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SB
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25-08-2014
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22-03-2015
07:54
Dear Peartree, I'm really glad somone else could relate! For ages (over 15 years now) - that's how I always felt. I was in my early thirties when I realised that the day I did not excercise would be a nightmare! I needed to break out a good sweat - running 10K a day would do it for me. This would have me very calm during the day and no hot flushes day or night. So things did not change when I started Tam six months ago. Basically that's how I've always been. Either I excercise in the morning or I feel misrable and crancky all day and I end up drenched in sweat at night! The problem is that keeping the same level of acitvity does not work in the long run! One has to keep upping the frequency and itensity of the exercise routine. Running (longer and faster) + weight training. I guess that's the price one has to pay for being very fit! We are not crazy after all 🙂 We are not imagining things! I wish you good luck and keep up the good work.
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24-11-2014
06:10
I hope I can find someone who can help. I had a lumpectomy for ILC four months ago followed by 30/5 sessions of radiation therapy. Now I'm on Tam. A month ago I had my first ultrasound and it showed a lesion that was classified BIRADS 4c. The biopsy indicated it's fat necrosis resulting from radiation treatment. My three doctors the surgeon, oncologist and radiologist want to have this fat necrosis removed in three months' time. However, they're not in agreement about the method of removal. The surgeon wants to have it surgically removed. The oncologist and the onco-radiologist prefer the Mammotome as it's less invasive and would leave no scar. I'm confused and don't know which option I should go for and what dangers I risk running into if I choose not to remove this area of fat necrosis. Can anyone help answer my questions? Thanks.
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26-10-2014
11:42
Hi Jillybee, Thanks for your reply. Please do let me know the outcome of your doctor visit. I did some reading about fat necrosis. In some cases they decide to leave it in and some cases they choose to have it removed. I think the decision to take it out is usually associated with patients who have had surgery to remove tumours in the past. My surgeon did assure me that fat necrosis does not change into cancer in the future but he wants to have it cleared out as the breat tissue needs to be kept clean and clear for future mammograms and ultrasound. Fat necrosis is always invariably mistaken for malignancy and "we don't want to go through this hassle every time you go for the regular screening". I'm checking with my oncologist tomorrow and will keep you updated. Thanks again and good luck.
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25-10-2014
04:08
Hello, I'm posting my question here because I don't know under which category it should really go. I was diagnsoed with invasive lobular carcinoma (ILC) in July and had a lumpectomy by the end of the month. This was followed a month later by 25/5 sessions of radiation. I'm done with radiation. I've been put on Tam two months ago. My oncologist had requested an ultrasound which I had two weeks ago. The radiologist said she could see a nodule in the same place of the surgery and performed a biopsy. The results showed this is a fat necrosis probably resulting from surgery and/or radiation. My surgeon wants to have it removed. My question is: does this fat necrosis need to be surgically removed? What if I decide not to have it removed? I'm dreading the thought of going through another surgery three months after the first one and my skin is still tender after radiation. I hope somoene can help answer my question. Thank you.
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14-10-2014
06:54
Hi Torquay, I too was diagnosed with grade 2 invasive lobular carcinoma in July and had surgery during the last week of the month. I started radiation one month after surgery. I finished the 30 sessions a week ago. I did not know what radiation therapy would be like or how I would handle it. I actually I was really scared. But actually it wasn't that bad. I used to get zapped early in the morning and drive straight to work afterwards. I have a very demanding job with endless meetings and conference calls. That continued for six weeks. Hard as it may seem but the sessions were actually a welcome break from the crazy life in the office. I used to go early and read a good book until it was my turn. Then I would spend the five minutes on the table imagining I was under the sun on a beach somewhere. Crazy right :)! Believe me radiation is far easier than surgery. It is a mere inconvenience. You need to fit the appointments into your daily routine. You need to take very good care of your skin and drink plenty and plenty of water. Good luck. xx
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12-10-2014
07:36
Dear Sam, Thank you very much for your reply. Unfortunately I'm not in the UK. I'm not sure there's a number to call from out of Britain. Thanks
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11-10-2014
07:40
I had a lumpectomy for ILC in late July followed by a 25/5 radiation course. I've been put on Tam 1.5 months ago. I had a breast ultra sound two days ago. The radiologist noted a small lesion that she graded BIRAD 4C. She recommended an ultra sound true cut pathology. My surgeon seconded this opinion saying there is a probability this is a new malignancy. The question is how could this have gone undetected only two months ago when I had the mammogram, US and MRI? The doctor said it could have been very small to be detected and the radiation actually made it grow. Does this make sense? Radiation treatment supposedly kills any rogue cells not form new tumours. Am I missing something!? Please help answer my questions. I'm worried sick.
