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tracy2905
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21-05-2014
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13-06-2015
11:26
I was suffering severe side affects mood swings.. bleeding gums..weight gain. Hot flushes. Joint and knee pain.. anxiety..and a whole heap more after 10 months of tamoxifen.. I took myself off them after 10 months and now been off em 1 month. My quality of life is improving. I came off my tamoxifen cos my statistics using them was less than one per cent so please talk to someone first. .. I made my own decision .xx
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21-09-2014
10:11
Totally fed up of the whole experience and there's absolutely nothing I can do... I am sick and tired of this constant worry I find myself in and ime pretty sure it's these tablets messing with my emotions..
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21-09-2014
04:31
I have been on tamoxifen for 6weeks and quite frankly I feel like an emotional wreck.. I stopped sleeping so was put on sleeping pills.. My joints ache like ime 90..ime 43... My emotions are all over the place as worry and anxiety over future reoccurrence of BC..I cry..... Is there an alternative to this tamoxifen... How do I find out my reoccurrence with nd with out tamoxifen as have been told my BC sayge 1 grade 1.. Is estrogen based as per menopausal... Sutrely if its estrogen based there is other stuff I can take to do the tamoxifen job without all the side effects.. I have2 kids and I think its very unfair to them to b seeing me like this ..
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12-09-2014
09:45
I am looking to stop using tamoxifen. Does anyone know if I can take dim instead of tamoxifen
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10-09-2014
08:48
For Debbie Howes It's a bit long sorry... There are different kinds of oestrogen, some good and some bad, which are in the liver, gut and fatty tissue. Some things can help to assist in draining out dangerous oestrogen. Methylation in the liver is one of the most important issues. Lack of nutrients, gut problems and stress all contribute to poor methylation. There are food sources and supplements which contain B2, B6, B12, magnesium, folate and betaine. There is also an enzyme in the gut and liver that encourages oestrogen to feed cancer. Something that is used to reduce this is called Calcium-D-Glucurate. Also, 2methyl hydroxy is the good oestrogen and to be encouraged (soya,flax, omega 3, turmeric, vitamin D) and 16hydroxy is bad, however the ratio between these two is important for health, as long as 2 is much higher. A product called DIM is used to help the ratio of 2 to go higher and 16 to be lower. Inflammation also causes the body to produce more oestrogen, so taking fish oil, turmeric and adopting an anti inflammatory diet, less meat and omega 6 will help. Pollution and chemicals cause oestrogen mimics, so being mindful of that. Plastics are a big source of BPA, which especially when heated with food and drink is very toxic, so heating or storing food in plastic will release chemicals into food and drink. Any cleaning fluids and some beauty products, breathing in petrol fumes when filling the tank will all have an effect on disrupting oestrogen metabolism. A good source of fibre like psylium husk will help to bind and flush out circulating oestrogens that would be re-absorbed if bowel transit is slow. There is much more to discuss on this fascinating subject. I will be doing some talks on this sometime soon. There are also tests to see how oestrogens are behaving and what is low or blocked for you. In short we all had our health weaknesses before we got diagnosed and it can be very helpful looking back on our health map to see what can be done. If youwant to ask anything or order products, I can give you the details.
