Breast Cancer Now Forum

Hi I had a Bicep Picc line fitted on wednesday and had my 1st Gem/Carbo administered thro it. I was anxious about the prodedure but it was absolutely fine  and the best thing I have done. It was pain free and the nurse said "All done and bloods taken" before I even knew that anything had been done. So no more stabbing and jabbing to get cannua in wahoo!!!!! Din't be afraid...go for it.  Hugs to all   Sue x ... View more

Hi I am starting on GEM/CARBO on Thursday for secondary BC. I have just finished 16 months on Capecitabine which I tolerated realy well,but sadly it is no longer working. I am having a PICC line fitted on Weds and feel quite anxious altho I am having a mild sedative beforehand. Is it ok to have breakfast and normal painkillers before the prodecure.  Also what about hair loss?   Cheers in advance xxx ... View more

I have been on Capecitabine for 16months but sadly it is not working any longer. I continued to colur my hair all the way thro the treatment. I use a vegetable only die that has no Parabens and  is vegan friendly. They also do a Hair Multiplier and it does exactly what it says. On feb 11th i am starting on GEM/CARB and awaiting reply from Macmillan Nurse to see if it still suitable.  Hey ho onwards and upwards.   Hugs to eveyone xx:   ... View more

I had CT body scan and MRI brain scan 22nd December and resuls were mixed. Some mets were stable others had reduced but slight progression in Livet Mets. So on Tuesday I have to go for an MRI Liver scan. I have been on Capecitabine for 16months with good results but now Onc may put me on Gemcitabine but needs to see scan results first. There is always something with this bloody awful disease but hey ho I will pick myself up yet again and fight the good fight!!!!!!   Hugs to all   Bazcas xx ... View more

Sorry LIST durr ... View more

I can't see the kist either ??? x ... View more

Hi JulieD yes lets hope this forum takes off for us SBC peops Suze x ... View more

I don't understand this...will just blame chemo brain lol. ... View more

CAn you pleas tell me how to join ...thanks Suze ... View more

How do I join the FB page....help     Suze ... View more

Hi Kittycat   I was originally diagnosed in 2001 with BC and it was ER positive, had mastectomy ,8 session FEC and four weeks radiotherapy. All was fine for twelve  and a half years when the cancer returned to my chest wall. I had major Thorasic surgery  in Feb 2014  and then in march the same year i had a brain met which was blasted with the Gamma knife, also the cancer had mutated into TNBC!!!!!!! In sept 2014 I was diagnosed with secondaries to Liver and Spine and started on Capecitabine. In November 2014 after routine brain scan I had a further brain met so once again I had Gamma knife treatment. I have regular Ct and Brain MRI scans and am on my 16th session of Capcitabine. The last scan results July this year were all fine with some reduction and further stabilty.....so long may it last.I tolerate the Cap well with only side effect being breathlessness and slight flaking on feet. The hospital give me Udderly cream for my feet .  While this all may sound horrendous ( no it's not fun) I continue to have a good quality of life with my wonderful and supportive partner and family. We went to Majorca  at beginning of July and we are off again in two weeks time....wahoo!   Sorry for rambling on, but hope this helps.     Love n hugs Suze x     ... View more

Wow this is unreal...just returned from 10 nights trip to Mallorca and insurance was £261.00 for me and my OH with medical screening, which was quite good compared to some quotes I recieved. Just booked another  holiday to mallorca and Insured through Eurotunnel and it came out at £71.95 for the two of us for an ANNUAL policy!!!!!  All they asked had anyone been diagnosed as teminal and had we been delared fit to fly.   This is such good news after YEARS of scrolling thro' the net for decent quotes.   A very happy bunny   Sue x   ... View more

Brilliant idea!!!!!!   Keep them coming. I have secondary BC but fortunately it has not taken away my sense of humour, for which I am very grateful. Keep smling all you lovely ladies Suze xxx ... View more

We are off to Mallorca for 10nights beginning of July and we got insurance for us both with Insure Pink. It cost us £247.00 for the both of us will full medical cover. I had rediculas qoutes £2300.00 and £1800.00 and numerous quotes that would not touch us.  Good luck and happy hols.   Suze  ... View more

Hi ladies can anyone please tell me if they have taken themselvs off bisophonates. I was on Demosumab and  immediatley after  the 6th injection I suffered terribly sore mouth and tingling tongue. I told Onc I didn't want it anymore so he has prescibes Zometa. I am due my first infusion on friday and dreading it. After saying that I woke up yesterday with an ulcer under  my tongue (very painful). Now wondering if the problem is caused by Capecitabine or maybe a combination. It's so confusing has anyone had similar.   Sue x ... View more

I have used Sylk Lubricant  (prescribed by my GP) for several years now and find it does the job. Just use as required LOL x ... View more