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kar235
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since
05-10-2013
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20-11-2014
09:57
Hi Ladies, have been given Anastrozole which I have been on for 6 days now and so far so good. Arm pain is still really bad but after a lot of complaining my GP is sending me for an X-ray today. Watch this space !
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12-11-2014
09:30
Hi ladies, I have an appointment to see oncologist this Fri, and have made a note of the other meds that u have all mentioned. Pain in my upper arm is now so bad I'm begining to think that I must have broken it, how mad is that. Really starting to effect my daily life, and sleep is almost impossible. Anyway, enough moaning, I'm still here aren't I? Will let u all know how things go, thanks again for all the support, keep well x
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12-11-2014
09:20
Hi Helen, how have u been? I get to see my oncologist this Fri. Pain in my arm is still really bad to the point where I've convinced myself that it must be broken, mad thoughts eh. To be honest tho, I can't see myself going thro 5 years (at least) with this, there are alternative meds out there, so hopefully we will get offered something else. thinking of u x
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27-10-2014
01:52
I stopped taking Letrozole a week ago because of the pain in my arm (not op side). The pain was excruciating, I would've rather gone back to the chemo. I rang onc secretary to inform her that I'd stopped and am now waiting for someone to get back to me. Surely they don't expect people to go thro 5 years of pain? I'm ok with discomfort, along with the flushes and the insomnia, but there's only so much a person can be expected to take surely!. Helen go back to your GP or try Macmillan, don't take no for an answer. Thinking of u x
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27-10-2014
01:31
Can relate to these feelings as well. I think that while u are going thro the physicality of treatment your frame of mind is focused on what u need to do to get thro it all. I felt exactly the same when my treatment ended, Ok, time to get back to "normal", when normal didn't happen it came as a complete shock. I'm waiting to join a group therapy session and while it's not everyones cup of tea, I have a feeling it might be helpful. Don't be too hard on yourself, u've come thro a very traumatic time, one day at a time. Take care x
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27-10-2014
01:16
Hi Ann, Thanks for reply. What sort of side effects did u have with the Anastrozole? I had slight joint discomfort when I first started taking the Letrozole, which I could put up with, but 2 months down the line the pain was unbearable. They are aware that I have stopped meds so expect to hear from someone soon. Take care and thanks x
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27-10-2014
01:10
Thanks for your replies girls, they've been very helpful. Been off the Letrozole for nearly a week now and the pain has improved quite a bit, so am obviously thinking was the meds that was causing it. Will write down the alternatives u have given me and see what the onc has to say. Thanks once again for the help, and keep well all of u ❤️ xx
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23-10-2014
08:58
I have been on Letrozole for about 3 months now. Yesterday I decided to stop taking it due to pain in my arm from shoulder to elbow. I saw my GP last night who could find no physical cause for the pain and he suggested it was probably down to the medication. The pain is not on the side that I had my surgery. I am about to ring my oncologists secretary to inform her that I have stopped taking it. Does anyone know if there is an alternative to Letrozole ??. The pain in my arm has improved slightly even tho I've only missed 2 doses. Obviously I'm now worried that if I don't continue with the meds the cancer could return. HELP !!
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18-07-2014
12:02
Thank you so much for your reassurances. I finished rads yesterday and started my hormone tablets this morning. I to want to scream when people say "all over now then", unless they've been there themselves I don't think they realise how traumatic it can be. I'm also worried about side effects from hormone treatment. One day at a time I suppose. I'm going back to work in a couple of weeks time, and have a holiday booked for the end of august, so am hoping these things will help. Always got support here tho, thanks again ladies, I'm sure to be on here if I get these awful feelings again. Good luck to you all xxx
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16-07-2014
09:29
Hi all, Been a while since I've posted on here. I am now coming to the end of "physical" treatment (chemo and radio) and I feel really down in the dumps. I start hormone treatment on Thurs. I don't know how I'm going to move on and back to normality. Can u move on or is this cancer going to control the rest of my life?. Is it possible to go back to how it was before, probably not. Why do I feel like this? The cancer has been removed, my daughter got married and is now expecting my first grandchild, and my son has found the job of his dreams. There are SO many people who are far worse off than me, so why can't I just be happy with what should be a really happy time ????
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01-05-2014
05:34
Hi Stedie, I think the book sounds like a good idea. Do they know about your illness? I have found with younger children that once they know about it they tend to take it in their stride. I feel sure that once they know they will be able to do the same. Take care xx
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01-05-2014
05:17
Thanks so much for the advice. Just taken temp and it's 37.2. Been getting the honey and lemon down me so hopefully be ok by tomorrow. Feel ok apart from sore throat and runny nose. Let's hope I've nipped it in the bud. Thanks again xxx
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01-05-2014
12:27
I have just had my 4th FEC out of 6. I went to visit a relative last week and her daughter was there and full of flu. I left the room and went outside as I was at the 7-10 day stage after chemo when u are supposed to be at your most risk from infection. Woke up this morning with a sore throat and definate signs of a cold starting, should i be worried at all ?? can anyone help x
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25-10-2013
06:54
Hi donata, So sorry to hear you are having such a bad time of it. It sounds as tho you've been thro more than enough already. You should have your results by now and I'm hoping and praying all is well. You'll be surprised by how much strength you have, honestly. Let me know how things went, and don't forget to keep coming back to this forum. There are so many people here to help you, stay strong and keep your chin up, you CAN do it. Sending Hugs xx
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21-10-2013
05:32
Just seen it and replied to you. So, so pleased it all went ok, been thinking of you all day :))
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21-10-2013
05:28
Glad to hear your news Jules. Let's hope you can get some sleep tonight!! Take care xx
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19-10-2013
10:10
Hi Bella, I too have been told that I will have sentinal node biopsy at the same time as my lumpectomy. I'm also a little confused as to what this involves, so will be interested to see what other peoples experiences have been like. Sending hugs, will be thinking of you xx
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19-10-2013
09:54
I too went in to work yesterday and things were a little awkward with some people. I just think they don't know what to say. Feeling better emotionally tho, just taking one day at a time. Thanks for ALL the lovely messages, this forum is brilliant xx
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17-10-2013
01:00
Hi Jules, I think the waiting and the testing is the worst time. I thought I was going nuts last week and that monday would never come. Try and keep yourself busy so that you have something else to focus on(easier said than done I know). I'll be thinking of you and sending out big hugs. Take care and try not to worry xx
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