Breast Cancer Now Forum

Hi RainbowRosie, good to hear from you! I am doing well after my reconstruction, I had a stacked diep which is takin fat and skin from your stomach and creating a new breast as I had a mastectomy last July. I have to say so far I am really pleased with the result although it is still early days and it will change, I also had the other one uplifted at the same time. I was really lucky as my BMI was fine, but it must be horrible to be told you have to lose weight, I am not sure why they are so strict about it. When I see Rollercoaster I will tell her you asked after her although not sure if it will be before Christmas. ... View more

Hi Rainbow Rosie, just popped in to see if anyone was still posting! It is great to hear that you are progressing, I think we are all struggling with aches and pains and worrying it is something sinister! Just wanted to let you know, I see Rollercoaster occasionally at an alternative therapy group we attend, she is doing fine, looks really well and seems to have sorted the problems out with her mum and dad, I have just had reconstruction, but may see her in a few weeks and will tell her you were asking about her. ... View more

Hi Girls, also apologies for not being on forum for a while, think I am trying to do too much in the day and then shattered by evening! Chezza, glad you had a good break for half term and fantastic news that rads all finished this week! Hooe you are not too sore! Rosie, I have started swimming, costume with prosthesis are really good, I feel pretty confident in mine and no one would know! The only issue is making sure there is a private changing cubicle which is normally fine and my lack of hair, which I find people do look, but this won't be an issue once hair grows! Lols, hope the energy us coming back slowly, remember it takes time and just take it slowly! Fran, hope you get on going back to work. It won't be easy, so rest when you can. Nicola, hope your thirst is beginning to sort itself out, but great news that tests clear! Hope everyone has a good week and we all improve a little with both aches and pains and tiredness. Wendy, will see you at therapy on Tuesday. All take care xx ... View more

Good Morning Maisie's, hope you have all had an enjoyable weekend. OH took me out for a surprise celebratory meal on Friday re my clear scan, it was lovely but have become a complete lightweight with alcohol, after a couple of glasses felt quite tiddly! Rollercoaster, hope you sort your Carers company out, it is so difficult when your parents get older and need so much care, it puts a lot of pressure and stress on the family, and we could all do without it at the moment! I know what you mean about the hair, my grandson is now 6 months old and I keep looking at his hair and thinking he has got more than me lol! Rosie and Nicola, sorry about your hot flushes and thirst problems, hopefully they will sort themselves out in time, it must be horrible! Rollercoaster, hope your herceptin goes ok at the hospital today, I will be thinking of you, I now have real issues with needles! I have therapy at 12.00 tomorrow, so may see you there. Hope all Maisie's have a good week and take care x. ... View more

Hi Everyone, I have just had some fantastic news, the ct scan I had for my sore ribs has come back clear! I am going to celebrate this weekend, I am so relieved! Rainbowrosie, I am so sorry you are so sore after your rads, I finished on 24th Jan and the area seems ok at the moment but will keep an eye on it. Chezzap, hope your rads go well and as Rainbowrosie says, keep slapping on the cream! Genevre and Lols, my hair sounds exactly like both yours and what bit I have got is coming back a completely different colour! It will be lovely to meet up with you both on the Maisie's weekend! Rollercoaster, it was great to see you again at Therapy, we may manage a bit more of a chat if you are there next week, your hair is coming on a treat and you are looking really well, the break away must have done you good! Anyway hope all Maisie's have a good weekend and hope no one is having problems with rain and floods! All take care xx ... View more

Chezzap, sorry to hear about your dad, you must find it very upsetting, Alzheimer's is horrible, both for the person going through it and the family. Rainbowrosie, hope you enjoyed Coriolanus and had a nice time with your daughter. Rollercoaster, hope you enjoyed your week away in the Cotswolds, will not be at therapy on Tuesday as I am on the look good, feel better morning at Leicester, I am on the mindfulness course, so may briefly see you, if not, I am there the following week at 12.00. Genevre, hope you enjoyed catching up with friends in London and I am glad you are not too sore after rads. I am quite sore, but think it is now improving a week after finishing rads. Do you know how soon I can go swimming, I keep hearing different views? Hope you are well Lols . All have a good weekend xx ... View more

