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Princesspea
Member
since
15-11-2013
15
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09-11-2014
04:15
Oh and I'm HER- and very slighty ER and PR positive. I've been told it's aggressive, gulp xxx
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09-11-2014
04:14
SDP, you have really lifted my spirits, thank you for taking the time to share you experience with me. I hope you continue to recover well from your WBR and that things improve and remain stable for you. I will not lose hope for my children's sake, I want to see some more birthdays. Any tips on getting through the WBR would be welcome, did you put cream on your head? I used aveeno for breast rads and it was fab. Lots of love xxx
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08-11-2014
07:50
Abi, Thank you so much for sharing your experience, I'm so glad that you are enjoying family times. You are so right not to let this awful disease ruin the time that we do have left. We loved our holidays as a family and so hope I get to go on another one even if I can't fly. We only just got back from Tenerife where I was swimming, cycling and even surfing and then felt strange when we go back and boom! It's in my brain! Such a shock for my poor family, i knew something awful was going on but they just couldn't believe me. Good luck and lots of love to you and here's to many happy memories ahead for both our families xxxxx
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08-11-2014
10:17
Thank you for your words ladies, I know tough times ahead but got to be strong for my children, my youngest isn't even one yet as my orginal diagnosis was in pregnancy. How can life be so cruel?! My onc has promised I will make her birthday but beyond that it's scary even to think about. I will check out the thread you mentioned and pm you Jo xxx
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07-11-2014
11:14
I start on Monday so anything you can share on your experiences so far would be brilliant. Good luck xxx
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07-11-2014
11:00
Me too! I'm very scared and gutted to be losing my hair again. Good luck SDP and hope your scan results were encouraging bill-ben xxxx
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07-11-2014
10:50
Hi Sarah, How are you getting on? I have just been diagnosed with brain mets and start steriods and rads. Such a scary and awful time. Sending you all the best xxxx
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07-11-2014
10:46
Hello ladies, I've just been diagnosed with brain mets and wondered whether anyone else out there is dealing with the same nightmare and had any words of wisdom or support. I'm only 35, have two young children and I'm absolutely devastated. How do you keep getting up in the morning and get through the days ahead?? xxx
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24-05-2014
09:48
Thank you so much for taking the time to share such wonderful stories. Reading them gives me a huge boost as not finished treatment yet and have two v young kids so very worried x
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24-05-2014
09:28
Hi Katie, Thank you for replying. I feel exactly the same re having lots of new aches and pains and also on the phone to my GP a lot. She says I need to do some nice things like reflexology etc to help relax and just generally take it easy as I have had chemo, c section and masectomy v close together, already had zolodex and letrozole now and rads to go. You sound like you have the righ attitude as it really is out of our control and we can't let it spoil the 'now'. I feel so blessed to have my beautiful kids and must stay positive for them. It meant a lot hearing a bit about your experience as its similar to mine and it can feel like you're the only one. Good luck and sending positive vibes to you!! xxx
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24-05-2014
10:50
I know exactly how you feel, it's like the best of times and worst of times at the same time! I only got diagnosed in October 13 when 24 weeks pregnant. My gorgeous baby girl had to be delivered early but didnt suffer any issues as a result thank god and is thriving. I have a 6 year old son who has kept me smiling and a wonderful husband who is my rock. I can take all the treatments/ surgery and SEs what I am struggling to deal with is the heartbreaking fear of not being here for my kids. My BC was also grade 3 and although they got it all I'm so worried that it might of sneaked off somewhere to appear at a later date! I guess that's what we all have to live with now and we just have to live in the moment as best we can. Let me know if you have tried anything that has helped you deal with emotional side! Xx
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23-05-2014
05:26
Hi Katfish, I don't have anything to offer re the pain in your breast except to say if they were worried they would have sent you for scans and talked to you about it. I wanted to get in touch as I was also diagnosed in pregnancy and understand how tough that is so my heart goes out to you. I hope your baby is doing well and you are coping as best you can. Xx
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22-05-2014
10:42
Hello, I have just finished chemo and surgery for my BC with one node involvement and have started zolodex with letrozole as had a nasty reaction to tamoxifen. Since the zolodex and letrozole I have been experiencing aches and pains in my back and feeling stiff all over. I had a bone scan in Feb along with CT and both clear but worrying about bone mets. Could my pain be mets even if the scans were clear in Feb and I only had one node affected? Seeing onc on Tuesday to ask to tell him but just wondered if anyone had any experience of the hormone therapy SEs like this? Thank you x
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