Breast Cancer Now Forum

Good morning lovely ladies. I hope everyone is okay or doing the best they can xxxxx. Saw onc yesterday after we'd been over to see K at Maggies. She'd been to see her hubby and asked him which drug I shout be on to try to get me a bit better so I can later be considered for a trial ! So I'm starting Taxol weekly hopefully soon. Pain in side is back giving me hell again. I said to onc I can feel big lump in side! I showed him his answer was oh yes that's a mass??!! And got back mumbling to himself again!!! Went back over to see K and she said get a referral from GP to hubby. My onc is only a specialist in radiography and not chemos!! Her hubby is specialist in chemo and trials. So fingers crossed. And a huge thank you to everyone xxxx two wonderful ladies have been my wingman and started the ball rolling and kept me form giving up.💜💜 Belinda can I pick your brains later for Taxol ?💜 A massive hug to all my cyber friends,Helen xxxxxxxx ... View more

Thank you Julie for letting us know. Oh,I can't believe our Bev has gone after only a year. She was a wonderful lady,great sense of humour and cyber friend. So very sad to hear this news.RIP lovely lady ,you will be sadly missed. Xxxxxxxx ... View more

Oh,ladies,thank you for all your lovely messages. I have tears rolling down my face reading them. Thank you soooo much ,you get me through the down times,you are all wonderful,very special ladies and I love you all xxxxxx huge hugs,Helen xxxxxx ... View more

Thank you ,Belinda and Tink xxxxxxxx thank you for sendin Bear to deal with that "job"!!! hugs,Helen xxxx ... View more

Hello lovely ladies,sorry I've been AWOL from the forum .thank you sooooo much for all your messages and texts xxxxxxxx they helped me sooooo much as I've been in a very dark place.xxxxx Well to cut a long story short. My C has adapted again after only three months and gone wild😢😢 Went to get lung drained on the Friday back in on Monday as breathing getting much worse so they kept me in hospital. They were going to put a drain in and talc to stick lungs back to getter but had to stop as no fluid ,just filled with Cancer . I was now on 24hours a day oxygen.continued getting worse each day so had a blood transfusion which no difference. The wonderful Rottweiler in high heels at Maggies (Geordiex and juile will know who I'm talking about) was appalled when we told her about dopey onc and how long we have been asking about PARP trials. So off she stormed and spoke to trial doc who said yes I'll see her. Most were already filled but one wasn't She emailed my onc .so we still went to see onc while I was a patient in hospital.He said I've got a message from K to refer you to trial so off he went to refer me ( k,must put the fear of God in him haa haa) So we left and never heard anything so again K was on the case. But unfortunately they can't take me as I'm too ill ! Bit of a catch 22 need chemo to improve ..... I'm now on oxygen 24hours a day at home two machines one upstairs one downstairs,with 100ft os tubing to move around house with, everyone trips over it. My onc even asked if I was a BRCA2 ,God that man ,I could easily ram his Bob Dylan record where the sun don't shine Ahhhhhhh! So after a lot of ringing and sorting from my wonderful sister❤️. I'm back to see onc..Apparently I've only got two chemos left Taxol and GemCarbo and that's it 💀 So I'm not in a good place at the moment, I'll bounce back though,huge hugs, Helen xxxxxx ... View more

Janette,just remember we are allowed "it" to get to us. Regardless of always being positive or happy the gremlins can creep up anytime. There will be a large glass of bubbly waiting for you in cafe. Take care,huge hugs,Helen xxxx ... View more

Orse,that's a load of rubbish. The only chemo ive had was capercitabine which failed after three months. I went straight onto Eribulin . Im so pleased you treatment is giving C a good kicking xxxxx I understand what being TN does to you xxx I had a total meltdown when Tracy (Desi) passed away and now our lovely Bev who's is now out of options. I get my results next Thursday and I'm hoping that the B squatters haven't adapted as quickly as they did last time. Huge hug,Helen xxxxx ... View more

Oh,janette ,huge hug coming your way xxxx. NEVER apologise for your feelings xx We all know what you mean. If you need a cry then cry. I think we put this brave face on all the time mostly for other people. Sometimes it just gets too much and you need to let your feeling out. We are all here for you lovely lady,huge hugs,Helen xxxxxxxx ... View more

Hi,orse, I hope you are feeling a bit more yourself. I'm sorry I can't help you with your line. I've also read about no swimming and baths. If you got it taken out you still may not be allowed to swim as pool water is full of bacteria and if your wound is still healing and low immunity ( especially other countries that don't have same standards ) Hopefully one of the ladies can help. I read on one of your posts your onc said no erubilin,why can't you have it did he say. I'd nag him as its off CDF in July. Huge hugs,Helen xxxxx ... View more