Breast Cancer Now Forum

Oh thank you all for your comments.   Just have no idea what to do with this.  Dont think any baldpatches as yet but hair very thin on top.  For the first time yesterday felt rain on my head!!   Problem for me is my hair was so thick so looks so fine now, but I  will not get it cut will just see what happens naturally.   May give the nurse on this line a call to as everyone seems so helpful.   You have all cheered me up a lot   Bless you x ... View more

Thank you so much for replying to my post.   My hair is coming out in handfuls If  I run my fingers through it. I did have really thick hair but think I have now lost about 2/3 of it.   I have only washed my hair once a week and used johnson's baby shampoo and simple conditioner.   I did not rally start to lose my hair until about 17 days in but it is coming out all the time, falling out.   They used the medium cold cap with the small over it and there was a huge gap over the top of the inner cap both times.  I said I have a big head  which I do and sholud it not be a bigger cap but they said no. The nurse did say though at the end of chem0  2 that if I use it again she has changed my notes  to medium and medium. But to be honest dont know if I will have any hair left at all by then. My hair is short just below my ears and dont think at the moment it could be cut, as when you touch my hair it falls out.   Husband thinks I should maybe just pull it out, but frightened to do this and think I will just wait to see if it all falls out.   I am so disappointed as I did try the cap and had great faith in it but just bad luck that it was not fitted or working properly.       ... View more

Heloo,   This is my first post so sorry if I am asking something that has been explained elsewhere.   I had my first chemo and had the cold cap and there was a little hair falling out in the first two and a half weeks.   The last few days and after  washing my hair with Baby shampoo and simple conditioner yesterday, masses of hair fell out in the shower and when I brushed my hair yesterday and today.  I just have to touch my hair and lots comes away, it is not sore but my head has been tingling.   Problem was at the first cold cap treatment the two tubes were disconnected when I went to the loo and only one was reconnected.I noticed after about an hour after Fec had been administered that mey head was not rwally cold.  The hospital were worried the machine might be faultyand are really sorry.   I had second fec today and cold cap was cold!! Everyone was checking it was working.   So I am wondering if the result of the first chemo is that I will lose all my hair or if the second cold cap might do the trick with the hair I have left.   I do have thick hair which is in a bob, it is coloured and so the grey/white or whatever roots are very visable now.   Having spent about 12 hours with the cold cap, I would love to keep some hair but have no idea if I will.   No one at the hospital had any idea.   If anyone has any thoughts would be great if you could reply   many thanks ... View more