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MysteryMouse
Member
since
25-06-2014
310
Posts
24
Hugs
3 weeks ago
Hello So ive just been seen in hospital because of on going ulcer and trauma in mouth and they think it's caused by upper wisdom tooth. They advised taking tooth out but because I'm on Ibandronic Acid they advised it may not heal so not a good idea so will file down instead but will prob need tooth removed in future when off Ibandronic Acid. I'm taking Ibandronic Acid for another 2 years. Would it be possible to maybe stop taking it for a month or so and have the extraction and then go back on it or not? Thanks!
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22-04-2020
11:02
This is an interesting post.Jaybro. Im still on the usual hormone therapy and I had sepsis in Feb which badly affected my breathing and still having other side effects from it but although I was advised by GP that I needed to be careful have not received a text or letter to say on shielded list. Am being very careful but didn't consider myself in the shielded group when I read the list on gov site. Now a tad confused. MM xx
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31-03-2020
08:50
Thanks Pawsome and Fezzy1952 for your replies. I feel more reassured now so I will just try and go with the flow and see what happens and hope for the best. I was just anxious about getting a different brand each month as my surgery say they can only give me what they have so will be different brands each month. Thanks! MM XX
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31-03-2020
11:25
Hello ladies, I've managed to stay on the same brand of Anastrozole for 3 years, but because of the current corona virus crisis, and the queues at pharmacies etc I wondered if other ladies are getting different brands each month and if so has it been ok for you or have you had any negative side effects? Thanks in advance and keep happy and safe during this time! 🙂 MM xx
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18-02-2020
04:41
1 Hug
Hello, I've been on Anastrazole for 3 years and have just read this on Cancer Research site 'You have blood tests before and during your treatment. They check your levels of blood cells and other substances in the blood. They also check how well your liver and kidneys are working' and since I haven't been having these tests, should I be? I've also heard that cholesterol levels should also be checked? Thanks!
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27-11-2019
11:15
1 Hug
Dear Drida I just wanted to show support and send you a big hug. This forum is brilliant for getting advice and support. As others have said speak to your breast care nurse or even your GP as it helps to talk. Once you know what you are dealing with, treatment will start. Be strong, you really can do this! 😁 😁 Take care! MM xx
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25-11-2019
10:16
Hi ladies I'm 52 and I had my 5 year check this year and have been on anastrazole for nearly 3 years after being on tamoxifen for the first 2 and was told that current research is that it is only beneficial to stay on an aromatase inhibitor for a total of 5 years (so another 2 years for me). I queried the fact that when I reach the anastrazol 'cut off' point I would only have had 7 years total of cover and not 10 years. (originally on switching over 3 years ago, I was told by oncologist I would stay on anastrazole for the whole 8 years). I was told recently at my check though that after being on anastrazole for 5 years I would stop it but could at that point, choose to go back onto tamoxifen for the remaining 3 years. It's all very confusing isn't it? MM x
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21-11-2019
11:02
Thank you ladies for your replies. So have been taking for 2 weeks now and have been feeling a bit worse if I'm being honest but I will stick with it for a bit longer as I know it can take a few weeks to feel an improvement. Thanks all! MM xx
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16-11-2019
11:04
07-11-2019
11:40
1 Hug
Hi all So I've just been prescribed Sertraline and wondered if anyone else is on this drug and how do you find it? My mood has been really bad lately so hoping it helps. Also on anastrazole and zolodex so guess my hormones are pretty mixed up! I was very reluctant to take an anti depressant so just hope they are helpful. Thanks! MM xx
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27-10-2019
01:43
Hello How can I search for all my old posts? It used to be easy but I can't seem to do it now? If you could let me know that would be great, thanks! 🙂 MM x
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26-10-2019
02:44
1 Hug
Hi I've been taking oral Ibandronic acid tablets every day since starting on aromatase inhibitors nearly 3 years ago. Before starting the aromatase inhibitor or the ibandronic acid I had a DEXA scan to use as a base line indicator. These are repeated every 2 years approx whilst on aromatase inhibitors. I have been advised the length of time for taking both is 5 years. After taking you can't eat or drink for 30 mins and half to sit upright for an hour also. I was advised 3 years ago that IV infusion was only possible by self funding and it was also only available at certain hsopitals. Hope this helps MM x
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18-10-2019
