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Jill1969
Member
since
16-09-2013
11
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1
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11-07-2016
12:03
I know what you mean Blanna, if only they could just do that xx I e always found if you need to rant there's someone on forum to give support and be a sounding board too xx
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02-07-2016
08:38
Thank you ladies, I've been fairly ok up to now, I think it's waiting for the scan and with one lot of treatment coming to a end, you sort of start thinking what's next.....perhaps that's just going to be enjoying life for a bit with some luck xx thank you your support means a lot xx
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28-06-2016
08:33
Hi Everyone, I'm new to this thread! I was diagnosed with tnbc in July 2013, had 8 months of back to back treatments then and was fine for a further two years! In February of this year, I started feeling stitch type pain on my left side which was continuous ( had felt that intermittently in the same place a few weeks before diagnosis in 2013) a chest x-Ray showed a shadow in the bottom of the lung and CT showed it to be a 21mm mass! A PET scan showed that to be 28mm x 16mm and a further 4 areas ( 2 more in the same lung, one just outside and a node on the ligament between the liver and stomach). To cut a long story short I've been on Gem/Carbo since then and finished a few weeks ago. Mid point PET showed good response and now waiting for end of treatment scan then a break. Most of what I've read on tnbc with secondaries is quite bleak and in April my friend died who had the same disease as me! I really feel like I need to here some positive stories of people who have had the secondaries for quite some time and they're being controlled please. Don't get me wrong I'm not naive and I know what a horrible disease this can be, but just feel I need to here some positivity xx nice to find a thread of similar people xxx
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02-12-2013
08:05
Hi ladies, I'm half way through now, it's a tough regime, but as Jane said its doable and necessary xxxx you will get lots of support from the groups and everyone feels like you do embarking on chemo because its daunting and we all fear the unknown, but we will all get through it xxxx
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02-12-2013
08:00
Hi ladies, I have one big dose injection and I have all se's you describe Rollercoaster, however some can be se's of chemo too! It is tough, but I'm half way now, I have two rubbish weeks where I don't really leave the house but then one fab one where I'm hardly in! I have a cocktail of prophylactic antibiotics and antifungals as well as steroids and the neutrophil boosting jab, but apart from se's I've stayed well xxx
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02-12-2013
07:48
Hi ladies , I'm sorry I haven't been on here for a while, keep using the fb group! I know what you mean about the confusion over tnbc, lulu has explained it best, much of the research is a little conflicting and complicated x Jill
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07-11-2013
11:57
1 Hug
Hey ladies, I was diagnosed in July, had wide local excision, one sentinel node positive, so went back and had clearance! It was grade 3 and triple negative. I have been wondering, if no mets by the end of next year, whether double mastectomy is a better option? You hear of so many with local recurrence or new Breast cancer. What r your thoughts guys? I know it seems radical, it's just triple negatives don't get the protection that others who have he reception or tamoxifen ?
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07-11-2013
11:42
I've been advised to stay away from swimming when immunity plummets days 7-14 of treatment but then ok, there is chlorine in public pools which levels are checked regularly. I have been and been fine and it has improved movement in my arm x
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17-10-2013
05:06
Ps- the next person who tells me I look well, I swear I will scream! Just a minor irritation in the big scheme of things lol!
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17-10-2013
04:54
Thanks ladies, it will help me having similar people to link with as others are kind but don't really understand what you go through. I have had a few side effects, first weekend was the worse which gave me constipation, nausea, a bit of a sore tongue and the worse was horrendous joint and muscle pain, not a part of my body didn't hurt. Since then I've alternated between loose bowels and diarrhoea and gritty eyes! Oh and bladder irritation was also there the first weekend! Saying that I feel 200% better this week. My oncologist did prescribe a neutrophil boosting injection 24 hours after chemo and on day 5 I was given 7 days of antivirals and 10 days of antibiotics along with the 3 days of steroids around each treatment! Seems a lot but if it protects you through the treatment it's worth it! I'm ready for the hair thing and have got wigs, buffs and beanies in preparation, but that part isn't easy! Saying that, I'm normally I'm a highlights every 6 weeks and straighteners every day sort of a girl! So I wouldn't want to keep the hair at any cost because if I can't do it as I like it I wouldn't be happy. I am seeing this from the other side really as I'm a Colorectal nurse specialist for my job, hugely different being a patient! But as I work with large groups of ill people I can't work through the treatment ( if the first cycle is anything to go by, I don't think I could!). And to be honest, being diagnosed with cancer does make you prioritise, so on the days I feel good, I'd rather spent it with my boys not at work! Luv Jill x
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16-10-2013
09:26
Hi everyone , my first time on here so be gentle with me x I was diagnosed in July had WLE and SNB. Due to positive node had ANC on 30th aug. Started TAC 14 days ago and didn't have the cold cap. It was offered but didn't sound successful at keeping at of it and I couldn't cope with patches of baldness, I'd find that worse. It was nice to read what Monica wrote, and I do feel the same, and I have my hairdresser on stand by to take it off when it starts falling out. I feel a bit in limbo right now, not knowing when it's going to happen. I don't feel I dare go out and I keep getting headache and wonder if that's connected??? Does anyone have any thoughts?
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