Hi Stoney, Sorry you have secondaries/boney mets, I too have SBC which is in my spine, rib & pelvic areas. I was diagnosed with SBC from the beginning, had bilateral BC double mastectomy & straight onto hormone treatment, which has kept the disease stable since! My treatment hasn’t changed and I was initially told that if one of the drugs stopped working they would try something else. There’s new treatments being discovered and def since I was diagnosed. It’s scary when you have young children, but hopefully my experience will give you some hope 😊 I’m on Letrozole, Ibandronic acid, adcal d3 & Zoladex injection. Hope this helps..sending virtual hugs x Vanda
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Hi Lommey, I find myself in a similar situation to yourself. Diagnosed 8yrs ago with bilateral bc and secondaries in my spine,rib & pelvic area at initial diagnoses. Been on hormone treatment after having bilateral mastectomy’s and disease been stable. Just before Christmas 2019, ct scan picked up “multiple tumours” in my lymphnodes in my neck,biopsy revealed it’s triple negative, it had initially showed on a scan april 2019, but i wasn’t told!! i had ultrasound done as scans are back logged due to covid. it showed largest tumour has grown by 4mm, i know that’s not a lot but it takes the tumour to 35mmx16mm 😔 anyhow i’m now waiting to start radiotherapy..don’t exactly know or understand what it will do but I know it’s worrying and scary!
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