This website uses cookies. By clicking OK, you consent to the use of cookies. Click Here to learn more about how we use cookies.
69838members
452online
367084posts
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for
- Home
- :
- About Jules1064
Jules1064
Member
since
14-05-2014
22
Posts
0
Hugs
11-08-2015
11:28
Thank you for your replies. I feel much more reassured. I have made an apt with my gp to get checked out if nothing changes in a couple of weeks. Hoping it's just long term side effects. take care jules
... View more
10-08-2015
07:15
Hi everyone. I had lumpectomy, chemo, mx and rads. Finished treatment at beginning of February 2015. But my stomach and soft tissue area under my ribs feel so tender like I have done 10 rounds in the boxing ring. Some days I don't feel too bad but other times it's so tender. My ribs hurt too if I sleep on my bc side. i feel so worried its signs bc is back and fed up that I will never feel normal again. Your advice would be appreciated. I feel too scared to contact my bcn in case it is something which I know is daft but I am fed up with the anxiety and worry jules x
... View more
14-06-2015
11:30
HR sided with my manager and insisted I return to full hours. OH aren't happy. From the meeting my manager was supposed to write to OH explaining their decision and devise a written timetable detailing how I will take back all my remit. I also asked for some support so I can delegate some tasks. None of this has happened yet. I don't know where all this protection we are supposed to get from the equalities act comes from. It seems all employers need to say is that they have to meet the needs of the service and they can ignore any support they are supposed to provide. I am going to go and see my GP. I have been dogged with wretched sore throats every other week since I went back. I don't don't if it is related to me overdoing things at work. I feel rubbish and totally fed up. I am on leave after Tuesday for a week and a half hopefully I can recharge my batteries Julie
... View more
02-06-2015
10:58
Thanks everyone I have looked up the info you have suggested and taken notes.. I have a meeting with HR tomorrow and my manager. My manager is in bother for not following the nhs sickness policy. I am going to speak to OH again before the meeting. I hope I get more support after the meeting but I doubt it. My manager seriously doesn't take kindly to anyone causing trouble even if it's because she hasn't done what she should. Jules106
... View more
29-05-2015
12:40
i am really fed up. I returned to work as an administrator in the nhs in February 6 days after finishing radiotherapy. I was treated really unkindly by my colleagues in my office and ended up off wk again in March for a further month. When I returned to wk in mid April I was allowed to wk 3 days pw instead of 4 till the end of May. I referred myself to OH as my manager failed to do it and they have recommended that I continue on 3 days for a few more months but my manager won't allow it and I have to return to 4 days next week. I am exhausted but don't know what to do. What's the point of OH if their advice is ignored. Jules
... View more
30-03-2015
07:14
I had was diagnosed with Breast cancer in March 2014 in my left Breast had mx, chemo and radiotherapy I finished treatment in February 2015. I am taking tamoxifen. Yesterday I thought I felt a lump in my right breast. My breast and underarm are sore. I am in panic. I can't face going through treatment again. I rang my bcc who has got me an appt in 2 weeks time with a different consultant as my surgeon is away. I keep thinking it can't have gone in my other breast so quickly and surely tamoxifen should be preventing future cancer. I am really worried Jules
... View more
22-03-2015
01:41
Thank you for all your support. It's nice to know I am not the only one. I thought going back to work was the easy bit and I had had my battle. I sent my friend a really nice email apologising and explaining that I wasn't very well and not coping well with work (not that I felt I particularly had an apology to make) in the hopes we could talk it through. I didn't get a very nice reply. She just said how hurt and upset she was. I am beginning to think she has no compassion. If the situation was the other way round this wouldn't have happened. I have asked to reduce my hours to hopefully give me a better work life balance and just try to move on. I have decided I don't want people who make me sad in my life not that it is really very easy to detatch ones self. Jules
... View more
20-03-2015
12:19
Hi everyone, I am in a right state with myself. I went back to work after 11 months, following lumpectomy, chemo, mastectomy and radiotherapy and I feel wretched. I have ended up going off work again. My best friend in my office who has been wonderful all the way through my treatment has been snappy and unhelpful and I have felt so unwelcome. I have sobbed everyday I have been at work. My manager who has also been wonderful whilst I have been off has more or less said I am imagining the bad atmosphere and how I should be grateful for the wonderful support I received. Which I am but I don't feel supported now. And I know this is ridiculous they have deleted me from facebook which sounds pathetic but it just made me feel even more rejected. I told my manager that my friend/colleague had been unsupportive and should be ashamed of how she has treat me since my return which I probably should have kept to myself. I feel so disloyal to people who were there for me but they don't feel there for me now. I don't know how to put things right. Jules
... View more
09-03-2015
07:05
It seems quite a few of us are going through the same thing. It's right you feel guilty for not being able to perform at the same level which is ridiculous really after what we have been through. I feel like I am causing trouble going to occ health but I need to take care of myself. Starting an 8 week mindfulness course through my oncology centre which helps deal with the psychological scars through meditation. Hoping that helps so I am stronger to deal with the not so kind people at work.
