Breast Cancer Care Forum

Hi Sam, glad you're enjoy painting your pots, must be very therapeutic. I'm doing well thank you, can't believe we're in April already, where's the months going.    Well we're 2 years on now from finishing chemo, time has flown by,  I'm hoping everyone is staying healthy and positive   XXX ... View more

Brilliant news for Jamie Sam, you must feel very proud and relieved. Aaron's just sitting his mocks at the moment, think it's really stressful for them sitting GCSE's and A levels XXX ... View more

Happy New Year to the lovely November Newbies 2013 - love to you all XXX ... View more

Well I'm so not in the Christmas spirit this year, loads of pressies to wrap but I've not got around to doing it as yet, think I need a kick up the bum!  I've booked tomorrow off work so that I'm able to hopefully get everything sorted hohoho 🎅🏼  Even the lights on the outdoor trees aren't up yet but in the hubbies defence it has been windy and wet.   Jane my house is also crazy, we're so unorganised as you see above XXX   Tara you're so domesticated, baking cakes and mince pies sounds lovely. Enjoy your trip to Ireland, hope the crossing's smooth.    Sal hope you're enjoying chilling out with your family XXX   Sam, hope you've done a roaring trade with the pots over Christmas, the hats look soooo cute XXX   Like Tara I probably won't be around now until after Xmas (way too much to do) - Merry Christmas, enjoy and be jolly XXX ... View more

Bloody hell Sal it never seems to end for you! Surely your hospital shouldn't keep swapping and changing your plan like this as you only saw them on Wednesday. I thought a CT scan gave better results over an MRI when checking bones but I guess the Drs know best.    Try not to worry and enjoy your Christmas break with your family XXX ... View more

Ah Alex is definitely a babe magnet Sam, Aarons nearly 16 but not that bothered with girls at the moment, more internested in his PS4.   Jane lovely to hear from you, hope you're keeping well.   Sal the walks on the beach sound lovely, hope you're keeping OK.   Tara I hope you're enjoying being a lady of leisure and making time for "you", it's a must.   Just thought I'd share something I read the other day which disturbed me. Apparently someone had posted on a couple of BC forums but had given contradicting info (which implied they weren't genuine). I find this very sad, especially when theres vunerable ladies on these sites who need to "sound off" and share their thoughts (as we all know only too well). Thank goodness we're a genuine, close group.   In case I don't get much time to post over the next week or so I'd like to wish you all a VERY MERRY CHRISTMAS and a Prosperous New Year   Love to you all   Tracy ... View more

Just checking in to see how you are Sal, sorry I've not been around the past few days to support you. Sending a big thank you to the ladies from the other threads for being there for our lovely Sal 😘   Good luck for tomorrow Sal, I'll be thinking of you and have everything crossed. Go give them hell, it's soooo unfair how they've not supported you through this very difficult time ((((HUG))))   sending loads of love and positive thoughts    Tracy XXX     ... View more

Bloody hell Sal, think Sam has summed it up with FFS! It's so unfair how they've left you hanging. It's bad enough when you've not had BC waiting for the results, I'm not surprised that the uncertainty is driving you crazy, I'd be rocking. I really hope you BCN has the decency to call you tomorrow, it would be very unfair to have to wait until Monday before contacting you.  I know you probably don't feel it right now but you're one tough cookie and we all admire your strength XXX ... View more

Glad you made it through the Scan OK Sal, everything crossed for excellent results back ASAP XXX ... View more

Everything you're feeling is only natural Sal, I'd be lying if I said I'd feel different. I know I'd be so frightened, even if in my heart of hearts I thought everything would be OK.  My worst nightmare is going through the feelings of uncertainty again, sitting there and waiting to hear the results. I have the upmost respect for you. I hope they get the scan results back ASAP and you're able to celebrate knowing everything is OK.    Sendung you loads of love and hugs Sal XXX ... View more

Your BCN might be able to check for results and give you the info over the phoneSam. Think it's worth checking just so you're aware. My BC was invasive lobular grade 2 ER+ 8/8 but HER- XXX ... View more

