Breast Cancer Now Forum

Hi Funnyface you really went through it:( they started me for a few days on the tablets to reduce heart rate but my respitory consultant did not agree with it as he felt it gave a false reading and the whole point was to see what was going on. So they have preferred to just go with it. He suspects I may have some inflammation too so has taken a sample of my spool. Today when I went for chemo they were just about to check heart rate and blood pressure as soon as they brought me into the treatment room but I said give me 10 minutes just to catch my breath and calm down! I think I get very anxious as soon as I go into the room and then I'm talking and getting out of breath so they need to think about that too! It helped a bit as the heart rate went down to 118! Chemo itself was fine and went relatively quickly. I felt very tired after and had nap but I was also very jittery from the steroids!! Next week is my week off so very pleased I've managed two weeks!!    How are you doing? Thank you again for sharing your experience it really is interesting to hear and I see some similarities. Sending you a big hug!    Lots of love xxxx ... View more

Thank you my lovely friends for all the well wishes. You guys give me so much strength and although sad to hear you have also suffered with similar issues reassuring I'm not alone and can hopefully get through this! Well had another blip on Thursday when I went to the Cardiologist. Saw a specialist nurse who took one look at me struggling to breath and a heart rate of 157 - phoned the consultant (who I thought I was meant to be seeing) and he decided to admit me again! 4 hours in A&e although a bed had been found for me on the Cardic ward- loads of pointless questions which just wound me up! Ended up two nights in. They did another chest X-ray and echo scan. Nothing had changed apart from the fact the fluid on lungs had reduced! They can't do anything about the fluid on the heart as it's not enough and more dangerous to tackle it. When I saw my respitory consultant who I love and really has my back he said I want you home not in here. You are in the middle of chemo and shouldn't be here!!! So now my steroids have been upped hoping that will help with breathing and cough. Nurses will continue to come and drain - although must have been a mix up today as no one showed! I've spent all day in bed- my lovely hubby has been waiting on me like a princess! i'm just relived they not cancelling chemo as that's what I need!    Anyway enough about me how are you all doing? Lollymum how did you get on on Friday? Hope you are feeling ok.   Sending lots of love xxxx ... View more

Thank you Moijan for the link and love! 😘 Will defo take a look. It actually wasn't too bad as it's quite a quick one which is good and I've opted not to have all the pre meds- well no piroton! Unfortunately there was nearly a blip at the start as my heart was misbehaving and rate was 157!! So u can imagine how freaked out they all were and got me straight in the ecg machine! Left me to calm for a bit and I had one of my anxiety tablets which managed to get it to 150! My onc insisted we proceeded as we are never going to tackle problem if chemo doesn't resume! Felt very drowsy rest of day and I'm still suffering with the plural symptoms but I'm pleased we did it! I do hope I can cope with this chemo. Already I'm happier that it is a shorter infusion! Thank you Funnyface and Moff1 for the love and support. Really means a lot 😘 😘 Lollymum how did you get in on today with bloods and port fitting? I hope it all went ok and you are ready for Friday! Thinking of you 😘 Sending all you lovely ladies a big hug and thank you for being there xxxx ... View more

Thank you Lollymum for your lovely message and I want to send you a gentle hug too and wish u lots of luck for this week. The nurses came today and I felt so depressed as it did feel like they were talking more about the Pallative care. At one point they asked me about end of life and I said I'm not ready to talk about that yet!! I know where this goes but while my medical team are trying to treat me I'm clinging onto that! I also was quite against the idea of having a comode! I know they trying to make life easy for me but again not ready for that!! They have upped my morphine so hopefully that will help with the pain. Their visit did get me down and the relentless coughing hasn't helped! I just need to get my positivity back and really hope this chemo works!! It has got to! Big hugs to u xxx ... View more

No I'm triple negative unfortunately so can't have the hormone treatment. I'm hoping this new chemo will do the trick as none of the others have helped. The fluid is awful as I just feel like I'm drowning:( xxx ... View more

Ps Funny face you are my inspiration. I always mention you when I talk to people about my lung mets. Xxx ... View more

Hello lovely ladies thank you for all your kind and supporting words. This thread has really grown and again I apologise for not joining in. I have had a rough few months. Ended up in hospital for the 3rd time a couple of weeks ago. Always with fluid on my lungs:( at Christmas I was in for two weeks with a massive clot on the lungs too! They now have put a semi/permanent drain in and I have a district nurse out every day to drain the fluids. My breathing is still terrible, I'm in a lot of pain so snorting the pain relief! But coughing loads and really congested still. I have no energy which is depressing and my heart rate is crazy. If this current drain doesn't help my breathing they are talking about a procedure on my heart as I also have fluid around there! I don't do things by half!!! Had some scan results back last week and the pacitaxel hasn't seemed to work on me although I only had a few sessions. It seems the cancer is very active and causing the plural stuff so I start eribulin tomorrow. My 3rd chemo since October! I'm worrying they are going to run out of options. My onc is saying he has other options and in around 6 months he said immunotherapy should be available so going to put me forward for that. He has also said that I could return to pacitaxel in a couple of years time but he doesn't want to wait now and just wants to find the right drug for me before I get really ill! I was meant to go back to work last week as I was actually feeling ok when I came out of hospital after Christmas but that's all on the back burner again! Today the Macmillan nurses are coming to visit me from the hospice which does upset me a little as it makes me think is that it for me? They all are saying it's not about that but to be able to offer me any support I need be it pain relief, rest bite help with my boy. Will find out more today. My mum coming back to stay with me today whichbis a great help and support. I feel bad that she does so much for us and I can see her heart is just breaking seeing me like this. I do hope all your treatments are going ok and wish the new ladies lots of luck. Sending lots of love and strength xxxx ... View more

Hi Debbie I just saw your message and just wanted to send you lots of hugs and say I know exactly how you feel. I've also been newly diagnosed with Secondaries to the lung, chest lymph nodes and One pushing up against my stertum. my original BC was in 2014. So I really understand how you are feeling. There are lots of lovely ladies on here who have been a good support to me so you have come to the right place my love. Hopefully we can support each other and if you are starting the Cape tablets there is a thread for that in the treatments page which is really helpful. Sending you lots of love and hugs xxxxx ... View more