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10-09-2014
08:07
Yep hun ime realising this.. not as clear cut as folks like to think is it. Some people think you should b done and dusted now the ops etc are done.. If only .. keep smiling hun.. its gets us through xx
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09-09-2014
11:39
I thonk u may of just given me some insight to why I keep waking up at silly o'clock all through the night lol Never dawned on me it b the tamoxifen.. I only been on them a month and every night for about 2 weeks ime awake every couple of hours.. thought it was just me working my mind over time and not being able to sleep x
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09-09-2014
06:13
HI Since being diagnosed and treated with bc and mastectomy in July 14.. grade 1.. stage 1.. but Hd mastectomy because of another benign tumour being present..aparently I am pre menapause and hve now been placed on tamoxifen til I reach menapause.. I keep reading ladies taking DIM and TAMOXIFEN.. whicb I am debating to do myself along with tum Eric. . Can anyone give me some insight please as prevention is always better than cause x
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01-09-2014
07:54
And perhaps because I opted for the mastectomy I didn't need the chemo. Not sure if I mentioned I had that in my original post
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01-09-2014
07:45
Thankx for the answer hun. Just to say I never had chemo. . I wasn't offered it as was expecting radiotherapy to be offered.. but surgeon said no just tamoxifen. Do u think I should question this to my surgeon x
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01-09-2014
10:55
My weight is 8 St 7 lb. .and ime 5 ft 4 inch in height.. The numbers on my letter when leaving surgery are er 100...pr 96...ki67 4%....her2+..... which mean absolutely nothing to me and we're not explained..right breast invasive ductal carcinoma grade 1 8.5mm. ...0/3 sentinel lymph nodes....ime quite active as have a 5 and 13 years old so I see that ad regular excersise.. I gave up smoking in may 2014...and use ecig...tamoxifen has been prescribed for 2_3 years as aparently I am pre-menopausal.. which I didn't know that either til my local surgery offered me my surgeons letter lol.. Not wanting to spend any u necessary time on tamoxifen as they can lead to further problems.. so looking for alternative but not wanting to put myself in any risk of further cancers.. can anyone make sence of that please or advise me .. thanku in advance xx
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31-08-2014
10:17
Since June 2014 I was having mammograms. .needle biopsy s...scans.. etc etc..July I had snb..3 nodes clear and a mastectomy due to bc.. which was stage 1..grade 1.. but had the whole breast removed because there was another tumour present but was not cancer..I got the all clear from my breast surgeon on the 12 August and placed on tamoxifen for 5 years. With a shake of the hand and told I would b seen in 6 months.. Which shoukd all b really good news but I can't shake these ever increasing feelings of doom that the cancer is going to come back some where else bigger and stronger.. is this normal or should I be seeking advice am I depressed.. I have no idea what is surprised to b the norm to b honest. Has other ladies felt like it's and what did you do..to get rid of these terrible feelings please
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24-08-2014
11:52
Hi anx56 Had to reply just to say I know exactly were your coming from.. I had a mastectomy for my pleasure of bc.. snb..3 nodes removed. .All clear and yes folks reaction.. They caught it early u will b fine lol.. its like it just a trivial little illness you have and u will b fine.. I have come across so many blasa responses to catching bc early it makes u angry.. I lost my right boob. . Invasive surgery.. numb in what used to b a boob... drains for 10 days.. now for my trivial catch it early bc I am stuck on hormone tablets tamoxifen for the next 5 years.. which for that little pleasure at 43 I am being forced to experience menopause. . And all the little delights that's coming with it like hot flushes.. constant joint pains.. mood swings to die for.. weight gain lo and ime sure I could real more off .. but let's not forget.. They caught it early so we will b fine lol.. My rant over lol All good fun don't you think lol. Keep song chuck.. xxx
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24-08-2014
02:08
I usually take my tablet in am but nit a breakfast eater to b Honest.. does it actually make a difference changing time of tablet taking then.. my daughter thinks I have split personality niw as the mood swings can be very unpredictable. . The bloating and stomach cramps never seam to leave. Feels like a constant period pain..and as for the joints.. I think I need oil as I feel like a rust tin man.. any ideas on what times if that can change the symptoms. . Do they subside over time then anyone know and if so how longish plz x
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23-08-2014
10:52
I have been on tamoxifen for 10 days now and wow I feel old.. ime 43 and so far I have stomach cramps like period pains.. Back achieve. .joint feel really stiff and ache.. tired.. mood swings.. my god even I dont like living with myself. . Lol.. how long does this go on for does anyone know
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15-08-2014
06:58
Think ime a little in shock or perhaps all the worry g hasn't caught up with me... GeeG. . I do hope you get good results.. and the waiting is agonising isn't it.. I feel for you Hun.. be patient and as hard as it is keep a positive mind. Let me know how you get on hun xx
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15-08-2014
04:37
After just having a mx and snb and finally on Tuesday been given the news the bc has gone.. I have been put on tamoxifen 20 mg for 5 years.. I have been reading risks concerning womb cancer etc and other side affects... should we be worried even though prescribed these tablets.
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