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07-10-2014
06:14
Hi Blood clots and stroke are two of the major side effects of Tamoxifen. High risk people are usually prescribed bolide thinning medication (sometimes as light as a baby Aspirin a day). My doctor doesn't seem to see this is necessary for me at the time being. I'm 47 and have started taking Tam two months ago. Does any of you ladies on Tam take any blood thinning medicine?
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07-10-2014
06:04
Dear ladies, I posted this twice earlier once as a new topic and once as a reply. Here it is again and I hope you find it helpful. Dear all, I am 47 and I've been having hot flushes for as long as I can remember - ever since I was in my early thrities, if my memory serves me right. I would wake up in the middle of the night drenched in sweat when my husband would actually be complaining the room was too cold! I've tried everything from putting the A/C on the lowest temprature possible to sleeping in my undies. Nothing worked. The only thing that has really worked is excercise. I discovered that if I break out a good sweat early in the day, the dreaded hot flushes do not make their midnight visit and I have a peaceful night. Also not eating anything at all at least two hours before going to bed at night keeps hot flushes at bay. Keeping a well hyderated system helps a lot too. I don't have a clue why these tricks work and no one seems to know either. I would guess they regulate one's core body temprature. When I was prescribed Tamoxifen for my BC I thought that would be the end of me! If I already have hot flushes, what would life be like with Tam! My hot flushes have not worsened since I started taking it provided of course that I exercise in the morning, do not eat at least two hours before turning in and drink plenty of water - up to three litres a day. I hope you find this helpful. Regards.
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01-10-2014
06:32
Hi Sarah, I too have gone through surgery and radiation. Today I had my last rads session. Phew! I've started taking Tam two months ago and so far so good. So don't worry. It's not that bad. Good luck.
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12-09-2014
06:00
Hi Hattysue, Radiation is not easy on the body overall eventhough it's limited to the breast area. It has a catabolic effect which means it destroys cells and tissues - bad as well as good ones! Don't worry cells do build up and rejuvinate. However, this takes time. You can help the cell building process by drinking plenty of water and eating a high protien diet. My doctor advised me to stay well hyderated (up to three litres a day) as water helps to detoxify the system - all the cells that are broken down by radiation are flushed out when you drink water. Water also keeps the skin healthy which would lessen the "sun burn" sensation. You need to apply whatever cream your doctor has prescribed. Use a mild soap and no deodorant for the duration of the treatment. Driving is not an issue. I drive myself to the sessions and then head straight to the office! You might feel a bit tired as the treatment progresses but if you eat and sleep well, you should be OK. Excercise does help a lot. So don't worry. You'll be just fine. All the best!
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11-09-2014
08:55
Hi I'm glad you feel more positive now. The worst part really is the shock one gets when you get the results then things sort of settle down and one accepts the reality and starts going through the different phases of treatment. From your post I can assume you've had surgery and will be going straight to rads with no chemo. That is really great. I can assure you the worst is already behind you. Radiation is not too bad provided of course you follow your doctor's instructions and apply whatever cream s/he's prescribed. I would also advise you to drink PLENTY of water - up to a minimum of three litres a day. In addition to having a detoxifying effect water keeps the elacticity of the skin and helps rejuvinate the cells countering the harmful effects of radiation. Try to eat a healthy diet and stay away from any canned food. I wish you a full recovery. All the best.
