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Duchess1
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07-09-2013
13
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09-12-2015
09:44
Hi, yes as you said the different brands can make a difference, I should have tried this first of all! however stopping taking the drug has made a small improvement, I definitely don't feel as down about it all. Don't feel as emotional anyhow. So far so good. Will wait another week or so before I know for definite! Have you any update? Are you still waiting for your scan results? How has your week been? We are having a couple of days away this weekend, hope to relax and enjoy time out. Take care X
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05-12-2015
01:52
Hi, what a week you've had too.... Don't you just hate all the tests/scans etc and the worry whilst awaiting the results, you would think we'd be used to it by now! Fingers crossed for you and do let me know how you get on. I rang the breast care team and they have advised to stop taking the Letrozole for 2 weeks to see how I get on! Keeping a daily diary now until I speak to her again. In the meantime she will speak to the oncologist. she did say that it my help if I use a different brand! I've heard this before have you? Certain brands give more side effects but I suppose we just accept what we are given from the pharmacy. She also said that as my hormones have crashed due to having the oopherectomy earlier this year the GP's suggestion of a small dose antidepressant is a good idea and many women find this helps get their life back together (small price to pay). So all in all I think this was good advice and feeling a bit happier now I've made some progress. Christmas is nearly upon us so let us try to enjoy the festivities despite our health concerns, don't think we will stop worrying as they are ever going to go away completely so may as well learn to live with it a bit better! Thank you for your support, I really appreciate it. Great to talk to you. Please let me know how you get on with your oncologist and results. bye for now xx
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04-12-2015
08:36
Hi Nanny_Sal, thanks for getting back to me, yes the doc did actually listen and was quite concerned, probably due to me having a proper meltdown in front of her! It's been a bad week health wise and I just broke down! Thank goodness I made a list like you told me to do as I couldn't speak! I was having a particularly bad day and very emotional. She has said I am experiencing all the classic symptoms/side effects of Letrozole and advised me to ring the breast care team today, they may need to put me on something else! I am going to do just that. Next appt with doc in 2 weeks, she wanted to give me a small dose of anti-depressants to get me through this blip! We will discuss that further at next appt though. I told her how I had asked to reduce my working hours in order to cope with all these symptoms, her advice was to maybe ask for that on a temporary basis until my medication is under control, sounds like this might be a good idea, what do you think? How have you got on this week? Xx
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28-11-2015
11:41
Sorry to hear that, every scan is another worry, I think you're right about how people are concerned whilst having treatment / tests etc but once that's done you are viewed as back to normal, how wrong are they. We are the foolish ones, if we were to take time off work our bodies may recover quicker, fatigue is another symptom that's not visible to others. It affects me quite often. Good luck with your scan and I will check in again next weekend to see how things are with you and update you on my doctors appt. have a good week. bye for now xx
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28-11-2015
03:40
How strange that we have both felt the same, must be the concoction of tablets that is to blame, everything is such an effort, I do feel better when at home as I can rest in between jobs, don't like feeling fatigued, need to sort it soon! Well so glad I haven't left my job....as you say its just how we are feeling and hopefully it is only temporary! Will hang on in there for a while longer, problem with me is I won't ever take time off sick, would rather use my holidays to rest up. I know it's crazy but I would feel like I'd given in to the symptoms and side effects and they need to be workable, glad you understand how bad it can get because people I work with have no idea, unless it's happened to them of course. Thanks again for all your help, I feel better already just for sharing it. On another note, weight gain from Letrozole doesn't help, I must get back to the gym! X
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27-11-2015
08:12
Thanks for the advice Nanny_sal, I shall do just that, I've just made an appointment to see my GP, it is next Thursday so will prepare a list of symptoms / SE to take with me. I have felt so bad that I have seriously considered giving up my job to sort out my health! Not sure if this would be the right decision and I may regret it once I feel good again. Appreciate your help and will post the outcome on this forum so that it may help others too. X
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27-11-2015
09:46
I take exactly the same as you, not sure if clonidine is making much of a difference. Still have hot flushes and get tingling sensations down my arms. Monitoring this for a bit longer. Good luck with yours x
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27-11-2015
09:35
Hello everyone, I have recently changed from taking tamoxifen for the last 2 years with few SE experienced to the said Letrozole, this due to having ovaries removed earlier this year (found large cyst) and as advised from BC Consultant. Am now classed as post menopausal (aged 54). I had been warned letrozole may cause joint pain but I have leg pain from top to bottom, they sometimes go into spasms as well. Just had physio sessions for posterior tibial tendonitis, very painful foot, don't know if there is a link. The results of my bone scan (which is done as routine when prescribed Letrozole), was not great for my age and now prescribed Adcal. I also have under active thyroid which in itself causes SE such as tiredness. I take blood pressure tablets too and clonidine for hot flushes. I am due a yearly health check in January which could put my mind at rest once had blood checks etc. I am posting this today as I feel rubbish and feel I should go to my GP but don't know where to start with explaining all these relatively 'small' symptoms I am experiencing. After all when you have had a lumpectomy, rads etc these SE are small things to cope with but they are seriously getting me down. I drive to work some mornings feeling so bad I end up crying! Should this be happening. Hoping to get some help from people experiencing similar symptoms and what they did to be able to carry on with the day to day routines.
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23-02-2015
09:16
I've just been searching for links on this topic as I had BC, lumpectomy in August 2013 followed by radiotherapy and 5 maybe 10 years of tamoxifen. Just had surgery, laparoscopic bilateral salpingo oopherectomy which means both ovaries and Fallopian tubes removed due to a large cyst on one of my ovaries. Surgery was advised in order to prevent ovarian cancer as apparently there is a higher risk if you've already had breast cancer. On reading these threads I am worried now that there is still some risk due to not having a full hysterectomy (I was given the choice and decided that a hysterectomy was too drastic). Has anyone had same concerns? I am seeing gynae consultant on 20/3 for results of histology etc. any help before then would be appreciated.
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31-01-2014
07:28
Hi, I have recently asking the same question to others in this forum in order to avoid changing brands. I use Wockhardt and been on these since September, felt strange first few days but all ok since. From the feedback I received it seems that other brands shouldn't make a difference anyhow. Hope this helps x
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30-01-2014
07:10
Thanks everyone, may take the risk and use the supply I've got. At least I will know if I feel any different side effects. Share the outcome with you at a later date.
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30-01-2014
07:08
Thank you, may give the different brand a try and see how I get on. Its a bit of a pain to keep nagging the pharmacy for one particular brand and they don't always have a full supply!
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28-01-2014
07:19
Hi everyone, I have had lumpectomy and rads - finished early November, all has gone well and need to keep taking the tablets now. I've been on tamoxifen since September and so far so good but I am worried about the different brands dispensed at the pharmacy. I recall the oncologist warning me that if you change brand you could experience different side effects. I have just collected 3 months supply and not sure if I should return them and get my regular brand. Am I worrying for nothing? Has anyone had problems with changing the brand. Your help would be greatly appreciated.
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