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amf80
Member
since
15-09-2013
18
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1
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10-10-2014
02:31
Hi all I'm Annmarie, I am 34 and was diagnosed with primary and secondary at the same time about 18 months ago. I live in Leeds with my husband and 2 children aged 8 and 4. I am coming down on the Friday morning so will see you all then. Looking forward to being in a room where we are all a similar age, instead of a good couple of decades younger lol
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20-01-2014
01:44
You sound very level headed and in control. I had surgery first at the recommendation of surgeon and oncologist because tumour was too large and even with chemo wouldn't have shrunk enough to save my breast. I think you know your body and how you will react. If I had my time again I would have them both removed! I don't know if that helps but listen to what you want as well as medical advice and don't be afraid to put your foot down Good luck
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20-01-2014
01:19
I have found the young breast cancer network on facebook a great source of support so just buming this up. https://www.facebook.com/#!/ManchesterYoungerWomensBreastCancerNetwork?fref=ts
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08-01-2014
09:45
Hi Helen, I was diagnosed with primary and liver mets in April and have been on letrozole since beginning of August after chemo didn't work. I have never known my marker numbers other than normal or raised. My onc said letrozole takes about 8 weeks to work which is why I was offered chemo first. I still had a period for first 3 months! My markers were raised at end of chemo/beginning of letrozole but have since been 'normal'. Hope this helps Annmarie xx
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08-01-2014
08:22
Hi Shazza I just sent them a message with my name, age and diagnosis. Asked to be added to any relevant groups and they added me to both automatically. Hope that helps xx
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03-01-2014
03:05
1 Hug
Hi all I keep reading that there are Facebook groups available. There seems to be a couple but wondered which one is for me? I am 33 with 2 children aged 7 and 3 and have secondary breast cancer. Any info or links would be great
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26-12-2013
10:41
Thanks guys. I managed to pull myself out of the 'pit' and embrace all that is Christmas. My children are still young so time was filled with Advent services and Christmas productions. I made sure I went to all of them. If I was at work I wouldn't have been able to. Who knows what each year brings, but what I do know is I am going to fill each one with as many memories and mum things I possible can. Christmas has been sandwiched between scan and onc appointment so fingers crossed for Monday, hoping it sets the right tone for my new year! Hope all you ladies have found something positive and will definitely see you here next year xx
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09-12-2013
09:18
Does anyone else struggle at this time of year? Both me and my husband have mentioned to each other this evening how day to day jobs seem less significant at the moment. Wondered if it was due to time of year
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09-12-2013
09:12
Hi Mel How are you doing? I presume you have your treatment plan now. I had a mastectomy in April and my daughter's main concern was my hair loss. It's funny the things they concentrate on
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09-12-2013
09:03
This might be a bit late but my friends did a basket for me. Random things like books with funny quotes, mindless magazines, baby/face wipes as not allowed to use deoderant. She will have drain bags in so I had some big ribbons to tie round them. Hope this helps
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07-12-2013
09:43
Hi I went to a bcc meeting yesterday at st James', it was good to meet with other people in the same 'boat'. How far are you as might be quite good
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27-11-2013
11:26
I get stiff joints too, mainly ankles, knees and lower back. They slow me down sometimes but I've found if I keep moving it eases. The zoladex is because I'm pre-menopausal. The injections stop my ovaries so that I can take the tablets as well. They aren't bad, certainly easier than chemo. My hot flushes didn't last too long, been on letrozole 4 months and don't get any flushes now. We have to stay positive, what would anything else achieve? However, we have to let it out sometimes: I'm just not good at doing it in front of others! I feel more normal on here though.
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25-11-2013
10:44
In Leeds so not too far away. Been diagnosed since April and had mastectomy week after. I too am on letrozole but also have zoladex injections every month. I think we all wobble from time to time, something has to give now and again. How are you finding the tablets?
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18-11-2013
02:43
Hi all I am 33 years old with secondary breast cancer of the liver. I was diagnosed and had mastectomy in April 2013. My advanced cancer was discovered during my mastectomy so I couldn't have reconstructive surgery. I had 3 sessions of chemo which did not have the desired effect on my liver tumors so I am now on hormone therapy which places me into premature menopause. To be honest, once I had recovered from surgery my symptoms have been fairly low key so I have had time to enjoy my two children (aged 7 and 3). I keep a positive attitude as much as possible but sometimes it does slip. If anyone fancies a chat or meet up if not too far PM me. Annmarie
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18-11-2013
02:40
Hi all I am a little older than you guys (33) and finding this to be happening to many more younger people then I was first led to believe. I have secondary breast cancer which was discovered during my mastectomy so I couldn't have reconstructive surgery. I had 3 sessions of chemo which did not have the desired effect on my liver tumors so I am now on hormone therapy which places me into premature menopause. To be honest, once I had recovered from surgery my symptoms have been fairly low key so I have had time to enjoy my two children (aged 7 and 3). I keep a positive attitude as much as possible but sometimes it does slip. If anyone fancies a chat or meet up if not too far PM me. Annmarie
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