Breast Cancer Care Forum

Hi Kelliebear, so sorry to read how much you are struggling at the moment.  I just wanted to add my support for you. Regarding diet:  I totally understand what you have said about diet and Super foods, I’ve been down the “guilt” route about what I should and shouldn’t eat and you can drive yourself crazy with it!! Like Nicky I personally  haven’t changed my diet/lifestyle, I’ve always tried to eat a balanced eat and try to stay active (as much as poorly bones will allow) As for your treatment, I was on letrozole for over 5 years and I didn’t lose weight (my weight has always been around 8st) and neither did I lose my hair albeit it did go very slightly thinner but nothing at all noticeable.  I hope this helps a little. J x ... View more

Oh I’m glad you got it sorted. I’m okay thanks, treatment been a bit up and down due to low white blood count, I’m just hoping it’s going to settle down soon! J x ... View more

Hi Kate, sorry only just seen this but I think your questions have been answered. You have the option to give the parcel straight back to the driver (if you manage to catch him!) I haven’t cancelled it on the government website because I don’t want to lose my supermarket delivery slot. Like you I also live in a small cul-de-sac and don’t want my neighbours knowing but like my hubby said it could be a delivery of anything eg amazon?? Take care J x ... View more

Hey Kinden that’s brilliant news for you!!  I bet that is welcomed news for you in these horrible bleak times we are all having, I’m really pleased for you, I’m praying Fulvestrant and Ribociclib has the same effect on the little blitters invading me!!! Had bloods done on Monday and yesterday onc called to say wbc is fine again now so back on the Ribociclib today! J x ... View more

Nicky, maybe you could leave a note on your door to let the driver know??? I think I will do that, I don’t want to change anything on the website in case it messes up my ASDA slot! J x ... View more

Yes Pawsome, that’s what I’m going to do, hand it back to the driver. Hope everyone is keeping well and enjoying the sunshine! J x ... View more

Morning Nicky, yes I’ve done exactly the same thing with the food parcel, it was a lovely surprise getting it yesterday as I really wasn’t expecting it but I said to hubby that we don’t actually need one as we now have a reoccurring delivery slot with Asda, it’s unfair to get get one of those and also a delivery slot, the food parcel would be better going to people who are more vulnerable like you say so I’ve also opted out of this too. J x ... View more

Morning ladies, well I had a knock at the front door this morning, there was a guy dropping off a big box, had no idea what it was, he said it’s your government food parcel!! I was gobsmacked, really wasn’t expecting this, and the stuff that has come is really good and I can use it all, so at the moment I can only praise this government food/shopping scheme! A recurring delivery slot with ASDA and  a food parcel all within 4 days! J x ... View more

Maybe it depends where you live??? I registered on Monday evening and got emails from the supermarkets yesterday, I didn’t try getting a slot at Sainsbury’s or Tesco I only did ASDA, the first available slot was 4th May, so not too bad really. J x ... View more

Hi ladies, to wanted to say thanks for the info re: delivery slots, I got my shielding letter, registered on the government website and had an email from Sainsbury’s, Tesco and ASDA already, I’ve booked a reoccurring delivery slot with ASDA. J x  ... View more

Hi ladies, feeling a little fed up today. just had my telephone consultation with onc, bloods low again, that is with a dose reduction to 400mg too (Ribociclib) got to go back next week to get them repeated. Also given scan results (first one since starting this new treatment) slight increase in size but only by about 2mm she didn’t seem overly concerned because I’ve not been on this treatment very long plus the hiccups with the low WBC and having to keep stopping them. She did say if it carries on dropping we might have to look at chemo which scares the life out of me!! Has anyone else had a similar experience on Fulvestrant and Ribociclib?? J x ... View more

Thank you pawsome, I’ve just done, it’s pretty quick and easy isn’t it. J x ... View more

Ah okay thank you seabreeze, I have been trying to sort out a delivery but so far been unsuccessful, I can’t see anywhere on ASDA for “vulnerable delivery”  I will log on to the government site. J x ... View more

Well I’ve received 2 shielding letters today, one from my GP surgery and one from The Christie. Going to try and book a delivery slot now!!  J x ... View more

Thanks for the info ladies, I think I will get in touch with my gp or oncologist secretary tomorrow for a letter so I can see if I can get a delivery slot sorted. J x ... View more

Hi Nicky, yes I totally understand what you’re saying regarding putting your daughters at risk getting your shopping, our daughter and her husband have been trying to get pregnant for the last 6 months (although they have now slightly put the breaks on due to corona) so I would be devastated if she got infected at the moment whilst getting our shopping, I know it’s not ideal but hubby goes for the main shopping once a week (armed with sanitiser) and I only ask our daughter to get me stuff if I’m desperate.....hubby is not a the best at shopping 🙈 I’ve tried day after day to get a delivery slot but it’s absolutely useless you just cannot get one, so what else can we do!!! I’ve also registered on the government website but got a text back saying I needed prove of a letter which I haven’t received! we go go for a walk every day, it’s pretty quiet here and most people are very good with the social distancing and they cross the road if anyone is walking near, it’s about balance and being sensible isn’t it, it’s very scary though, I keep thinking which one will get me first cancer or corona!!.......total nightmare! J x ... View more

No WMJ, it was about 5 weeks ago when Coronavirus got serious in this country. J x  ... View more

I’m also under Christies but haven’t received a letter however my oncologist did ring me and told me I need to do the shielding for 12 weeks due to being on Ribociclib. J x ... View more

Pawsome, I’ve sent you a PM. J x ... View more

Yes Pawsome, it is an excellent hospital and I feel very lucky to be treated there. Unfortunately my onc is leaving (not Christies just the breast dept) and she’s been looking after me for over 6 year’s now so I’m a bit sad about this and it will feel strange getting to know someone new but I’m sure she will be excellent too. J x ... View more