... View more
08-03-2015
11:23
I am experiencing the same thing. I went back to wk 4 weeks ago to a demanding admin job in the nhs after 11 months off wk. I had only finished rads 6 days before I returned to wk. my boss has been great saying I can lead my own phased return but the girls in my office who I thought were friends have been really unhelpful. I have cried everyday I have been back they want me to work as I did before but everything has changed and my thought processes are slower. Got an appt with occ health after I ended up sobbing in one of the managers office when a colleague insisted I took some work back I didn't feel ready to take on. I didn't imagine returning to wk would be like that. It was all I longed for when I was poorlyduring chemo. Julie x
... View more
07-02-2015
07:46
Hi everyone I hope someone can help. I have had chemo, mastectomy and I finished 15 rounds on radiotherapy to Breast and clavicle last Tuesday 3/2 . I now have the constant feeling of thick phlem in my throat. I wondered if it something I should be worried about or if it's just a side effect of radiotherapy. It's driving me nuts with worry. Jules
... View more
06-01-2015
11:33
OMG helenrose your scenario is exactly the same as mine. When I felt so ill during chemo I dreamt of Christmas and happy times. I new the New Year was going to be difficult as I reflected on one hell of a year. My daughter and hubby have been fantastic all the way through so it was such a shock to get the response I got - almost word for word what your sister said to you. It is so true. It does change you. I am a million times more emotional than before. I am so glad you ladies are here
... View more
02-01-2015
02:12
Thanks everyone. It's nice to know I am normal after all. I have gone down with a virus now so I don't suppose that has helped. I am so grateful to be alive but I do feel broken physically and mentally. I keep a brave face on 90% of the time but that is exhausting too as well as the not sleeping hence posting on here at 2 in the morning. I will pull myself up by the boot straps but it's nice to know I can have a wobble on here if not with my family. Here's to a happy, healthy and strong new year Jules x
... View more
01-01-2015
04:15
Thank you Mary. Feel so ashamed that I feel like this. Another night wide awake. Hugs to you too. Jules x
... View more
31-12-2014
11:15
hello I really hope someone can help. I have had a lumpectomy and lymph nodes out in April, followed by chemo and a mastectomy in November. Started on tamoxifen about 2 weeks ago and start radiotherapy in jan. My family and friends think I should be dancing from the ceiling because I have got through Breast cancer but I am not. I feel so low and seem to spend hours crying which is ridiculous. Was on anti depressants before starting tamoxifen but had to come off them as they interacted with the tamoxifen. Got some new ones today as I felt so bad. I have ended up having a major row with my daughter because she thinks I should pull myself together. My husband thinks the same. So why can't i? I should be grateful to be alive which I am but the enormity of it all has knocked me for six. I thought I would be so happy and vowed when I was in the throws of chemo never to be sad again but I feel worse than ever. What is wrong with me?
... View more
31-07-2014
10:29
Just had my 3 rd fec on Monday. The top part of my effected breast feels irritated and tingly. It felt like it a little after my 2 nod fec but went. I worried its cancer spreading or is it just the chemo irritating my nerves. I have already had a lumpectomy and lymph nodes out so I am sensitive on that side anyway. Having mastectomy after chemo. 3 tax to go.
... View more
23-07-2014
08:49
Hi I have noticed a fine fluff of hair growing back all over my head already. Only had 2 fec got my 3rd on Friday then 3 tax. Does it mean chemo isn't working? I thought everything stopped growing with chemo Julie
... View more
02-06-2014
11:01
Thanks. Got scan results. They show a small module in my lung and a small thickening near my spine but the oncologist said they could be anything. Too small to biopsy. Need not to double check. Start chemo on Friday 13th June.
... View more
16-05-2014
08:02
Hi km The pain doesn't go after taking pain killers, changing position or getting my husband to massage the area. Convinced myself the cancer is in my spine. Feel so miserable. It's first thing when i wake up that's the worst and I remember I have cancer. I just want some good news but all my symptoms point to the worst case senario. Also I have a mirena coil and my cancer is ER + . I have a gynae appt on 28th but my breast surgeon said not to worry about it now, the coil will need to come out at some point but I have other things to deal with. Convinced the coil is making the cancer worse Jules
... View more
15-05-2014
06:47
I had a lumpectomy and lymph nodes removed 4 weeks ago. Results show 14/15 nodes with cancer. Just had a full body scan. Now need chemo ASAP then a mastectomy. Grade 3 cancer. I have had lots of pains in different areas of my body since diagnosis but my current nagging worry it pain, tightness and soreness in my back near my shoulder blades. Is this just part of recovery from the op or something more sinister? So worried it has spread already. I didn't have any of these pains before the op
... View more
