Hello lovely ladies thank you for all your kind and supporting words. This thread has really grown and again I apologise for not joining in. I have had a rough few months. Ended up in hospital for the 3rd time a couple of weeks ago. Always with fluid on my lungs:( at Christmas I was in for two weeks with a massive clot on the lungs too! They now have put a semi/permanent drain in and I have a district nurse out every day to drain the fluids. My breathing is still terrible, I'm in a lot of pain so snorting the pain relief! But coughing loads and really congested still. I have no energy which is depressing and my heart rate is crazy. If this current drain doesn't help my breathing they are talking about a procedure on my heart as I also have fluid around there! I don't do things by half!!! Had some scan results back last week and the pacitaxel hasn't seemed to work on me although I only had a few sessions. It seems the cancer is very active and causing the plural stuff so I start eribulin tomorrow. My 3rd chemo since October! I'm worrying they are going to run out of options. My onc is saying he has other options and in around 6 months he said immunotherapy should be available so going to put me forward for that. He has also said that I could return to pacitaxel in a couple of years time but he doesn't want to wait now and just wants to find the right drug for me before I get really ill! I was meant to go back to work last week as I was actually feeling ok when I came out of hospital after Christmas but that's all on the back burner again! Today the Macmillan nurses are coming to visit me from the hospice which does upset me a little as it makes me think is that it for me? They all are saying it's not about that but to be able to offer me any support I need be it pain relief, rest bite help with my boy. Will find out more today. My mum coming back to stay with me today whichbis a great help and support. I feel bad that she does so much for us and I can see her heart is just breaking seeing me like this. I do hope all your treatments are going ok and wish the new ladies lots of luck. Sending lots of love and strength xxxx
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