Sam if you have a copy of your pathology results it should be listed on there. ... View more

Hi Sam, it's the amount your pathology result responded to estrogen (ER).  So 8/8 (ER+) is highly responsive to estregen (receptors / protiens in the cancer cells feeds off the estrogen in your body) 4/8 is borderline, it responds to estrogen but not so high. I think anything below 4/8 is classed as ER negative but I stand to be corrected. ... View more

Not doing too bad Sal thank you.   To be honest the only thing that bothers me is lack of after care (for me anyway). As soon as I finished rads I was signed off from oncology however a friend of mine who was diagnosed 3 months after me and attends the same hospital as I do, still see's her oncologist every 6 months.  We're both on tamoxifen, she was 4/8 (borderline) and I was 8/8  estregen positive however she still gets blood test to check hormones every 6 months. Unfortunately her hormones are on the rise and she's been advised she may need her ovaries removing.  What concerns me is my hormones may be on the rise which will seriously compromise me being 8/8, but how will I know without appts or blood tests. I thought no periods was a good sign (neither of us have had a period for 18 months) however her oncologist said you can't be ruled by this.    Maybe I'm over reacting but it's certainly playing on my mind. I was told tamoxifen for either 2, 5 or 10 years but goodness knows who will make the decision if I'm not seeing my oncologist.    Well feel better now I've had a rant 😀   Have a a lovely weekend all XXX ... View more

Love and hugs swinging your way Sal. Sorry you didn't get the full all clear results you wanted but take comfort in the fact your oncologist isn't overly concerned and that Janes been through a similar situation with a positive outcome. Also I should imagine your oncologist would certainly try talking you out of stopping tamoxifen if they were worried. I hope the break gives you the good nights sleep you need and the aches subside.   Sounds like you've had a fab time in the US Sam, enjoy your remaining days and have a safe journey home XXX   Tara have a fab time in San Francisco, hope you're enjoying being a lady of leisure XXX   Jane hope you're keep well and living life to the full XXX   love to you all   Tracy XXX ... View more

Hello all, I'm still around checking posts XXX   Glad you're getting some relief from the aches Sam, definitely worth giving the termaric a go Sal. I've taken it for over 2 years in a capsule for RA but the paste is supposed to be the business. I wonder if this is why I don't suffer do much with aching joints 😝   Thanks for the recipe Sam, I'm going to give the paste a go.    Sorry you're still going through crap Sal, this new job was supposed to be a new start for you. I really hope things improve for you and you're able to carry on in the job you love.    wishing you well in your new venture Tara, are you still looking into nutrition?   take care all, thinking of you XXX     ... View more

Back in 2013 I had a bilateral mastectomy and 4 sentinel nodes removed. The first node had micro mets but the other 3 were clear so no further surgery was required. I went on to have chemo and radiotherapy to the area as a belt and braces and now just take tamoxifen. I did a lot of googling on sentinel nodes and found not all surgeons go down the full clearance root as often the extra nodes removed are clear. In the US they opt for radiotherapy as long as they get clear nodes (after the positive node) as this helps prevent lymphodema.  ... View more

Hi ladies, just popping in from the November Newbies 2013. If you're her2 positive unfortunately you must have chemo to recieve the herceptin meds (part of NICE requirements). I wasn't her2 but ladies within our group were.    Good luck to those receiving pathology results next week, as others have mention - 1 thing at a time.  Concentrate on the now and break it into stages (surgery, chemo, rads, tamoxifen were my stages).  You'll all get there and be amazed how quickly the time passes when your going through treatment.    Stay strong, wishing you ALL a speedy recovery XXX ... View more

Oh Sal I'm really sorry to hear the new job's not giving you the buzz you need and deserve, you must really miss the children. Big group hug winging your way (((HUG))). ... View more

Good luck with the new job Sal, keep us updated. Tara, no news is good news 😉   Have a lovely weekend all XXX ... View more