Thank you all for wishing me luck for my ct scan, had it today, went fine apart from they could not find a vein to put my cannula in, so had to get a doctor who managed to do it in the end! Chezzap, hope your rads planning go well, tattoos don't hurt, so try not to worry! Rainbowrosie, the pixie bags are a lovely idea, will look into getting some. Beatrice13, it must be horrible for you having your radiotherapy cancelled all the time, really frustrating! Lols, our dog jumps on the bed with muddy paws if you don't watch her, but she has just had a big op, so she is being spoilt to death at the moment! Getting quite sore after rads, but keep slapping on the cream, so fingers crossed I don't get any blisters! Hope everyone has a good week, take care xx. ... View more

Morning Maisie's, just thought I would report in now rads all completed! Well done Rollercoaster, lucky you, no sore bits! I am a bit sore in the lymph node area, but not too bad, they did say though that it will still work for 2 weeks and you may still blister, so will have to watch out! Looking forward to the weekend in Coventry, it will be great to meet up with lots of you! Rainbowrosie, hope all goes well with your echogram, as you say, surprised it's a Saturday! Chezza, hope you are still enjoying your weekend away! Lots, as you say, I think we all have meltdowns and they do come at the most unexpected times but I think they do us good! Anyway hope all Maisie's have a good weekend, Rollercoaster have a relaxing week and see you in February. I have a CT scan on Tuesday to check out pain I am having in my ribs and also silly cough, so fingers crossed all will be well. All take care xx. ... View more

Hi Maisie's, thought I had better report in, don't know where the days are going,radiotherapy is taking up a lot of the day, today my appointment was 45 minutes late plus travelling time so nearly all afternoon gone! Plus beggining to feel quite tired, think the journey and weather dies not help. Rollercoaster, will not be at therapy next week as cannot Change my rads appointment as Onc want to see me as well, so will now have to wait until rads finish! Am going on the mindfulness course there, so hopefully that should be quite good, if I do not see you at rads or therapy, hope you have a lovely break away and that you chill out away from it all! My hair is very slow at growing and like you all, really fed up with wearing wig, but not enough courage to go without. Anyway hope all other Maisie's are ok and things are starting to improve, all take care xx. ... View more

Evening all Maisie's, hope you have all had a good week, Rollercoaster, 5 rads down, only 10 to go! May bump into you next week although I think most of yours are earlier than mine! Saw Karen from FB at rads today which was lovely to meet her for the first time. Genevre, yes the nails is a se of being on tax, even though as suggested had dark nail varnish throughout and thought they were ok, but just started lifting 5 weeks after chemo! It must be lovely for you now that rads are over and that you will be starting back to work soon. Anyway, hope everyone has a good weekend, take care xx ... View more

Dollybeads, I had a lumpectomy last May and the results came back as no clear margins, so then I had another operation to remove more tissue and also lymp node clearance as cancer was also found in my lymph nodes. I was then told there was still not enough clearance and landed up with a mastectomy in July. I wish I had perhaps pushed for a mastectomy second time, but my surgeon did not think this was necessary, but would have saved me an a operation! (I had 3 in total). I think as you have large breasts you may be fine just having more tissue removed which they could not do with me as I am small busted, but I was fine after each op and recovered well. If you have to have another op, hope it goes well and take care xx. ... View more

Evening Maisie's, sorry I have not been on for a few days but now I am having rads, the day is taken up with travelling to the hospital and back and then snoozing when I get back! Side effects still troubling me, especially achy limbs! Also finger nails very sore and looks like I will lose at least one nail, makes it hard to do much work as they are very painful, especially if I knock them! Rollercoaster, replied to your message, I think! I have missed our chats at therapy and don't think I will be able to make it until the week after next, as have appointment with Onc after rads next week. Hope to make it the week after! Hope your rads are going ok, perhaps we may bump into one another soon! Lois, glad councillor has helped and I agree it is sometimes better to talk to someone who is not a family or friend! Anyway, hope all Maisie's are well and recovering slowly, take care xx ... View more

Chezzap, congratulations on finishing your chemo, it's a great feeling, hope your Se's are not too bad! Lois, yes it would be good for us all to meet up and yes I hope my hair grows by then! Rollercoaster, hope your rads went well today, it was my first one today, went well apart from changing all my appointment dates for the next week, so won't be able to make therapy for a few weeks, which is a shame as it seems ages since I have had a treatment. Nicola, hope your ulcers are starting to improve, it's horrible having a sore mouth, makes you feel really miserable! Still having big problems with aching limbs, will be glad when they start to improve, then must try and get fit again! Hope all Maisie's have a good week and take care xx. ... View more