09:58
1 Hug
Hi Ladies So have been taking anastrazol for nearly 3 years and zolodex for a couple of months less and have suffered since being on it with low mood and anxiety. I wake up in the night worrying about things which are not even cancer related and over think everything as I can't seem to turn the brain off! I'm moody a lot of the time and often have low self esteem and low confidence and can cry at anything! Also noticed weight gain which is hard as always been fit and I jog too but it just won't shift. Not sure if all of these symptoms are menopause or are caused by the anastrazol or the zolodex. I think I am due to stop zolodex very soon so wonder if that will help my mood? I hope so! I often wonder where have I gone as I used to be a confident 'together' sort of person but now feel a bit of a shell. Anyone else feel like me and can relate to this and did you feel better after stopping zolodex? Thanks ladies! MM xx
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11-10-2019
04:13
Hi Smash73 As I've said for me the tattoo does not seem to last very long. However even though it has now faded and I will have it repeated, it completed transformed the look of the breast and made the whole reconstruction look like a real breast as there was a focal point (if you know what I mean)? The nurse matches up the colour of the tattoo ink with your other nipple and areola to be as close a match as possible. It doesn't take very long to do. I was told that the tattoos will fade so always knew it was not a permanent solution and so next year I hope to get it re-done and will continue in that mode for the future. I'd say go for it! MM x
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11-10-2019
04:07
Thanks Chick1 for your reply. I think I just need to try and stop worrying about it and wait and see what happens at the appointment. I think because this is my final hospital check I've built it up into something bigger than what it probably is. Yes, I was told when I switched from Tamoxifen to Anastrazol that I would stay on it for the remainder of the 10 year period so hopefully that hasn't changed. Thanks for replying to me! MM xx
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07-10-2019
08:03
Hi ladies Well I will be having my final check up soon, 5 years on from being diagnosed (where has the time gone)? Just wondered what to expect from the appointment. When I switched to Anastrazole after being on Tamoxifen for 2 years I was told I'd take it for the remainder of the 10 year term. I really hope this has not changed as if it has I would rather not have switched but have just stayed on Tamoxifen for 10 years. Anyone who has had their final appointment and been in a similar position and could offer any insight as getting quite anxious about it. Thanks! MM XX
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05-10-2019
11:12
Hi Smodge I had a nipple replacement (from the same reconstruction, not nipple sharing) and it went flat very quickly, within a few months which was upsetting. I also had tattoos done. I had a second lot of tattoos done in December (normal to have 2 lots), but it has almost comleptely gone now only 10 months later! With hindsight I wouldn't bother with the nipple reconstruction. At first it looked fabulous but only stayed that way for a very short time and all the visits to hospital etc to check it and the surgery itself I found it not to be worth it. I will have the tattoos repeated though as it is a quick procedure and really does make the breast look normal and balanced. Hope this was helpful! MM x
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05-10-2019
10:59
Hi So am due my final 5 year hospital check soon. Currently on Anastrazol and have been having Zolodex injections for 2 years as well. Previously 2 years on Tamoxifen. I'm now 52. Are they likely to stop the Zolodex and just keep me on the Anastrazol for another 5 years? Also, if they stop the Zolodex would I normally expect to carry on taking the Ibandronic acid and Adcal D3? I've been diagnosed with having osteopenia so thinking that would be a good plan with staying on the Anastrazol? Also I understand that Ibandronic Acid helps to reduce the risk of recurrence in the bones so would I stay on that for the duration i'm on Anastrazol? If I did stay on the Zolodex for a bit longer is that ok? I always find I forget to ask questions until I'm out of the appointment and back home again as I think I get too nervous! 😮 Thanks very much! MM
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14-07-2019
12:56
1 Hug
Hi Sue I am the same age as you and am wondering the exact same thing. At the start I was told by oncologist I would be on it from between 2 to 3 years. Have had it now for nearly 2 1/2 years now. Prior to starting Zolodex my periods came back so I was swiftly started on it as the previous blood test I had taken had given an inaccurate result about my menopause status apparently. Agree with Smash73 that it is on each persons own circumstances as we are all different and I don't think anything is actually set in stone! I will be very reluctant to stop having Zolodex just yet and so hope I can stay on for another year or so because I am on Anastrazole and you need to be post menopausal to take that. Hope you find some answers! 🙂 MM xx
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