-2014
07:03
Hi Rowan, I'm the same as piggsy and finished 6 fec-T November 12th and finished 15 rads January 4th. Haven't posted for a while but always pop by to see how everyones doing 🙂 I'm an events manager and promoter by profession so the need to attend gigs was a must for me also. I even managed to put on a local outdoor Rock festival halfway through my chemo. I found it important to continue with my life and who I am as much as possible. I think ultimately it kept me sane 😄 I think as long as your sensible then hell to it, we need our treats and having something to look forward to gives you a boost 🙂
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12-02-2014
03:14
Hi Sarah, see your also from our lovely town of Tamworth 😄 there's a really lovely fb group called breast friends who have meetings every month at sacred heart in glascote and also offer local support, not sure if that will be any use to you 🙂
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