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Jules1064
Member
since
14-05-2014
28
Posts
10
Hugs
02-05-2021
05:55
Hi I had a scan where they could see the enlarged lymph node but were undecided as to the cause. I have to have a repeat scan on 12th May. The lump is still there at the moment Good news for you though. Really pleased that your lump is due to the vaccine. Fingers crossed mine is the same. Xx
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05-04-2021
07:48
1 Hug
Hi Jaybro I am used to dealing with my smug husband. Ha ha I have been married to him for 35 years. I often want to bop him on the nose when he thinks he knows about everything medical. I am really sorry to hear about your eye. What a shock. I have never heard of it spreading there. I hope they can treat it and you make a.good recovery. Good luck. Thank you for your reassurance. Xx
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05-04-2021
07:41
1 Hug
Thank you scarlettbea that is really reassuring. I do feel certain it's from the.covid vaccine and I know if it isn't then I will deal with it like I did last time. Its the not knowing that drives you crazy. I'll be glad when I have an appointment date and feel like things are happening.
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05-04-2021
12:23
4 Hugs
Hi I am driving myself crazy wondering if my cancer is back. I was first diagnosed with lobular bc in left breast with 14 lymph nodes involved. I've had chemo, mastectomy, radiotherapy and reconstruction. I went to my GP with something completely different and he noticed a lump near my collarbone. I had had the covid vaccine a few days prior and just thought it was that as my lymph nodes in my right arm where I had been given the vaccine were up and painful too. My GP didn't seem to think so. I am waiting for an appointment in the breast clinic. I am driving myself crazy. One minute I think the lump has gone the next I think it's bigger. My husband just tosses his eyes in the air and says its nothing. But I am scared it's back Jules
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31-03-2021
12:04
Hi Please let me know how u got on. I am going through the same thing. Covid jab last Friday large lymph nodes swollen in collarbone. I am waiting to be re referred to the breast clinic. So scared its come back but wonder I its a reaction to the vaccine. I had BC in 2014 and had mastectomy, chemo, radiotherapy tamoxifen for 6 years and not on letrozole. Jules
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30-03-2021
05:29
4 Hugs
Hi Its a long time since I have been on here. I thought my BC days were in the past. I was diagnosed with lobular BC in 2014 with 14 lymph nodes positive. Had lumpectomy, chemo, mastectomy, radiotherapy, tamoxifen for 6 years now on letrozole. I went to my GP and during the examination he found a large swelling near my collar bone. He was sending me for a scan and chest x-ray but apparently I need to be re referred to the breast clinic. So scared it's back! I thought it might be a reaction to my covid jab that I had had 3 days before but the GP didn't seem to think so. I don't understand how it can come back when I have been on tamoxifen and letrozole. Could it be something else? Julie x
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11-08-2015
11:28
Thank you for your replies. I feel much more reassured. I have made an apt with my gp to get checked out if nothing changes in a couple of weeks. Hoping it's just long term side effects. take care jules
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10-08-2015
07:15
Hi everyone. I had lumpectomy, chemo, mx and rads. Finished treatment at beginning of February 2015. But my stomach and soft tissue area under my ribs feel so tender like I have done 10 rounds in the boxing ring. Some days I don't feel too bad but other times it's so tender. My ribs hurt too if I sleep on my bc side. i feel so worried its signs bc is back and fed up that I will never feel normal again. Your advice would be appreciated. I feel too scared to contact my bcn in case it is something which I know is daft but I am fed up with the anxiety and worry jules x
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14-06-2015
11:30
HR sided with my manager and insisted I return to full hours. OH aren't happy. From the meeting my manager was supposed to write to OH explaining their decision and devise a written timetable detailing how I will take back all my remit. I also asked for some support so I can delegate some tasks. None of this has happened yet. I don't know where all this protection we are supposed to get from the equalities act comes from. It seems all employers need to say is that they have to meet the needs of the service and they can ignore any support they are supposed to provide. I am going to go and see my GP. I have been dogged with wretched sore throats every other week since I went back. I don't don't if it is related to me overdoing things at work. I feel rubbish and totally fed up. I am on leave after Tuesday for a week and a half hopefully I can recharge my batteries Julie
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02-06-2015
10:58
Thanks everyone I have looked up the info you have suggested and taken notes.. I have a meeting with HR tomorrow and my manager. My manager is in bother for not following the nhs sickness policy. I am going to speak to OH again before the meeting. I hope I get more support after the meeting but I doubt it. My manager seriously doesn't take kindly to anyone causing trouble even if it's because she hasn't done what she should. Jules106
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29-05-2015
12:40
i am really fed up. I returned to work as an administrator in the nhs in February 6 days after finishing radiotherapy. I was treated really unkindly by my colleagues in my office and ended up off wk again in March for a further month. When I returned to wk in mid April I was allowed to wk 3 days pw instead of 4 till the end of May. I referred myself to OH as my manager failed to do it and they have recommended that I continue on 3 days for a few more months but my manager won't allow it and I have to return to 4 days next week. I am exhausted but don't know what to do. What's the point of OH if their advice is ignored. Jules
