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LovelyM
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10-06-2014
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12-06-2014
01:02
It sounds as if you've made a good, well-thoughtout decision. I hope you have a fab fortnight away and are able to leave the disease behind you...you don't say where you're going - somewhere hot obviously! As far as my treatment goes, the 20 cycles are from December 2012. I started off 2 weeks on, 1 off but after 1 cycle the dose was reduced and I changed to 1 week on, 1 off, with 4 weeks = 1 cycle. Since then I've had 1 more dose reduction. I know many folk have trouble with sore hands and feet but I haven't experienced that - my main problem is with fatigue, which is something that has plagued me since secondary diagnosis in Feb 2008. I'm also on lapatanib tabs daily and zometa infusions every 8 weeks. About once a month I have the trots and extreme fatigue, meaning I have to spend a couple of days in bed but normally other than that I'm reasonably well. I hope it suits you too and does the trick with the cancer. Give yourself lots of time to rest over the next few days as travelling can be pretty exhausting too. Have a great time x
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11-06-2014
10:34
Welcome CathC. You're right, none of us wanted to take this journey, but it's a darn sight better to take it in the company of other strong women! Good luck x
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11-06-2014
10:15
Hi Bev, glad the anxious wait is over and at last you know what you're dealing with. It seems to me you've made a good decision to go with cape - the peachy tablets. I had IV Taxotere and struggled with it but have been on cape for 20 cycles with bearable side effects. (Let's face it, nothing's perfect) However it's taken 2 dose reductions to get it working satisfactorily - before that the fatigue was not good. No one can say whether you'll do better to go away now or delay your holiday, but if it was me I DEFINITELY wouldn't go away without full insurance cover - far too risky. Also I'd be in too much of a state wondering about starting treatment and what the untreated cancer was up to! Since you asked the question - yes, I think you'd be well enough to travel 14 days after last cycle ends, and if it was me that's the option I'd go for. Especially as you've checked out flights, apartment etc, and it'll give you a chance to make sure you have the right insurance in place. Good luck and remember there's no right answer, you must do what you think is best x
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11-06-2014
06:32
Thank you everyone for your comments. When I'm well I tend to forget how miserable it is when I'm poorly, and, to be honest, quite a lot of the time I'm pretty well. No problems with my hands or feet (though an ingrowing toenail is causing me gyp at the moment - it's sometimes the little things isn't it?). I had a period of quite severe depression about 4 years ago and have remained on anti-d's since then. Having experienced depression I know I'm just a bit low at the moment, and that it's just because I've had a run of minor infections. But I will go to the GP tomorrow to get checked out. I'll bet you £100 he'll just confirm that I'm vulnerable to infections and hang on to them longer than your average bear! Hats off to my husband who actually made mashed potato from scratch yesterday - did one of you have a word with him?! It's good to know I'm not alone - browsing the forum has shown me that. Heads up, chests forward and proud everyone!
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10-06-2014
01:11
Just wanted to come on to say that the days before scan results are hell. My aunt calls it sweaty palm time. By now you'll have your results Bev. I hope they're good.xxx
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10-06-2014
01:06
Hi - it seems as if I've been living with cancer longer than I've been living without it. I was diagnosed with primaries in 2001, bony secondaries in Feb 2008. Have managed various treatments, some better than others and am currently on capecitabine and lapatanib along with zometa infusions. This regime has been since Dec 1212 and is working really well. Latest scan showed no active cancer - the first time since secondary diagnosis, and my hospital visits have been reduced to every 8 weeks. But I feel so tired of it all. Some days I feel fine and can live a life, others, for no apparent reason, I can't get out of bed. I go down with anything that's doing the rounds (last week I was in bed for a week with a random virus) then yesterday I had the trots and once again had to cancel my plans and let down my daughter who I was supposed to be helping. My husband's finding it more and more difficult - I'm supposed to be alright yet I'm stuck in bed. And if I have to eat another readymeal - why won't the bugger cook? Is it like this for others out there? And if so have you found a way to cope? I have fewer friends than I used to, and if I make arrangements to see them it's as likely as not I'll have to call it off. When they talk glowingly about how many women are surviving with secondary breast cancer they never tell you what that life is like. Talk to me someone, please!
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10-06-2014
12:50
Hi - my first time on the forum, so not sure what I'm doing! But I read your post about Slimming World and need to tell you that at least for me it's been brilliant. I've got secondaries in bones and lung and am currently on capecitabine and lapatanib. I've been on herceptin in the past but that's finished now. Like you I put weight on during chemo but I lost it all, plus a little more. I love the diet, the food choices, and yes, I upped my exercise, but only a little as I couldn't manage much. Hopefully it's working for you too.
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