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Mawfred
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since
08-06-2014
6
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31-08-2015
02:22
I had breast cancer in 2012 with all the usual treatment: chemo rads surgery herceptin and tamoxifen which I've taken for 2 years. Over that time I've had increasing bone pain- initially into side then my hip and latterly my spine and neck. After a lot of thought I stopped tamoxifen in the hope that it was the cause of the pain. One month later the pain has worsened. I have had 2 bone scans. The last one a year ago. No cause for concern. I don't know where to turn. I understand that scans have there own risks but I cannot come up with any other plausible explanations for this persistent debilitating pain. Because scans have shown nothing I realise Must seem like a time waster but there is genuinely something frightening going on in my bones. I have contacted my breast nurse and she will speak to the consultant. Is it likely that bone Mets would have gone crazy in the 4 weeks I've been off tamoxifen? Should I keep pressing for answers? Can anyone suggest a course of action?
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17-12-2014
04:46
Catlady thanks for your speedy reply. I have taken tamixifen for over a year but stopped when I got clear bone scan. When I restarted bone pain in back started so I stopped again. I haven't taken it for 5 months and pain is worsening daily. Don't feel I can blame tamoxifen when I haven't taken it for so long.
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17-12-2014
04:27
I wonder if anyone can advise on the length of time between experiencing symptoms and finally being diagnosed with secondary cancer. I have ongoing bone pain which us worsening and popping up in new locations fairly rapidly. I have stopped tamoxifen and if anything pain is worsening. In august a bone scan was clear and my gp is reluctant to take further action. I will attend breast clinic in January. I have been experiencing pain for over a year. It seems to me that if it can't be seen it's assumed not to be not exist. Has anyone else had this experience? I have pain in my thigh, side and upper back. The pain in my thigh is burning whereas in my upper back I feel as though I've been hit with a mallet. My shoulders, knees and wrists also hurt but as this is symmetrical I'm guessing it's not sinister.
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10-06-2014
05:23
Thanks for the advice. I think my GP thinks I am neurotic and worrying needlessly. Have an appointment with onc soon. Fingers crossed. Just want to feel the way I did pre diagnosis.
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09-06-2014
05:50
http://well.blogs.nytimes.com/2014/06/09/outsmarting-breast-cancer-with-evolving-therapies/?_php=true&_type=blogs&_r=0
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08-06-2014
08:12
Ladies, I'm looking for some advice. I was diagnosed in Aug 2012 with 2cm, grade 2 tumour. No spread to sentinel nodes but one breast node was affected. Had chemo, rads, herceptin and tamoxifen. I have recently started to experience dizzyness and pressure in my head. No headache or nausea. I have had an odd niggly feeling in my head for about 6 months and I had one occular migraine a few months ago (Quite frightening as had never experienced anything like it before). Nobody is concerned. My doctor recently said she was not concerned about brain mets. Howeve, I feel awful. Have been dizzy for a fortnight, neck feels stiff and waves of pressure in my head. I know my statistical risk is not high but am confused by docotor's lack of concern especially when I read other people's stories. I would be really grateful for any advice. I am petrified.
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