Breast Cancer Now Forum

Never made it back to work.  Pain too much and other health issues.   Sometimes better to,change life and take that reduced pension.  We don’t know how long we have and we need to enjoy what we have if we can survive on less that would be my choice.  X ... View more

I’m on the Triple Negative One.  Px ... View more

Pam here.  Sorry I’ve not been on this,site much recently.  I do the Facebook site now.   Im still struggling with l7mps and bumps and waiting for Marsden appt and still have pain.  That said 8m still around.   hope you guys are doing ok?   pam x ... View more

Good news Den x ... View more

Thank you Marina.   TNBC Is very scary.  Had cough for five weeks now but subsiding.  Constantly looking out for secondaries.  Mammo on 24th August which is around three years since diagnosis.  I still can't get clear information when you count remission start from.  I know three years is good but is this from surgery, chemo or rads?   I had chemo first 8 then surgery, then 20 rads.  So the timing is different.  Some say from diagnosis but how can that be as you still had cancer then?   Looking at stats and I know we shouldn't but after three years the recurrence rate drops a lot so dates are important.  I think my three years will fall in 2018 but am not sure???   Still have pain and tintinus but a small price to pay for life.     Love to you all.   eat well, exercise if you can and take care.   pam x ... View more

Over moon x ... View more

So happy x ... View more

CT scan back and showing lungs and liver clear.   So relieved.    Thank you  all for support.   pam x ... View more

Sorry you are here Moonin   There is a lady on this site several years in remission. wishing you all the best.   oh, forgot to say most TNCB is grade 3 and I had four nodes infected and had to have full clearance.  I'm now 2:8 years in remission.   pam x ... View more

Scan done thankfully.  Got very sick in tube but they got clear images.  Just have to wait now.   You have been such a support.   pam x ... View more

Thank you Anne and Den.  CT today.   didnt get much sleep as tinnitus was,bad last night.   pam. X ... View more

Hi Den,   im not good at all.  Also,have a lot of hip pain which is severe.  Have emailed hospital about that as well.  God I hope I've not not secondary's after coming so far.  Very scared and in pain.   pam x ... View more

Hi Den,   Have cough now so being sent for CT scan!!   Had blood test at GPs last week for full bloods, TSH,ALT and B12.  Bad results and been called in for appointment tomorrow.  Worried about blood cancer and lungs now..   Will update you when I get some results.  CT next Thursday and GP Tuesday.   Hope youre well?   Pam x   ... View more

Are you okay Warcol?   I'm getting  nervous for next mammo in August as so many lumps in breasts!   hope everyone is doing okay?   Pam x ... View more

Hello Cruzita,   Sorry you find yourself here.  Are you in UK?   Most TNCB are grade three because of their aggressive and basal cell status.  Just remember we are here for questions.  Don't accept a too long wait for appointments if you can as although what doctors say is right you will want to catch this as early as possible.  I believe in UK there are guidelines for when treatment to start after firs being diagnosed.  Maybe someone here can help with that?   Recall a 30 days period which I just meet but can't recall.  Anyone HELP with this info?   I had a 31mm lump and node involvement and and had chemo first then surgery, then 20 rads and this was in 2014 and I mstill here.     The people on this site can be such a hell and support.   pam x     ... View more

Hello JBS,   You are not alone and some people do survive this.  I'm two years in remission and Bel on this site is 15 yrs.  There is part of this site for people just like me and young mums.  You may want to join that part as well.   good luck   pam x. UK ... View more

Hello Wiliams500,   You will need to listen to your body.  I had a really bad with sickness, hospitalisation during chemo for sepsis.  Then an emergency operation to remove infected cyst.  You need to keep clear of bugs so you need a plan if carrying in working.  This can be agreed with your employer as you are now covered by the disability rights act (if you live in U.K.). You may need to work ffrom home if possible.   As A says this is doable but we are all different.  I know if people losing nails during Taxol but to prevent this paint nails dark shade as this helps.   I couldn't work during treatment as I was just too ill.  That said in I'm my late 50s and that may account for that.  I was extremely well before diagnosis and it came as real shock so one can look and feel well but have cancer.   maybe you could set out a plan A and plan B with employer.  Your GP will sign you off sick if you can't go to work and remember Doctors receptions are full of sick people with bug.  So insist you wait in a private area or ask for first appoint of day.   some people sail thrust and some don't.  This will not affect your outcome but you and those around you need to understand things can change suddenly if you get unwell.   The hospital where you are being treated should give you information about needed A&E services as you will need to skip to front of que if unwell as your immunity will be low at times.  Hence my getting sepsis.   good luck with treatment.  You can do this with support.   pam x ... View more