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imac55
Member
since
23-09-2013
117
Posts
10
Hugs
yesterday
So sorry to hear about your change in diagnosis. Its likely you won't be covered as things stand, and I also think the original advice you were given re declaration to insurers, was incorrect. I want ins excluding BC, but noone will give me it as I'm on chemo tabs. Apart from 1 who quoted £1000! Good luck with your health and your insurance! X
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yesterday
Thanks. It's so demoralising isn't it? Same as you was on exemastane and could get ins with bc not included. But since on Capecitabine noone will do that offer. I'll keep looking! Irene
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yesterday
As I'm not unwell, I'm sure I don't need my cancer to be covered. I'd be happy with insurance for all but. So far only one will covered me and its inc cancer, and £1000 for a week in maderia! I'll try m&s though, thanks! Irene
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yesterday
Hi Windflower I have ONJ left un diagnosed due to covid and at time no dentists open. I was eventually referred via my oncologist to maxilla facial dept who also dragged their feet. I was seen by a doctor, but discovered after undergoing 2 lots of surgery suggested by him, on the bone, that he wasn't an expert in the field! I pushed to see a consultant who put me on long term antibiotics as the surgery wound won't heal. If you have ONJ apparently surgery isn't recommende, the consultantsaid this! Sounds like in your case it was needed though, as surgery interfers with blood flow to the site. So if your wound feels like it isn't healing, it likely isn't. I was on Denosumab for 4 yrs. Been off it a yr but it can still affect the bone up to 2 years on. Its really got me down, especially when the wound smelt foul with infection that wouldn't clear. Lesson learnt, will always ask for Dr's credentials before allowing them to operate on me! Hope it's sorted soon.
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2 weeks ago
1 Hug
Hi, I'm 15 yrs in, 6 with secondaries, 2 on chemotherapy tablets. Disease stable. 3 questions. 1. has anyone ever travelled abroad with no insurance? Possible? 2. Has anyone travelled to Europe and been given insurance whilst on chemo tabs? 3. Has anyone managed to get insurance but with a policy that excludes existing illness. I.e., covered for all but cancer? After hrs trawling, phoning companies and getting knocked back, the only quote I got was for 1 wk in Maderia, £1000 for the policy (just bc, not covid!). I'm so depressed about this. Travel is my thing. Thanks, Irene
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2 weeks ago
I've got same problem even though I'm well! All but 1 said no, that was Insure Cancer. They quoted £1000 for a wk in Maderia! Hol only costs £350!
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13-07-2019
07:50
Hi Nikki08 Thank you so much, it really helped to read your post. I am delaying chemo and going sailing! This health news has affected my fitness regime both mentally and physically, but hoping to still enjoy the trip. I've got my head around the fact I now have limited time, I thought I was invincible! imac55. xxx
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01-07-2019
03:32
2 Hugs
Primary bc I have 2006, mets diag 2015, lung and pelvis. Exemestane and denosumab for 4 yrs, great results, massive shrinkage, then suddenly, lung tumour has doubled in size, tumour markers raised. So, advised to take Capecitabine until it stops working, then onto more heavy duty stuff. So I feel like I've had a charmed 4 yrs, and now I'm slipping towards the precipice of ill health and dependency. I'm gutted. I'm booked onto a holiday of a lifetime, sailing a tall ship, in 3 wks. Oncologist said I can start Capecitabine on my return, mid August or have one dose pre trip. I opted for 1 dose, but now decided I may not ever be fit enough to do this again, and I don't want Diarrhoea on board ship, so starting Aug 22nd. Should I be having my denosumab as normal every 4weeks until I go, and continue on exemestane also till chemo starts? I'm a bit confused about this. Sorry very long text. imac
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01-07-2019
03:07
Thank you, it was great to hear your positive response and how well its served you. Maybe I'll be lucky too! Interesting reading about the feet thing, not mentioned on the leaflet I've been given.
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11-06-2019
01:19
Hi folks, Not been on for a while, trying to live my life, almost 4 yrs into secondary diagnosis. I take exemestane as a hormone blocker for my lung met, and denosumab for my pelvis bone met. Sadly the lung tumour, after yrs of shrinking is growing and has doubled in size since last scan. It was a bit of a shock as I was beginning to feel invincible! Doc thinks it's mutated. He's getting a 2nd opinion but is pretty sure, and has said the next step is to offer me chemo tablets. I know nothing about this type of treatment. I'm reeling a bit, and feel very negative which is unlike me. Started thinking about how I'll die in pain and uncomfortable, and where I'll be buried etc. But really just want to get on with life. I'm booked onto a tall ship sailing trip and also worried I'll have to inform the insurance company of my new health development. Any advice welcome. Thanks.
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12-11-2018
11:05
Thanks Helen. That's a useful tip, but so much more money than my current eurotunnel one. I don't even want or need to be covered for the cancer, I'm doing really well. I'm going to speak to the oncology nursing team on Thurs. See if I am classed as terminal. I'm pretty sure I am as can't be cured. Thanks anyway.
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31-10-2018
10:51
Hi Optimistic Thanks for this tip. I'll give them a go. I now have secondaries and this has been the stumbling blocks today. All are classing me as terminal and so won't cover me, even though I'm really well! Imac x
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31-10-2018
11:42
Hi folks, I've discovered today that my current insurer will no longer cover other than mainland Europe, it is Eurotunnel. My next holiday is Maderia so thats the end of that policy. I had wanted annual for a couple. Last yr with Eurotunnel it cost £77. Unfortunatly, so far the only company that will insure me is Insurecancer, and it will be many hundreds! I am really well, and happy not to include the cancer myself, but need cover for luggage, delays etc. With Eurotunnel I had pre existing illnesses excempt, and no medical questions asked. I just had to declare I wouldn't claim for these/this. Do any of you know of any other companys that will insure me excluding my cancer? I have mets, but recent scan showed no evidence of bone lesion and lung one massively reduced! This is so brilliant, but as I'm still classed as terminal, these companies are being black and white! Thanks in Advance. iMac
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15-12-2017
02:57
Hi lovelies, I've not had the happiest of marriages, and surprisingly, since my secondary diagnosis, my husband has been worse than ever. I walked out recently, but circumstances forced me back. During my absence I registered with an agency to do unpaid work abroad in return for board etc. I'm 59, but was surprised to get an offer of a place, in Spain, easy very part-time work, helping with homework etc, for 6 mrhs, I'm an ex teacher. I'm now in a dilemma re my treatment. I think I can get tablets for this length of time, but I have a mthly injection of denosumab, which is stored cold, and I'm unsure if I could get this without paying big money privately in Spain. Any ideas welcome. It's a great opportunity for me, being in pretty good health re bc. My arthritis is my main problem. I also need to feel useful again. And thrive in the sun. I won't deny it's an escape route, but also an exciting life change at a time when stuff looks pretty bleak at home. Appreciate your help. Imac
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