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Suef01
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since
13-05-2014
14
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28-07-2015
10:14
Thanks for the replies. İ have now been taking 75mg per day for a couple of weeks and it has really helped my hot flushescwhich clonidine didn't. Feel like İ have got my life back a bit as a result and also have ear acupuncture weekly to help too. Hope this helps someone x
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17-07-2015
03:59
Thanks for tthe replies, İ had to have it one year after surgery rather than after diagnosis. İt may be different for various NHS Trusts.
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14-07-2015
12:35
İ have been prescribed venlafaxine for severe hot flushes after clonidine stopped working (never worked greatly anyway). İ have neen given 37.5mg twice a day. İ don't have depression so İ just wondered if this dose was too high? Any advice welcome.
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21-06-2015
06:23
I just wondered if anyone else has suffered from a mild lymphoedema even though they haven't had a mx. I had chemo and wle in 2014 and i now have a swelling in the breast and a little bit underneath as well as a slight swelling on the upper arm. Onc says it is slight lymphoedema which is unusual with slnb. Obvs I am worried that it could be a recurrence? Has anyone else had this sort of thing after slnb and lumpectomy rather than mx and axilla clearance?
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21-06-2015
12:30
I didn't have a mx but had chemo then wle. Also just had slnb but one year later the breast is swollen and a little bit undernearh and I also have a swelling on the upper arm. Onc says itvis lymphoedema which is unusual with slnb. Obvs I am worried thatbit could becrecurrence? Has anyone else had this sor of thing after slnb and lumpectomy rather than mx and axilla clearance?
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14-05-2015
08:17
Mine said it needed time for the tissue to settle but coincidentally i have received a general 'under 50s' screening for May 27 which is unrelated to my treatment. I am tempted to take it as my next onc appt isn't until late June. X
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13-05-2015
11:58
Hi, I was diagnosed at the beginning of March 2014 and had neo adjuvant chemo (before surgery) followed by a WLE at the end of July. I have asked my onc when I will get my 'one year on' mammogram but he said it won't be until July as that was when I had the surgery. I just felt that this was a long time after diagnosis. Has anyone else had any similar timescales? Thanks
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29-01-2015
02:49
That sounds a lovely idea and wld have helped me when İ was going through chemo etc. My husband did it all but İ am sure for most people itvwld be one less thing to worry about. Where are you based? X
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01-10-2014
08:59
Hi benjen, İ am in Leeds but would also travel for a meet up. İ am 48, dx March, chemo and in middle of rads at the mo. Would love to join a group and York wld be ok. Sue x
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24-09-2014
06:31
Thanks wax2014, that's interesting to know. I might see about the Clonidine as I am already on amitryptilene for what they are treating as nerve pain from the wle sp perhaps clonidine wld be better instead as it cld treat that and the hot flushes together! Thanks for the info.
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16-09-2014
04:21
Hi, İ think some oncs leave it until after rads. İ asked what he recommended and he said to start straight away so may def be worth asking the question though. İ had def started with the flushes and aching joints before tamoxifen though which İ think could be orstrogen depletion as a result of the chemo damaging the ovaries. İ even have one of those magnets but am worried to use it in case it starts the overies off again as like you İ am oestrogen receptive. Do people think the magnets are good? Might give it a go overnight to see if it helps sleep! X
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16-09-2014
02:08
Hi Linda İ am suffering exactly the same as you. İ also had fec and started with the flushes and ached n pains toward the end of fec and continued afterwards. Then i started on tamoxifen after my op (fec before op) and it has got worse if anything. İ start rads on 25 sept but have already been on tamoxifen for 4 weeks. İ havent mentioned the pains to onc but did re the hot sweats and he thinks it is because the fec put a stop to periods half way thru. İ am 48. Let me know if u have any tips! İ have a chillow but that only helps so much. X
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13-05-2014
09:22
Hi, first time posting, but I would be v interested in a Leeds meet up. When is it and has it already been organised? Any info wld be great. Thanks.
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