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08-09-2014
03:55
I was diagnosed with BC in late July. I had a lumpectomy and currently going through radiation. When I received the results I could not believe it. I was in total denial for a while then when the truth began to sink in I started to accept it. What really drove me crazy was the fact that I follow an extremely healthy lifestyle. I never smoked. I do not drink. I exercise vigoursly and regularly. I follow a very healthy low-fat diet. I maintain a healthy weight. On top of that I do not have a family history of the disease. How did I get it! It's really beyond me. Does anyone really know what causes cancer!!
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08-09-2014
11:23
Hi I used to follow a rigorous exercise regimen almost up to the day I had my lumpectomy. I used to run 8K/day plus weight training 5 times a week. I was advised to gradually go back to excercising 6 weeks after my surgery. However my surgeon and my fitness trainer they both insisted that I should not start running until I've completed the radiation therapy. This is because running and radiation have the same catabolic effect on the entire body - even though radiation is limited to the breast area. I did not listen to them and thoguht I should give running a try. I was OK running 3K or even 5K. Once I reached my usual 8K (going slower though) the next day I felt I simply had no energy. I felt fatigued and so sapped of energy even though I'm eating and sleeping well. Would anyone be able to advise? Thanks.
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07-09-2014
05:18
Hi Mary, I read your reply in another thread and I'm really glad your flushes are getting better that you've started exercising. Exercise does wonders to the body and soul. Keep it up. Xo
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07-09-2014
05:12
Hi Sal, I'm the someone Mary referred to in her reply 🙂 This is what I posted last week. I hope it helps. I am 46 and I've been having hot flushes for as long as I can remember - ever since I was in my early thrities, if my memory serves me right. I would wake up in the middle of the night drenched in sweat when my husband would actually be complaining the room was too cold! I've tried everything from putting the A/C on the lowest temprature possible to sleeping in my undies. Nothing worked. The only thing that has really worked is excercise. I discovered that if I break into a good sweat early in the day, the dreaded hot flushes do not make their midnight visit and I have a peaceful night. Also not eating anything at all at least two hours before going to bed at night keeps hot flushes at bay. Keeping a well hyderated system helps a lot too. I don't have a clue why these tricks work and no one seems to know either. I would guess they regulate core body temprature. When I was prescribed Tamoxifen for my BC I thought that would be the end of me! If I already have hot flushes, what would life be like with Tam! My hot flushes have not worsened since I've started taking it provided of course that I exercise in the morning, do not eat at least two hours before turning in and drink plenty of water - up to three litres a day. I hope you find this helpful.
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02-09-2014
02:42
Dear all, I am 46 and I've been having hot flushes for as long as I can remember - ever since I was in my early thrities, if my memory serves me right. I would wake up in the middle of the night drenched in sweat when my husband would actually be complaining the room was too cold! I've tried everything from putting the A/C on the lowest temprature possible to sleeping in my undies. Nothing worked. The only thing that has really worked is excercise. I discovered that if I break into a good sweat early in the day, the dreaded hot flushes do not make their midnight visit and I have a peaceful night. Also not eating anything at all at least two hours before going to bed at night keeps hot flushes at bay. Keeping a well hyderated system helps a lot too. I don't have a clue why these tricks work and no one seems to know either. I would guess they regulate core body temprature. When I was prescribed Tamoxifen for my BC I thought that would be the end of me! If I already have hot flushes, what would life be like with Tam! My hot flushes have not worsened since I've started taking it provided of course that I exercise in the morning, do not eat at least two hours before turning in and drink plenty of water - up to three litres a day. I hope you find this helpful. Regards.
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30-08-2014
06:03
Hi everyone, Today I had an appointment with my oncoradiologist. He stressed the importance of drinking up to three litres of water a day. He said keeping the system well hydrated helps flush away the toxins as well as keeping the skin soft and subtle. This helps minimize skin complications that could result from radiation therapy. So please everyone drink up as much water as you can - the downside to this is the number of daily trips to the loo!
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