Hello everyone. Sorry to have been away from the forum for a while. You are right, Carolyn, I did go for the wbr in the end. Five treatments, finished 12 days ago. After I thought about it very carefully I dont think I had a choice. It wasnt as bad as I thought it would be, though the side effects will get worse before they get better apparently. Main problem is feeling wobbly especially in the morning, but not sure if it is the steroids causing this. They have now been reduced and that horrid puffy look is going! i have just had my first treatment of Eribulin. So far so good apart from the normal fatigue. My hair is starting to fall out now. Not sure if it will all go but I suspect it will. So I dont really know where I stand and dont want to, to be honest with you. I have read some dreadful and frightening things and also things that give me hope. I suspect I will continue to bury my head in the sand! Anyway, would love to know how everone is getting on. Love to all xx ps. Unfortunately I am no longer able to drive and cant be left alone in case I have another seizure, so life is very different now. Xx
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