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Robs1612
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since
28-06-2014
13
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28-07-2014
01:31
Hi Ladies, Has anyone else had problems with swollowing their meds, I am only taking paracetamol and antibiotics (12 days post surgery today) they are both capsules which I normally don't have any problems with, but they just don't seem to want to go down, not even the tiny sleeping pills the GP prescribed! They get stuck right at the back of my throat, not the coughing type of stuck, but can feel them every time I swollow, I am having to eat bits of bread to push them down! Any hints please? Thanks xx
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28-07-2014
01:19
Hi Ladies, I had a WLE 12 days ago, not even had my pathology results yet, and people are starting to give the "that's the worse over with" speeches. I still feel tired, still black & blue, still sore, and still terrified!! I have read how many women have to have more surgery for clear margins, know I will be having raditherapy but obviously don't know when. How can I feel normal? act normal? be normal? Sunday was the first day I ventured out of the house more than just the corner shop, felt good to do normal things with my hubby, but to be honest I didn't feel normal, apart from the discomfort, just didn't feel the same. I want to shout at friends and family that say things like "well that's the worst part over, all plain sailing now" "Radiotherapy is nothing, you'll be fine" "Hey you are a strong person you'll do great" Like hell, I feel anything but strong, it's not plain sailing from where I'm sitting. But I don't say anything, I just try to smile, say thanks and then go off and cry on my own. I want to shove the word "Positive" in room 101. Thank goodness we have this forum where we can get it off our chests (excuse pun). Thank you ladies. Wishing you all good things and will read your rants with the respect they deserve. xx
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28-07-2014
12:52
Good luck today, hope you get the best results. Going for mine on Thursday. Fingers crossed for you. x
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28-07-2014
12:50
Hi Rosie, I had a similar problem, think it was the Oramorph and Ordansetron, I found Lactulose did the trick, took the first slightly larger dose, then followed up for a couple of days, lots of fresh fruit juice (orange mostly) and things started to move very well, but was very uncomfortable for 3 days, miserable on top of everything else. Good luck. x
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23-07-2014
10:51
Hi Globalnomad, it is so sad you have no one at home, I think breast cancer makes you feel alone anyway, I do have a hubby at home and friends around, but I still have feelings of loneliness, can't bring myself to talk to those closest to me honestly about how I feel all the time. I called the helpline number 2 days ago with a quick medical question and chatted for ages to a really kind, understanding woman and found myself pouring out so many feelings, it was so incredibly helpful, please give it a go. My question was about creams too, as a friend who's a district nurse gave me some MediHoney cream for soreness under my breast a few weeks before I was diagnosed, it is so wonderful wanted to know if ok for during radiotherapy, the advice I was given was each radiotherapy unit will tell you what you can use depending on their equipment and guidelines, they may not recommend such creams or aloe Vera gel, but will let you know if it is ok to use them. I do hope this helps, you can always message me if you want to let off steam, we are all in this together. Best wishes Robyn x
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21-07-2014
11:46
Hi Wilsbury, well it is 5 days post surgery, and I have been lucky so far, minimal swelling, some bruising and a bit sore, but only needing paracetamol now, I'm signed off work till my outpatients appointment, when hopefully if it's all out they will start the radiotherapy process, not looking forward to that at all!! How are you doing now? x
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21-07-2014
11:29
Hi Daltcat, I can highly recommend the help line, sometimes it is easier to talk to someone that way, I have had nothing but great support and good advice from them, helps to alleviate that "alone" feeling. I was diagnosed with high grade DCIS, from a breast screening appointment to surgery for me was 6 weeks I am now 5 days post surgery for WLE (wide local excision), now another waiting period for pathology results. Didn't want to keep calling my BCN from the hospital, so the helpline here has been a life saver. Good luck. xx
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20-07-2014
12:40
Hi Fiona, I recently has surgery, Wide local excision, I have been very lucky so far, very little pain and a clean healing wound, but I did have a couple of times I felt left out in the cold by my team, we all know we are not the only ones, but we want answers not answering machines, so I would call the help line or MacMillan (I didn't have this number so started with MacMillan). They were kind, understanding and patient with me, was transferred to a nurse who explained things clearly for me, my mind was put at rest and I didn't feel so alone. Sorry it's taken so long to answer and I hope things have improved for you. Big hugs x
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20-07-2014
12:32
Jilly, I think your Chelsea buns were perfect! I work in a hospital, and knew many of the staff that treated me, and I know they would have loved the buns and seen the humour! That is something I have experienced being on this site, we are all scared, angry, feeling lost at times, but we all still seem to manage some humour. Wishing you well. x
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20-07-2014
12:27
Hi Jenny, my daughter will be 26 this August 4th, seems like a life time ago. It's now 3 days post surgery, really not in a lot of pain, uncomfortable and bruised, but not really pain, although it all looks weird, black, blue, swollen and well sunken. Just this waiting game again for the path results. x
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15-07-2014
10:20
I was diagnosed with high grade DCIS just over 2 weeks ago, had surgical appointment last Friday and surgery tomorrow, surgeon has recommended wide local excision followed with 3 weeks of radiotherapy, that's if the pathology shows he has cleared it all. All this after a standard breast screening, I had no idea anything was there. Think I'm still in shock really, not sure how I'm supposed to feel, so many family members, friends and colleagues are being so supportive, but I still feel alone. So much pressure to be "Brave" I really don't feel brave at all. Even though I work in health care I still feel so vulnerable and scared sh@#less! The thought of waiting another 2 weeks after surgery to know the path results feels unbearable. Why does it take so long. I wish all you lovely ladies well. X
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15-07-2014
09:36
Think that's normal, I am ok until someone is kind to me and then I just can't stop crying. xx
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15-07-2014
09:33
Well done you, I am scheduled for surgery tomorrow at Dorset county Hospital (my daughter was born in RUH Bath by the way). I am terrified and your post has helped me feel less so. It is supposed to be day surgery and as I am also a memeber of staff at the same hospital, I know quite a few of the team and that is also encouraging. I am hoping I won't have to stay in, but will do what they think is best. Just wondered how you feel about people calling you brave? That is the last thing I feel. Heal well, and as painlessly as possible, will look forward to you updates. All the best Robs
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