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30-03-2015
07:14
I had was diagnosed with Breast cancer in March 2014 in my left Breast had mx, chemo and radiotherapy I finished treatment in February 2015. I am taking tamoxifen. Yesterday I thought I felt a lump in my right breast. My breast and underarm are sore. I am in panic. I can't face going through treatment again. I rang my bcc who has got me an appt in 2 weeks time with a different consultant as my surgeon is away. I keep thinking it can't have gone in my other breast so quickly and surely tamoxifen should be preventing future cancer. I am really worried Jules
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22-03-2015
01:41
Thank you for all your support. It's nice to know I am not the only one. I thought going back to work was the easy bit and I had had my battle. I sent my friend a really nice email apologising and explaining that I wasn't very well and not coping well with work (not that I felt I particularly had an apology to make) in the hopes we could talk it through. I didn't get a very nice reply. She just said how hurt and upset she was. I am beginning to think she has no compassion. If the situation was the other way round this wouldn't have happened. I have asked to reduce my hours to hopefully give me a better work life balance and just try to move on. I have decided I don't want people who make me sad in my life not that it is really very easy to detatch ones self. Jules
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20-03-2015
12:19
Hi everyone, I am in a right state with myself. I went back to work after 11 months, following lumpectomy, chemo, mastectomy and radiotherapy and I feel wretched. I have ended up going off work again. My best friend in my office who has been wonderful all the way through my treatment has been snappy and unhelpful and I have felt so unwelcome. I have sobbed everyday I have been at work. My manager who has also been wonderful whilst I have been off has more or less said I am imagining the bad atmosphere and how I should be grateful for the wonderful support I received. Which I am but I don't feel supported now. And I know this is ridiculous they have deleted me from facebook which sounds pathetic but it just made me feel even more rejected. I told my manager that my friend/colleague had been unsupportive and should be ashamed of how she has treat me since my return which I probably should have kept to myself. I feel so disloyal to people who were there for me but they don't feel there for me now. I don't know how to put things right. Jules
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09-03-2015
07:05
It seems quite a few of us are going through the same thing. It's right you feel guilty for not being able to perform at the same level which is ridiculous really after what we have been through. I feel like I am causing trouble going to occ health but I need to take care of myself. Starting an 8 week mindfulness course through my oncology centre which helps deal with the psychological scars through meditation. Hoping that helps so I am stronger to deal with the not so kind people at work.
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08-03-2015
11:23
I am experiencing the same thing. I went back to wk 4 weeks ago to a demanding admin job in the nhs after 11 months off wk. I had only finished rads 6 days before I returned to wk. my boss has been great saying I can lead my own phased return but the girls in my office who I thought were friends have been really unhelpful. I have cried everyday I have been back they want me to work as I did before but everything has changed and my thought processes are slower. Got an appt with occ health after I ended up sobbing in one of the managers office when a colleague insisted I took some work back I didn't feel ready to take on. I didn't imagine returning to wk would be like that. It was all I longed for when I was poorlyduring chemo. Julie x
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07-02-2015
07:46
Hi everyone I hope someone can help. I have had chemo, mastectomy and I finished 15 rounds on radiotherapy to Breast and clavicle last Tuesday 3/2 . I now have the constant feeling of thick phlem in my throat. I wondered if it something I should be worried about or if it's just a side effect of radiotherapy. It's driving me nuts with worry. Jules
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06-01-2015
11:33
OMG helenrose your scenario is exactly the same as mine. When I felt so ill during chemo I dreamt of Christmas and happy times. I new the New Year was going to be difficult as I reflected on one hell of a year. My daughter and hubby have been fantastic all the way through so it was such a shock to get the response I got - almost word for word what your sister said to you. It is so true. It does change you. I am a million times more emotional than before. I am so glad you ladies are here
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02-01-2015
02:12
Thanks everyone. It's nice to know I am normal after all. I have gone down with a virus now so I don't suppose that has helped. I am so grateful to be alive but I do feel broken physically and mentally. I keep a brave face on 90% of the time but that is exhausting too as well as the not sleeping hence posting on here at 2 in the morning. I will pull myself up by the boot straps but it's nice to know I can have a wobble on here if not with my family. Here's to a happy, healthy and strong new year Jules x
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01-01-2015
04:15
Thank you Mary. Feel so ashamed that I feel like this. Another night wide awake. Hugs to you too. Jules x
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