Nicola, sorry you are having trouble with mouth ulcers again, hope they clear up quickly! For the first time in years I am having a quiet New Year, OH and I are having a nice meal in with a bottle of bubbly. Having a big family meal out tomorrow, so do not want to feel too tired! Feel I am getting an old woman before my time! Wishing everyone a happy and healthy New Year and will speak to you all in 2014! Take care xx. ... View more

Hi everyone, it seems we must all be busy as no real movement on here for a few days! Annie, bet you are so relieved that your rads are all over, well done! Rollercoaster glad your rads planning went well, you start the same day as me, may see you there at some time! Portacath removal went fine, a bit sore, but healing nicely. Lois hope your legs are feeling a bit better, mine still hurt like mad but hope they will gradually get better! Rollercoaster, hope your dad is ok now he is home again and that you do not have any problems over Xmas. Will not be at ICT for a couple of weeks in the new year as it clashes with my radiotherapy, but hope to keep going later in the month. Anyway now is the time to wish all Maisie's a Happy Christmas and a HEALTHY New Year! All take care xx. ... View more

Chezzap, yes, I have had really sore scabs up my nose and they bleed every time I blow my nose, in fact the scabs have been so bad some nights, found it difficult to breath when I went to bed! They have actually started to feel a bit better today, so am hoping they will just continue to improve. Lois, sorry, but I am so glad you have the problem with the legs, I thought it was just me and yes they hurt so much and today they hurt even more and I think it's because I was so busy yesterday! I feel like an old woman when I walk! Not a good look lol! ... View more

Hi Everyone, sorry I have not been on for a while but a mixture of still feeling shattered and getting ready for Christmas! Don't know if anyone else is the same but I have a real problem with my legs aching and going upstairs or uphill is a nightmare, they ache so much it is a job putting one foot in front of the other at times! Had a busy day yesterday, so now am paying for it today, like you say Genevre, I think we have to take it steady, but it is so frustrating! All you want to do is to get back to feeling normal again! Had my rad planning on Wednesday which was fine, all marked up and ready to go at the beginning of January, even got my own gown to use! Roller I think you said you had your rad planning today, hope it goes ok, I am sure it will! Anyway hope all other Maisie's are ok and not feeling too tired, all take care and speak soon xx. ... View more

Hi everyone, Been out for the first time today, Xmas shopping, now shattered, but good to get back in the real world! Taste buds and achy bones and fingers still an issue, but improving by the day which is fantastic. Busy week, portacath being removed tomorrow which I am dreading as local anaesthetic, bit of a wuss! Rads planning on Thurs, so moving forward! Very quiet on here at the moment so hope Se's are improving for us all. Rollercoaster, sorry will not see you on Tuesday, hope oldies behave at Xmas for you and hope you have a good one, see you in January, either at ICT or radiotherapy! Hope everyone has had a good weekend, take care xx. ... View more

Venice, really sorry to hear you have got a PE now, as you you say, just one more thing to deal with and more drugs to take! Hope it sorts itself out quickly for you and take care! Rollercoaster, glad things are improving for you, had a rubbish few days, but if all goes like last time, should start to improve within the next day or so! Lois, yes I tried tonic water and it made no difference, in fact I can't drink it now, water with lots if ice seems to be my favourite drink at the moment! Annie, lost track of time, is your radiotherapy over yet! Rollercoaster,what date is your rads planning, and are you going to the ICT Xmas party? Hope everyone is getting on well at the moment and having plenty of rest (sleep is a real issue for me, any remedies anybody?) and relaxation, all take care xx. ... View more

Hi Maisie's, just thought I would drop in before I hit the sack, just beggining to feel rubbish, dry mouth and going off food, but keep telling myself it is the last time, so just grin and bear it! Chezzap so sorry your plans have been scuppered, it is horrible, but hang on in there, still go and wear your new top and then plan another night out when you can really go mad! Lois, what a pain having to go back to the hospital for your rads planning, but hopefully it will all get sorted! Nicola, sorry you have been in hospital, hope you are beggining to feel better and will be ok for your chemo, let us know how it goes. Rollercoaster, hope you are feeling ok and you are keeping those bugs at bay. Had my injection tonight, drinking loads and basically trying everything to try not to get sick, do not want another hospital stay! Bone ache already kicked in, so think it's going to be a lot longer with the Se's this last one, but hey girls we have got this far, so the rest should be a doddle! Hope everyone has a lovely weekend, rest up and take care xx. ... View more